Southern Utah

Demons

Was I creating demons when I was at a poetry dinner party in Kansas City with Carolyn Kizer, and the entire group attempted to elide over her comments when she talked about another well-known poet attempting to rape her?

Was I creating demons when a member of my poetry class in Kansas City started stalking me, leaving flowers, torn-up copies of my poems, and letters about how bad and offensive my writing was on my windshield?

Was I creating demons when a poet and publisher in Kansas City screamed in front of a large group of poets, including my best friend, that I wanted to fuck him behind a dumpster?

Was I creating demons when a poet in Seattle who had agreed to work with me on my poetry googled (from his IP address) the words married and naked in combination with my name before we met? When he then canceled the appointment, told me I was childish for writing cut-up poems, and said I was wasting his time. When he also created a fake blog username and trolled me on my site (again, from his IP address) for months, trashing everything I wrote, including my poems.

Was I creating demons when two other Southern Utah poets said my work was pornographic and I should find another state that would accept it, while refusing to let me join their two state poetry society chapters and telling me they’d stopped meeting when they hadn’t?

Was I creating demons when a poet who’d been following my work for months and said he wanted to publish some of my poems left a hostile, sanist comment on one of my microessays in which I was lamenting the fact that people are jumping from a bridge down the street? When he screamed that my writing was the last thing he needed in his life, as if he hadn’t followed me and chosen to read, and laud, my work up to that point. As if he didn’t have the power to stop reading what I wrote or unfriend me or mute me or any of a suite of well-adjusted options that were available to him. That poet later disappeared during a mental-health crisis. When I was asked to help, I skip-traced him to his brother’s house, and he was eventually found safe. Because that’s who I am. Not someone who creates demons or treats people like demons. I’m a person who helps people when they need help, no matter how they’ve treated me.

Was I creating demons when a poet asked to read one of my manuscripts, then replied that he was sorry he’d even asked to read it? When he then rewrote part of it the way he’d like to see it, infantilized me and my work, assumed the speaker was me, treated the work not as work but as the opportunity to intervene in my personal life and my past, and talked about me in extremely sexist ways. When I responded and he continued the attack and infantilization, using my own work against me by calling me a little fist of a girl, a line from one of my poems. When he continued to move between unwanted intimacy, flirtation, and attacks in successive emails, even after I asked him to stop communicating with me. Or when my life partner had to intervene to make him observe my boundary.

Was I creating demons when a poet I’d known for more than twenty years threatened me here on Facebook, publicly in front of the entire poetry community, saying I was committing both a transgression and a manipulation when I told him I loved him, platonically, as a friend, something my context made clear? Was I creating a demon when he did similar things to other women and female-bodied poets.

Was I creating demons when a poet messaged me about a gay Arab who had gotten ahold of a photo of him in bed without his shirt on and how upsetting that was for him and who then sent me that photo through DM so I could see what he was so upset about? Or when that same poet viciously attacked a woman who was experiencing psychosis and got a group of poets to gang up on and attack her, which could have put her life in danger. Or when he refused to take his public post about her down so she could get some help without being pushed further into a dangerous or life-threatening situation. Or when he later told me I was borrowing the term CPTSD and wielding the label sanism, implying I don’t live with the former like he does as a war veteran and therefore have no right to identify and address the latter. By the way, I helped that woman, too. I reached out to her directly and got her a welfare check. If I’d been in the same part of the county as her, I would have been there for her in person. That’s a lot better than telling her she’s a terrible person and getting at least a dozen other poets to do the same.

Was I creating a demon when my poetry mentor breached my trust seventeen years ago with his words and his body and his insistence and his intrusion? When he made me talk about the ways in which my father abused me and became aroused when I did so. While he had me pinned down with his body. While he talked real nice, real childlike. While he continued despite no and stop and no and no and no. That was not a demon. That was a man. And a poet. A beloved one at that. I didn’t create that man any more than I create demons.

