Notabilia

Fuck Sanism in the Writing Community

I just read one of the most sanist, ableist things I’ve ever seen on Facebook. I am awake and alone and it’s the middle of the night and why do I even try is all I can think. Why do I try when it makes no difference? When folks like me are detested, seen as less than human, when everyone piles on as soon as one person gives the green light to do so?

I don’t know what to say. I am crying and shaking. The person, a writer with whom I share almost 250 mutual friends, is upset because his friend is experiencing psychosis. Folks should read his post and his comments and the comments others have made. Then they should set their own biases aside and imagine someone talking about them that way.

I left my own response in the comments, which I’m sharing below. Fuck sanism. Fuck it. We deserve better, especially from our fellow writers. This writer is wrong. He’s doing immeasurable primary and secondary harm.

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I’m an advocate for those with mental-health issues and have lived experience myself. I know you’re upset, but I encourage you to find your own center here and situate yourself within a framework of understanding and compassion.

I don’t always love NAMI, but they have support lines for loved ones who are dealing with situations like the one your friend, and by extension you, are going through. You can call them day or night. I encourage you to do so before you do secondary harm to others, like me, who are reading your words and feeling your disgust and hatred for folks like us.

If you wouldn’t say it about a cancer patient, don’t say it about someone experiencing psychosis. It’s dehumanizing and may take someone’s last hope and remaining dignity away. Your words are doing that for me right now. I’ve survived a lot. I’m in tears. You’re saying the part out loud that everyone thinks about us no matter who we are, what we do, what we accomplish, or how much we try to educate others through art and advocacy.

Institutions

Because Knott’s early life took place in various institutions, and because their confines would have seemed insurmountable, it shouldn’t be surprising that he viewed the poetry world with suspicion and contempt. After all, institutions were his only experience of organizing the chaotic world, and those institutions did not treat him well. — Sandra Simonds

I’ve been thinking about Bill Knott again. I feel this. I really do. Institutions have not treated me well, either, whether familial, social, political, religious, educational, or governmental. Read Simonds’s essay on Bill Knott on the Poetry Foundation’s website.

Flint

My father and his friends destroyed my childhood innocence. The poet who sexually assaulted me destroyed the innocence I reclaimed in adulthood. He did it in part by making me talk about how my father and his friends violated me while he violated me. I know you don’t want to hear about that. I know nobody wants to hear about that.

Maybe you want to write your poems. That’s what I want, too. Maybe you want to see your work in the world because you believe it could help others—and you for that matter. That’s what I want, too. Maybe you want to belong to something and feel proud of what you belong to. That’s what I want, too.

If there’s a difference between us, my guess is that you’ve been heard, believed. Or that what happened to you isn’t what’s been happening your whole life. Or that you found poets who are safe, kind, welcoming. Or that you conjured some kind of flint to restart the fire of your life.

One Life

Years ago, Tyrone Williams wrote that the poet who harmed me (and others) suffered two “deaths”—a social death and a cultural death. If Williams were still alive, I’d tell him what I suffered: one life I can’t even stop living, one life that feels like an emotional and physical battle every day, one life where I’ve lost trust in everyone, one life that just won’t end.

Utah State Mental Health Hospital

Here are some of the reasons a person could be committed to the state psychiatric hospital in Utah around the turn of the century: having epilepsy, financial embarrassment, disappointment, softening of the brain, death of a child, poverty, jealousy, unreciprocated love, studying prize fighting, ovarian trouble, reading novels, solar heat exposure, overwork, litigation, sedentary life, hypnotism, having girl trouble, being sheep herder, and smoking cigarettes.

Image: Utah State Mental Hospital in about 1920. From Utah Department of Health and Human Services.

Whateverality

I just called my partner my husband, and he was like I’m your partner not your husband, and I was like you’ve never taken issue with the word husband before, and he was like I am now and besides, he said, if I bring my husband into this, there’s going to be trouble, and I was like, you have a husband, and he was like, me as a husband not a husband I have, and I was like can we pretend like you have a husband and if so what’s he look like and is he into asexualish married nonbinary folks who sometimes lean into bambisexuality, and suddenly my partner was gone and I was sitting alone in the living room on the champagne-colored velvet sofa just as the sun was starting to rise and warm the creek and the horses and the laccolith, and I thought maybe I need a new word for my sexua-whateverthefuck this is.

