The Insomnia Diaries

Insomnia Diary Entry One: The price I’m paying for going to bed at 9:29 p.m. last night is waking to strange dreams and observations at 1:29 a.m. this morning. As if that weren’t bad enough, my weaving room clock is four hours slow for some reason, so when I dragged myself in here to write down my strange dreams and observations, it said it was only 9:29 p.m. I feel like I slept zero minutes, not two-hundred-forty weird, totally off, minutes. What do I do now? Eat? Vomit? I hate waking up like this, being off like this. My ear wax is melting. The light from this pink Himalayan salt lamp is too bright. I think I need to hydrate.

Insomnia Diary Entry Two: Based on my symptoms, I’d say my TSH level is moving around wildly again and that it has been since I started a new dose of thyroid replacement and a new form of the medication, this time an amber liquid that burns my gums. My body no longer knows what to do, how to regulate, its TSH levels. Within a month’s time, I’ll swing from clinically hypothyroid to severely thyrotoxic. This has been happening every month for a year or so.

Heart palpitations are back. Big tears are back, rolling ones like dew drops on iris leaves in Kansas on any given spring morning. Nausea is back. Exhaustion. Word-finding issues.

I forgot my maternal grandmother’s first name two days ago. (It’s Ruth, a word I always see as red, like a ruby. Ruth, my gem of a grandmother, my red velvet cake grandmother, my faceted grandmother throwing off an eerie red light, my film noire grandmother if the lighting was black and red, not black and white. And she, Ruth, surely was all of those things. So how could I forget her name, given all the ways synesthesia allows me to vividly see it?)

I confused trammel and trample yesterday. (I didn’t just make that play on words in a post for fun. I actually forgot the difference between the words, then turned my language-related malady into a wry comment on nature and culture, or something like that. A real poor-me of a post.)

I forgot traffic (n.) and traffick (v.) both exist. I’m still not convinced they’re both real, but the dictionaries seem to think so. I’m pretty sure I’ve been leaving the “k” off the verb form for years, a startling realization that leads me to ruminate about all the other words I must be getting wrong without realizing it. It’s like my late-90s disk and disc meltdown all over again. Floppy? Frisbee? C or K? K or C?

I’m so tired of being dyslexic and having auditory processing disorder and working memory issues and attention deficits with ironic hyperfocus and rumination and neat and tidy OCD and complex PTSD and regular PTSD and other flavors of anxiety on top of my primary immunodeficiency and autoimmune diseases and arrhythmias and dysautonomia and possible kidney issues and whatever the hell is going on with iron overloading and concurrent anemia and TSH issues that come and go without explanation and that cancer I had and may still have and the edema and the asthma and whatever else I can’t even remember at this moment.

It’s a lot, folks. It’s getting old. Y’all, I just want to move around the cabin of life freely and with some assurance that I’m doing an OK job at that. Instead, I end up back by the lavatories when I think I’m heading toward the emergency exit. It’s sheer disorientation much of the time: in my mind, in my body, and at the seams where my mind and body meet the world.

I was trying to make a play on the cabin reference above by following it with the lavatories and emergency exit references, but it didn’t work. It’s too jumbled, the image too burdened. I can’t bring myself to delete the attempt, though, because my body-mind really worked hard at it and I’m so exhuasted and here come the big dewy tears and this water isn’t hydrating me at all because I’m still a walking desert and my GI tract is full of angry fists that feel like a mob is trying to punch its way out of me and I’m so awaketired, so hungrynauseated, so tinglenumb, that the cursed trinity (cabin/lavatories/emergency exit) isn’t going anywhere. It’s staying put. It’s evidence of and a testament to my dysfunction.)

All the hunger all the time and all the eating all the time without moving the needle on the scale at all are back. Parasthesias are back. Maybe some neuropathy, too, which I don’t even want to acknowledge, but the weird stabbing pains in my legs and the sudden feeling of having stepped in water when there is no water aren’t going anywhere, it seems.

Some of this is also from having dysautonomia. Some of this is from having immune system dysregulation and all the diseases and conditions that flow from that dysregulation. Not all of this is because of my TSH dysregulation, and I suspect that dysregulation isn’t a thing on its own, anyway, but instead flows from some combination of my other health issues, as well as from my trauma. Traumas, let’s be honest. It’s traumas, plural. It’s also trauma 👎 and trauma (v) if trauma can verb.* I think it can. Think: She will trauma her way through life. Think: May she trauma in peace. Maybe we should spell the verb form differently to avoid confusion, like traffic and traffick. But what would trauma look like spelled any other way? Whatever form it takes, it all looks like ruin.