More recently, was I creating demons when a poet told me my comment about mentors not taking advantage of their students, which stems from my own experience, didn’t need to be said because it was already implied in the statement that students shouldn’t sleep with their mentors? That, in other words, we should all just be following the programming we’ve been given, which is to place responsibility on victims for not being or becoming victims. Look at my paragraph above. What part of that looks like a mentor trying to sleep with me? What part of that could I have avoided under the circumstances? Was I creating demons when that poet interrupted me in front of a group of poets to make his assertion? How about when he turned my gender into a joke and literally wanted to tell it as a joke on his joke podcast. How about when he asked how my life partner felt about my having sex with whoever I wanted and continuing to ask me that inappropriate bullshit question even as I kept repeating the word asexual, emphasizing the first syllable in the hope he’d understand not only his error but the violation intrinsic in his question. Is that evidence of my demon-making. (Note to everyone: Just because someone uses language for their gender and sexuality doesn’t make it your right to ask personal questions about either, especially not when first meeting them.)

Was I creating a demon when a friend of the poet in the paragraph above, one who’d been supportive of me, my work, and everything I’ve discussed about poets and poetry—up until it involved someone he personally knows—sent me a message in response to my asking not to be invalidated in which he says I am marshaling evidence, finding demons, distracting from real communication, seeing a glitch as a serious issue—thereby invalidating my concern about that issue—calling me a wrecking ball, making it clear none of the poets in the group, my former friends, like me, not even the one who appears to like me, saying this very personal issue around my story of sexual assault should have been mediated in the group and as a group—as if my experience and my trauma should be on trial and the most painful parts of my life should be made freely available to the group? Then, when in order to drive the point home about what a terrible person he thinks I am, he says, I think you’re a great writer. That opinion is somehow impersonal and won’t change. Or when he ends by saying he knows his own mind and I am welcome in it anytime I welcome that.

And that was from a friend, a dear one, who in one paragraph tried to invalidate everything I’ve ever seen or experienced and to get me to see myself as nothing, as worthless, as a monster. He reminds me of my father. He reminds me of my father’s best friend. He reminds me of Ruthie’s father and her brothers. He reminds me of Shawn Green and Greg Kullich and Jack Ladd and Matt Rawlinson and my trigonometry teacher, Steven Knight. He reminds me of my nephew. And of my old friend Jared.

The life partner says I tend to be drawn to creative people, and they tend to be drawn to me. I need more boundaries around that, clearly: who gets access to me and when and where and how. In this case, I’m at a bit of a loss. I’d been close friends with this person for years, the one who reduced me to creating demons. It feels like another example of someone being with me all the way until I talk about someone they know personally. That happened around the assault seventeen years ago as well.

Ironically, the group I created where this rift occurred was supposed to be a safe space, a place for creativity to flourish, and a place for peer support around mental-health issues. That’s something I need in my life and know others need as well. Instead, my biomarkers have been negatively affected, I feel like I was attacked when being vulnerable, I feel like my story was submerged under the weight of those who don’t want to hear it, and I feel like this last email was designed to destabilize my mood and be health- and even life-threatening. One in five is the statistic for those living with bipolar, not even bipolar coupled with trauma. Knowing my past and what I’ve survived, I can’t reconcile how this poet, this friend, would choose to do the maximum amount of harm possible, including attacking my sanity, my motives, my perceptions, and my worth as a human being.

I’m at a loss. With regard to my relationships. With regard to poetry. With regard to this country. All I can do is honor my commitment to speak out and keep speaking out about issues and injustices at all levels. I am not on this Earth to remain silent. The moment I let someone silence me is the moment I stop living.

Doffered

Meanwhile, locals are sharing a hate flag—you know the one—in Facebook comments on a news story about someone here who’s trans, including one made by arranging four pride flags in a particular way. Tell me two poets misgendering Andrea Gibson over and over at a local literary event is no big deal, especially in this larger context. Tell me I need to be more forgiving. To forget. To get over it, all of it. To at least raise my concerns quietly, privately, and with decorum and grace. Tell me I’m the problem. Tell me.