Howard Dully

Here’s what could get you lobotomized at the age of 12 in 1960 here in the United States: not reacting to love or punishment, objecting to going to bed but sleeping well, daydreaming and not discussing the content of the daydreams, and turning the lights on in a room when it’s sunny outside.

These are the “symptoms” that led to Howard Dully being institutionalized from the age of four and undergoing a trans-orbital lobotomy in which an orbitoclast was inserted into his brain through each of his eye sockets.

Please don’t make jokes about lobotomies or about mental-health issues and treatments in general. And please realize that we’re headed backwards in this country where mental healthcare is concerned. Lobotomies may not be in our future, but barbaric treatments and human-rights abuses are. I pray I won’t live long enough to see them or to be on the receiving end of them.

I Am Them

For me, the pronoun they works on many levels. One complaint about using they in the singular is that it’s grammatically incorrect. But is it? The mind is plural and decentralized. We may be one, but “I” may not even be a thing other than an understanding between us, a kind of “you there, me here” shorthand, a fiction that appears to simplify living. They is a better pronoun for me than he or she any day. It does more than help me escape the waist trainer of gender essentialism. It helps me remember that my mind is not one and never was and never will be.

Neuro-

Neuro- is a combining form that means nerve, nerves, and nervous system. It does not mean brain, though the nervous system includes the brain. So when I talk about neurodiversity, I am not reducing folks and their experiences, identities, or labels to their brains, and I am not situated inside any kind of bioessentialism or biomedical framework. We are biological organisms. Everything that happens to us is biological. Our biological experiences are largely informed by our nervous systems. Our nervous systems are—both acutely and chronically, and both idiopathically and collectively—affected by everything around us, including our experiences, our abuses and traumas, the ways in which we are marginalized and oppressed, and more. Saying something is neuro-, including using terms like neurodiverse within the framework of neurodiversity, is not saying this, that, or the other thing starts and ends in the body. It is not the equivalent of denying or discounting the larger systems, functional and otherwise, in which we as biological beings exist or the forces those systems exert on our lives.

Image: A graphic depicting the human nervous system, including the parasympathetic nerves and the sympathetic nerves. The functions of the former include constricting pupils, stimulating saliva, constricting airways, slowing heart rate, stimulating stomach activity, inhibiting the release of glucose, stimulating the gallbladder, stimulating the intestines, contracting the bladder, and promoting the erection of genitals. The functions of the latter include dilating pupils, inhibiting salivation, relaxing airways, increasing heart rate, inhibiting stomach activity, stimulating the release of glucose, inhibiting the gallbladder, secreting epinephrine and norepinephrine, relaxing the bladder, and promoting ejaculation and vaginal contractions.

Image source: News Medical.

Maria Gugging Psychiatric Clinic

In September 1994, [David] Bowie and Brian Eno—who had reunited to develop new music—accepted an invitation from the Austrian artist André Heller to visit the Maria Gugging psychiatric clinic. The site’s Haus der Künstler, established in 1981 as a communal home and studio, is known internationally as a centre for Art Brut—or Outsider Art—produced by residents, many living with schizophrenia and other psychiatric disorders.

The acclaimed Austrian photographer Christine de Grancy documented the visit, capturing Bowie engaging with these so-called outsider artists—a term often criticised for framing artists through illness or marginality rather than authorship. For the first time, these intimate portraits will be shown in Australia, when A Day with David opens at Joondalup festival in Western Australia in March, in collaboration with Santa Monica Art Museum.

And, of note: Gugging itself carries a darker weight. Founded in the 19th century, the clinic was later absorbed into the Nazi’s Aktion T4 program, which targeted those with mental and physical disabilities, and resulted in the mass murder of an estimated 250,000 people. At Gugging alone, hundreds of patients were murdered or sent to extermination facilities.

Source: The Guardian.