* Why did Facebook turn my n in parentheses into a thumbs down? I’m too tired to fight you on that, Facebook. Have it your way. You always do. We’re all just here for your profit and pleasure, Facebook. Don’t think we don’t know that’s the case.**

**Oh, I know why. I forgot the periods after the “n” and the “v” on second reference. Fine. My bad, Facebook.

Insomnia Diary Entry Three: I think people count sheep when they can’t sleep because sheep sounds like sleep, so we’re indirectly invoking sleep by using sheep as a kind of mantra, one that allows us to sidle up to sleeping without getting sleep anxiety as we think about how we’re not sleeping.

Oh, no. That’s not it at all. Apparently, shepherds in medieval Britain had to keep a headcount of their sheep each night if they used communal grazing land, so they counted their sheep before going to sleep to ensure they were all there.

Still, I think my thing is also correct: I think sheep works because it’s a stand-in, soundwise, for the thing we’re trying to do, which is sleep.

Insomnia Diary Entry Four: I had two thoughts upon waking at 1:29 a.m. First thought: I’ve reached the age where I can no longer tell if physical exertion is building muscle or destroying muscle. Second thought: The price I pay for whatever I’m doing is having to do more of whatever I’m doing.

Insomnia Diary Entry Five: I am not dovetailed to this world. I’m glued and stapled to it.

Insomnia Diary Entry Six: When someone starts a sentence with the words I’m no conspiracy theorist, you can put money on the fact that a conspiracy theory (technically, a conspiracy hypothesis) will complete that utterance.

Insomnia Diary Entry Seven: I’m no conspiracy theorist, but I don’t trust the water here in Toquerville, Utah. On record, our water management people said at a city council meeting that they sometimes forget to check the water pumps. Then, earlier this year, one of the water pumps broke, and our irrigation water was turned off until a new pump could be ordered.

I just don’t know. You know, govnmnt and whatnot. You never can tell. Never can tell. No, sir. No, siree.

I do know that, without proper filtration, there’s one-thousand-one-hundred times the “safe” amount of arsenic in our water, and that figure isn’t hyperbolic. I looked into it. You know, inurnet and whatnot.

What I’m getting at is this: I drank all my water just now, and I needed more water. My husband and I recently bought a fancy office-level water filter thing that makes cold water, hot water, tea, and coffee. We decided to do it because govnmnt and inurnet and all that, and also because my gums were starting to burn after brushing my teeth with, you guessed it, the local water. (I see a pure D bona fide theory emerging here, not just a measly hypothesis!)

We love the new water filter thing. Just adore it. It’s like the watery baby we never had. We coo at it. We pet it. But it makes this rattling sound whenever it’s used as it pumps more water into whatever parts of the machine need water pumped to them. So I couldn’t fill my water bottle with filtered water just now or else I’d wake my husband up and he’d be all why’d you wake me up you’re ruining my sleep and I’d have no choice but to be all because my own sleep is ruined forever and always and we’re married and this is the for worse part of it which you agreed to in front of that pantheist minister in Eureka Springs Arkansas during a freak March snowstorm back in 1999 so deal with it just deal with it and rub my shoulders while you’re here and get me some filtered water too please and thank you and I love you and don’t leave me and hold me and get away from me and I’m sorry so so sorry I’m just so tired and hurt and tired. And I wouldn’t want to do that, so here I am filling myself with liquid arsenic, folks. The things a good wife does. The things a good wife does.

Insomnia Diary Entry Eight: How do I select my titles? That depends. Sometimes, I write a big thing while I have insomnia, then I look at the thing, my eyes fall to some of the words in the thing, and in my bleary state, I think, Gee whiz, those random words seem like they’d make a good title. Usually, they do. Case in point: Henceforth, the collective title of these insomnia diary entries shall be “Cabin Lavatories Emergency Exit.”

Actually, I think I’ll make the whole series into a poem. But first, I must sheep. I mean sleep. One two three four. Or arrhythmically like my heart: one two (pause) three (longer pause) four.

Insomnia Diary Entry Nine: to sheep, perchance to leme.