Quiet never got anyone anywhere other than silenced, gone, or dead. What others say openly will never be a secret I carry. I’m done bouldering men’s shames. They won’t go with me to my grave. Hell, I won’t even have a grave. I’ll be the dust my life partner holds to the Southern Utah wind. I’ll be southwesterly then. You can sing a song to the four elements when the time comes. Right now, there’s work to be done. Do it with me or don’t. Draw scars on the face of the world if that’s your thrust. Make hate not peace if you must. Fulfill your flimsy purpose like a lace doily under a dusty candle in an abandoned cabin in some forgotten town. Be dimity. Go forth and doffer. Tell me again why I bother.

Folding

This is the two-year anniversary of my stay at the local inpatient psychiatric hospital where the psychiatrist described me as being involved in sex trafficking, as if I was trafficking others as an adult as opposed to having been trafficked as a child. The psychiatrist also said my trauma had nothing to do with my mania, told me in so many words to be a better wife when I expressed my concerns to him about my husband’s behavior, refused to help me get services from the local organization that helps people who’ve survived sexual abuse, and wrote in my chart that I had a poor prognosis because I have no insight into having bipolar.

And he was supposed to be one of the better psychiatrists at that hospital.

This is also the day I briefly saw Utah poet laureate Lisa Bickmore and thought she was some kind of healing Earth goddess, which I still think is the case. When I’m manic, I see essences. Lisa is a lot more than a healing Earth goddess, but she also has the essence of a healing Earth goddess.

These are the final days of my hegira, the one I declared over before it was over. Over the next few days, I’ll be sitting with everything that happened two years ago in a process that’s like folding now and then together the way two ingredients are combined in baking. Not that I bake. I prefer folding time to folding things like whipped eggs and melted chocolate. When I need to eat something, I just eat it. I rarely mix it with something else.

Beating Back Blackbirds

I went to Storm the Mic tonight at Art Provides in St. George, Utah. This is the energy and community I’ve been looking for here in Southern Utah. Things finally aligned in a way that allowed me to attend. I also read three of my poems. It’s the first time I’ve done so in more than eight years.

It was important for me to read tonight. If I didn’t do it, I’d never do it. And poems can’t just live on the page. They live in us, through us, and between us. We have to give them breath. They move through our bodies by way of our lungs, our throats, our mouths.

Poems are like instruments. You can’t leave an instrument in its case or just open the case and peer inside at all that bright metal or dark wood. You have to get it out and say it/play it.

I left poetry and the poetry community eight years ago after an especially traumatizing situation that made it impossible for me to continue writing. I vowed to never write another poem. And I didn’t until I had a cancer scare last summer and started talking with some friends of mine, poets who never gave up on me, who kept loving me and checking in on me year after year. One night, after talking with one of those friends, I decided to write a poem to wind down before I went to sleep.

“Boys are beating back blackbirds. Houses hoard the sunrise. / This autumn is unmetered, a dream of wind and shovels.”

Those were the first two lines. I knew I was in trouble. Poems were still there, inside me, surrounding me, eager to be transcribed. Poems waited for me, too, all those years. When I returned, they weren’t even angry. They just flowed.

“This room. This rock. This rough sand. On my shoulder. / On my stutter. On my girl skull. On my hinges.”

Oh, I was in so much trouble. But it was good trouble. This time, poetry would be nothing in my life but good trouble. I could tell. I could feel it. I was home, again, in these words that twist and dance and break and stammer all around us all the time. I could catch them and engage in deep play, deep exploration.

Love. That’s what it is. Writing poetry is an act of love, an act of care directed inward and outward: community care and self-care. It doesn’t even matter what we write about. It’s all love, ultimately. Love is—didn’t Thich Nhat Hanh say this—the act of being alive not only within but also because of uncertainty and pain. (I’ll find the quote and update this post when I do.) The upshot is: What isn’t love? It’s all love.

“Night of deep crimes. Day of mirage ceilings. / During each, an orchestra of fire between my ears.”

Darren Edwards does an incredible job hosting Storm the Mic. I’m so thankful for him, for everyone who attended and read, and for Art Provides for letting folks use their space. They are literally providing for artists, poets, and writers when all three are so desperately needed.

Moving Mountains

Utah Senator Dan McCay, who shepherded the bill banning pride flags in Utah’s schools and government buildings through the State Senate, took to X, formerly known as Twitter, to attack the Sundance Film Festival. Here’s what he wrote:

“Bye Felicia. Sundance promotes porn. Sundance promotes alternative lifestyles. Sundance promotes anti-LDS themes.”

Sundance is considering leaving Utah, where it’s been held since its creation in 1978. The ban on pride flags could ensure Sundance’s departure from the state.

This is how Utah’s lawmakers are behaving these days, just a couple of years after cloaking their homophobia and transphobia in purported support for federal protections for same-sex marriage. They wanted to be seen as the good guys back then. Not anymore. What’s infected our government at the highest levels has infected Utah lawmakers and many of those who live in the state.

Almost three years ago, I contacted every LGBTQ+ organization and group in Utah to address the hatred and outright bigotry several Southern Utah lawmakers in places like St. George and Leeds were espousing through far-right groups with militia ties. The only organization that responded—the largest one in the state—told me they had decided not to address the issues with our lawmakers. They thought everything would blow over and wouldn’t amount to anything. They perceived themselves as the leaders of Utah’s queer community. As such, they were encouraging everyone else who was queer to stay quiet, too. Like me. I was told not to talk about what was happening.

I told them they were wrong. I’m from Oklahoma and have lived through this. I lived through the AIDS epidemic, the Reagan years, and more. I lived in Kansas and know the Koch brothers and their playbook, which was being carried out in Washington County, Utah, where I lived and across the country in rural areas with a couple of tweaks: guns and violence and, in the case of Southern Utah, with a post-Mormon hatred that was unbounded. I said what was happening in Southern Utah was going to spread to the rest of the state—and quickly. They didn’t believe me. They were Salt Lake City-centric and didn’t see the power lawmakers in Southern Utah had or understand what they were capable of.

I told them anti-trans legislation was going to hit them like a tsunami, and they had a responsibility to address what was happening before it was too late. Weeks later, they flew the director of the organization down to Ivins, a town just outside St. George. People with power and influence in the queer community were invited to a mansion to discuss what to do, how to move forward. It was a private event. Members of the queer community at large were not invited or even told it was happening. Stay quiet was pretty much what they came up with at that meeting. Several people who attended also discussed the past of one of the alt-right group leaders, which involved extremely inappropriate behavior with her female students. (She’d been a high-school teacher in the area at one point.) The group wasn’t talking about that publicly, either.

In a matter of months, nine anti-trans pieces of legislation were signed into Utah law by Utah’s Governor. More laws have been passed since then. Queer organizations have been hobbled and/or gutted. The Church of Jesus Christ of Latter-day Saints has enacted more hateful and harmful policies that target queer members and their families. Queer folks are being threatened, disowned, harmed in myriad ways, erased, and more—more than ever. And now lawmakers are telling everyone in the state what they really think, what they thought all along but didn’t feel they could say.

I’m not a seer. I didn’t see into the future. I’ve just seen all of this before. I’ve lived through it, survived it, and been shaped by it as someone who’s nonbinary and queer. I didn’t stay quiet like the queer organization told me to. I wrote two letters that The Salt Lake Tribune published, one of which discussed a column by Pat Buchanan that ran in The Daily Oklahoman on Oct. 17, 1990. It was titled “Homosexuals Mainstreaming Satanism.” I compared that piece to what was currently happening at meetings and rallies in the St. George area. I also pitched stories to local reporters and provided background material and comments on several stores. This only served to drive a bigger wedge between me and the queer community who didn’t seem to want me or my voice to exist. Ironic? Yes. It’s ironic.

Even with everything unfolding the way I said it would, only worse than I could have imagined, I’m still not welcome in Utah’s queer circles. Last fall, I attended a Zoom meeting for members of NAMI Utah to discuss changes within the organization. That meeting was comprised primarily of queer participants. They recognized my name from the pieces that ran in the Trib, and they thought I was there to glean information about the organization and report on it in The Salt Lake Tribune. I wasn’t. I attended the meeting because I’m in training to become a peer specialist here in Arizona through NAMI, because I’m a mental-health advocate who stays informed about issues that affect mental-health care in my communities, and because I live with mental-health issues and am as deserving of support as anyone else in Utah who lives with mental health issues.

The folks in the NAMI group also believed I was a journalist because they apparently don’t understand the distinction between editorial content and letters to the editor. I’m a poet and writer who’s worked as a medical writer and health advocate. I have a degree in journalism but am not working as a journalist. I certainly wouldn’t “inflitrate” a NAMI meeting. (Please.) Or use my full name in my Zoom profile if I was trying to be sneaky.

The group moderator contacted me individually after the meeting through email to admonish me for being unethical, to insinuate I was there to undermine the organization, and to ask what I planned to do with what I learned during the meeting. It was a stunningly inappropriate communication that was never properly addressed by NAMI Utah’s interim director. She passed it off to a lower-level volunteer as opposed to addressing the infraction herself as the organization’s leader. Here were my concerns, in short: You can’t use an email list your organization maintains to gather information about a member and reach out to them to ask probing accusatory questions. Doing so is discriminatory, borders on bullying and intimidation, and jeopardizes the well-being of a fellow NAMI member who’s seeking inclusion and support.

This is where I’m at in Utah. I’m an advocate whose advocacy is unwelcome and unwanted in both the queer and mental-health communities. The fear that permeates Southern Utah and drives folks to paranoia and conspiracy theories is embedded in the state as a whole, even in the very communities many Utah lawmakers want to eradicate. Queer folks and folks with mental-health issues need to learn how to stand up for themselves and each other, how to bring in and welcome outside voices and perspectives, and how to be true advocates and allies who don’t end up doing more harm than good in their respective organizations. Rolling over, fear, othering bordering on shunning, and baseless accusations aren’t going to get us anywhere, nor is silencing queer voices in the name of queer solidarity. We need to start moving mountains more than one spoonful at a time. And we certainly don’t need to be creating more and larger mountains.

Utah has work to do. We have work to do. We need to show up. My voice isn’t going anywhere, as much as I’ve been asked to remove it from the state, even by some folks in Southern Utah’s poetry community who’ve called my work inappropriate, graphic, and pornographic (just like the Sundance Film Festival, apparently). Hell, I’ve been called a pedophile several times by my neighbors up in South Jordan and later in Toquerville, where I still live part of the year. (One of Utahns’ big go-tos is calling anyone they don’t like a “pedophile,” which is sad given all the actual acts of pedophilia in the state.)

I’ve heard it all at this point. I’m surviving it all on my own, outside of any Utah-based communities focused on support and advocacy. I hope Utah can come back from what’s happening right now. I do. I feel for folks who are being crushed by all of this. But when a bulldozer’s coming, you have to warn others and get out of the way until you can dismantle that bulldozer. You’ll get nowhere if you pretend it’s not coming or throw others from your community in its path or tell them you don’t need their help. Communities who are harmed cannot harm others within their communities. That’s just a reframing of the very paradigm that caused those communities harm in the first place.

Justine Chan’s ‘Should You Lose All Reason(s)’

Should You Lose All Reason(s), by Justine Chan

I’m reading Justine Chan’s poetry collection, Should You Lose All Reason(s). It’s based on her experience of a Southern Paiute myth she told over and over when she was working as a park ranger in Zion National Park, which is just a few minutes from our Utah home. I found the collection in the Springdale, Utah, library the day Jon and I drove out that way.

Chan lives in Washington state, where we lived for about a decade. Somehow, that makes her work resonate even more deeply for me. I’ve always felt a connection between Eastern Washington and Southern Utah. Where the land is concerned, I mean. The wildlands and the wildlife and how human consciousness is informed by both in ways they might not be elsewhere.

These poems are enveloping. They’re somehow a deep dive that feels like wading slowly into a welcoming body of water. Some parts remind me of Woman and Nature by Susan Griffin. Others remind me of a pillow book, namely the poems Rebecca Lindenberg has written in that spirit.

These poems speak to place, to identity, to what it means to live in a larger, natural world—or to live away from nature. Of who we are and how we become and how we continue. The speaker, I mean. The speaker, but also all of us. Also me, as a reader. (And maybe you if you choose to read this collection.)

Chan writes this place, Southern Utah, in ways that are image- and sound-driven without sacrificing authenticity, vulnerability, or accuracy:

You will get used to never seeing the full red sun as it rises or sets. You will see peregrine falcons and turkey vultures circling overheard, but never the condors.

None of the pictures you take will be quite right. Not in focus. Or the light’s not right. Or there is just too much.

You will bask. You will burn.

The bark of the spruce on the rim will always smell sweet and fresh in between its flaky scales.

The people will forget there was ever blanket poisoning of the public lands. That there are bounties for pairs of hacked off ears. That less, to rescind, must mean more.

Most of Chan’s lines are impressively long, like someone trying to stretch their arms as wide as the mouth of a canyon. The book is actually much wider than it is long to accommodate those lines. (It’s designed to look like an oversized postcard.) Her approach is somewhat experimental: at times bivocal, at times hugging the right margin or drifting cloudlike down the page, at times interspersed with dates and facts, and frequently breaking into song. (She quotes lyrics from sixteen songs throughout the book.)

I hope folks take the time to read this collection. Because. Just because.

Because the air is so hot, full of rasping. The land so full of landmarks and stories you can’t even begin to know.

Because you feel some part of you was / is / will always be secret.

Because the crickets are madness, a roar that fades to silence / if you forget / to listen.

The House

The house has been doused with gasoline. (You’re welcome in it.) The floor of the house is littered with matches. (Take your shoes off.) The house has no fire alarms. (Have a seat.) The cops don’t respond to house fires in these parts. (Kick your feet up.) The house is on fire now. (Be a love and close the door to save the rest of us.) The house burned down. (We wrote you a loving obituary.)

The loving obituary: We adored them. For some reason, they always looked uncomfortable around us. We did everything we could to make them feel right at home. They died before their time. Sometimes, [insert adjective here] people aren’t meant for this world. We will always remember them fondly.

—

I wrote this July 12, 2023. It’s about how we treat people we want to exclude while they’re alive versus how we talk about them once they’ve died. I was thinking specifically about how queer folks and those living with trauma and/or mental health issues are treated—and the ways in which the very people who exclude those folks from their homes, lives, families, schools, workplaces, places of worship, communities, and societies take no responsibility for their eventual, often untimely, deaths. There wasn’t anything we could have done is a common refrain. Really? Nothing. Not one thing?

I was also thinking about how it felt for me to live as a queer non-Mormon person with trauma and mental health issues here in Southern Utah, where I was routinely excluded and reviled even in literary communities. The poets who run two separate chapters of the Utah State Poetry Society told me they’d close their chapters down if I ever attended them because my work was inappropriate. I was a member of the USPS at the time and had every right to attend any chapter meeting in the state. Their issue was with my gender and sexuality, not my writing, which they hadn’t read.

I’ve thought about this post a few times since the election, so I decided to share it again. We need to bring the way we talk about the dead and the way we treat the living into alignment.

The Skeleton

Two days ago, I saw what was left of an animal’s body on the side of highway 17. It was stripped all the way down to its skeleton, its bones as clean as a museum display. The curved spine is what caught my attention. This was over by the construction for the bypass road on the same shoulder where we moved the porcupine after she died.

Obviously what I’m getting at is I think it might be the skeleton of that same porcupine. I want to get a better look at it on foot before someone makes off with it. But what would I do with the skeleton? I don’t know. Move it to a better spot, I guess, someplace she can literally rest her weary bones.

I have to stop thinking about this porcupine. Someday, I will.

It was not the porcupine’s skeleton. The ribs were much too large, and from one angle, I was able to see that it was a deer who was almost entirely stripped clean save for the head.

I ended up turning around in the cemetery, where I met three cows: Curly, Friday, and Jet. I stopped to say hi. They all came over to say hi back. Jet is the only one who urinated while walking toward me. It was surprising how much Jet could urinate. Jet and Friday appear to be very close. They nuzzle their heads and lie side by side in their grassy pasture. They live with a chicken. The chicken wasn’t interested in interacting with me. I don’t even know their name.

I don’t think this is the real cemetery for Toquerville. There must be another one for the pioneers, like the one over in Silver Reef. This is a more modern cemetery. The dead in it are barely dead.

Last year, a neighbor was upset that land near the cemetery is being developed. I don’t want people in their houses looking at me when I’m dead, she said. She went door to door asking folks to sign a petition to stop the development. Now, the bypass road will be back that way, too, not just houses. Things like that are going to happen, either now or after we’re dead.

If I planned on being buried, I wouldn’t really care who was looking at me from their homes or cars. I suspect something else was going on for that neighbor: something about safety, the fear of being watched without consent, something about trauma.

My husband was great this morning when I told him I needed to drive over and see if the skeleton belonged to the porcupine. He told me to watch for cars and be safe. If it’s the porcupine’s, we’ll have to go back and retrieve it after you get off work so we can relocate it, I said. I know, he said. I’ll clean out the car.

I’m glad he understands me and will

ife and the dead and bones and burials and honor and how it all somehow relates to healing.

Neighborly

Morning Prayer October 16, 2024

I’m listening to the chickens on the other side of La Verkin Creek over in the Cholla neighborhood where people have lawns and shade trees and gardens and orchards and side-by-sides and motorcycles and religion-themed Little Free Libraries and trampolines and waterfall-edge pools and corrupt former city council members and huge parties with DJs where all the dirty words in songs are replaced with nice words and big flags and banks of photovoltaic panels and gazebos and bermed landscapes and guns that they wear all the time and men who come out of their homes and surround you and ask what are you doin’ and accuse you of looking in their windows when you’re just out birding and saying you better not be a liberal and asking you what state you’re from ’cause if it’s California, you got no place here and telling you that you can’t be on city property and pointing to the No Trespassing sign they’ve posted on the city-owned bridge that connects your neighborhood to theirs and they pretty much do whatever else they darn well please, like having chickens.

I’m clearly not a fan of Cholla, but I do love those chickens. Listen to the way they greet the day. Bu-bu-bu-bu-bu bu-CAW. Bu-bu-bu-bu-bu bu-CAW. They don’t care about Cholla. Bu-CAW. They just want to chicken. Bu-CAW. So they chicken. They chicken hard, and I get to listen to it from the relative safety of my home because their vocalizations don’t stay in Cholla. They go where they want and are received by those who need to be reminded how to live above repression, above cultural toxicity, and on their own terms.

Bu-bu-bu-bu-bu bu-CAW.

Anyhoo. For the record, I’m not from California. I’m from Oklahoma. And I’m not a liberal. I’m an outsider American Leftist who’s not a tankie. And I really was surrounded by three of Cholla’s HOA members a week after we moved here when I decided to go out birding. The city almost took the bridge away when it found out what the Cholla folks were doing to intimidate folks in our neighborhood. I wrote a letter to the city saying it was all good. I made those men chocolate-chip cookies, and they brought me a passel of pomegranates, and we smoothed everything out on our own. So the bridge remains. You’re welcome, Cholla. (You can look all this up in the Toquerville City Council Meeting Minutes from 2020, which are online. I am not even exaggerating about the city threatening to take away the bridge if residents couldn’t play nice. The whole thing was ridiculous but not inconsistent with the rest of my experience in Southern Utah.)

I got distracted. Here’s the prayer part: May we all Bu-bu-bu-bu-bu bu-CAW today. Let’s chicken. Chicken like there’s no tomorrow. Chicken for those who need to hear you chicken—maybe across a creek, maybe on the other side of the world. Chicken because chickens rock and you rock, so you really should chicken.

Weaponing Healthcare

Today, my primary care doctor opened my appointment by telling me that he believes I’m a hypochondriac. I’ve survived and/or live with multiple illnesses, including cancer. I live with more than one rare disease, including common variable immunodeficiency, which is serious and life-threatening. I have autoimmune diseases, renal insufficiency, postural orthostatic tachycardia, and arrhythmias. I’ve been treated for atrial fibrillation. I have aortic root and ascending aortic dilations. And I have PTSD and serious, life-threatening, bipolar.

All of this is documented in my medical record at Intermountain, where my primary care doctor works. It’s not in my head. It’s not me imagining health issues that don’t exist. They exist, and I’m attempting to address them. I worked as a medical writer and editor at some of the best institutions in the country for years. When I get a diagnosis or face a health challenge, I do research and have the determination to address the situation however I can.

Today, I was asking about my fasting blood glucose being over 100 for the past two years. That’s diagnostic for prediabetes, but none of my doctors brought the high results to my attention. High blood sugar seems like something I should be able to discuss without being called a hypochondriac. It’s especially important given that my chances of developing diabetes are 3 to 4 times higher because I have bipolar disorder.

I was also at the appointment to discuss my BUN level and (BUN/creatinine ratio). My BUN has doubled in the past 5 months and is above the normal range. Perhaps that’s not an issue, but given my history of renal insufficiency and the fact that lithium, which I started taking at a higher dose 5 months ago, causes kidney disease in about 26 percent of patients, the higher BUN level seems like a valid issue to raise.

Healthcare systems don’t seem to welcome the type of patient I am—one who’s female, has chronic health issues, and has a mental health diagnosis. We wait years or decades before our issues are taken seriously and addressed. By that time, we often have medical trauma because of how the healthcare system has treated us or our conditions have progressed, often irreversibly, because we were gaslit into thinking it must all be in our heads, a point our doctors belabor.

If I can’t approach my doctor for routine care, explanation of test results, or to discuss a health concern—the very things primary care providers are supposed to do with their patients—without the entire encounter being dismissed as evidence of a mental health problem, then why am I even trying so hard.

This isn’t the first time this has happened here in Southern Utah. Another doctor at Intermountain denied the fact that I had atrial fibrillation despite a preponderance of evidence that I had the condition. I was denied the medication I needed because of his insistence that I didn’t have afib. Yet another doctor at Intermountain tried to tell me my diagnosis of common variable immunodeficiency was unfounded despite the fact that I have extensive documentation of that disease from accomplished immunologists who know how to diagnose and treat immune system dysregulation.

I’m tired. I’m tired of this treatment. I’m tired of this sexism, this ableism, this dehumanization. I’m just tired. These attitudes and behaviors on the part of doctors cause unnecessary and severe iatrogenic illness for those of us who are subjected to them. I can’t carry that burden on top of my actual health and mental health issues. I’m tired.