Insomnia Diary Epilogue: I slept. Finally. I dressed up like Liza Minnelli after we got back from Jon’s doctor’s appointment, the one about his liver, and I took a hot, stupid, mid-morning nap on top of the covers and with my little dog between my legs, her favorite place to sleep. Was it comfortable? No. I had sequins on and big flashy earrings. All the material from my jeans somehow managed to bunch up between my legs. My dog was bristly like the hairbrush my mother made me use for well over a decade, the pink one that was passed down to me after my sister left the home.

Yes, I had to use my grown sister’s hairbrush when she moved out of the house. If that doesn’t prove to you that I’m the product of Depression- and Dust Bowl-era Oklahomans, nothing will.

See, the Great Depression and the Dust Bowl made my mother frugal. I get it. I do. But seriously, who keeps a hairbrush around that long, washing it every month in the sink like it was going to the spa, rescuing it from various dogs’ mouths and returning it to my drawer covered in an ever-lengthening tactile Morse-like Code of tooth marks? (Maybe that would make it Braille-like. Who cares.)

I didn’t even know people could buy hairbrushes until I was seventeen and saw them at the store. Don’t ask how I never saw them before then. I have attention differences, and my mother probably steered me away from the expensive beauty aisles, especially after my father died and we were trying to make it on her income from the state mental hospital, where she worked as a psychiatric nurse for thirty-five years.

Anyway, at the store back in those days, I was always busy taking the empty glass Coke bottles in to get our deposit back or to buy some cigarettes — if you can even call menthol Virginia Slims that — for my mother. I never saw any hairbrushes until the day I did as a teenager and my mind was blown. I bought one on the spot. A Goodie.

I confronted my mother about the decades-long hairbrush ruse when I got home. She just shrugged or something, then probably took a sip of her vodka, then took a drag of her cigarette, and clicked the clicker to watch the news, something she loved to do because she was passionate about politics. She was a feverish democrat who was in the closet about her political opinions until my father died, then she let it all loose. She’d call all her nurse friends when anything remotely of political interest happened, like the time Reagan came to town and two kids sneaked a big protest sign into the rally.

I know the kids who did that. I wasn’t one of them, sadly. I still had a perm and claw bangs and listened to Duran Duran. I had no desire to tape parts of a sign to my body so I could smuggle them into a room full of adults, then assemble the sign once I was inside. I didn’t want to get arrested. I didn’t want to be dragged anywhere. I had Guess jeans. I had a Coach purse. I was going places in my jelly shoes.

The point is. I took a shit nap, but it was still a nap, and I’m grateful for it.

I’m still pretty violently ill. I have a five-hour training tomorrow as a substitute teacher with ESS, who recently hired me. ESS handles subs for numerous states, including Utah, New Mexico, and Oklahoma. I might be able to use ESS to claw my way out of this state. (And of course I love teaching.) I may have to reschedule the training if things continue to go the way they’re going now.

Listen, all I want is the ease my childhood hairbrush knew. I want to lie in soapy, hot water whiling away my time staring at the nicotine-stained plaster ceiling, not a thought in my bristles, not a pain in my handle. Is that too much to ask? For a little time like that?

That brush. On brush-washing day, I remember having to comb all my hair out of it as my mother ordered. I remember being told to dry it off with a towel. I remember having to position it so it could air dry in the sun streaming through the bathroom window before it went back into the drawer.

That brush was my mother’s favorite child. It’s so obvious. Coddle, coddle, love, love. Hugs and kisses, little brush.

I want this acute health situation to be about bad spinach, mild food poisoning, but the evidence — shared by me last night in the second installment in this series—suggests something more is going on, as always. Maybe if I just don’t eat between now and tomorrow’s training, I’ll be OK. This is the same approach I’ve used as a workaround in the recent past that’s contributed to my losing more and more and more weight.

Conversely, eating more and more and more when violently ill won’t result in my absorbing any calories or nutrients, as they’ll just … ahem … shoot through me like Big Bertha, the tunnel-boring machine used in Seattle’s Alaskan Way Viaduct replacement tunnel project. Except it won’t be like Big Bertha at all, because she got stuck for two years starting in 2013 and eventually had to be partially excavated for a repair to solve the issue. Trust me, nothing’s getting stuck inside me and nobody is going to cut into me to bring my body the spare parts it needs to operate properly again.

So to eat, or not to eat, that is the question. To train, or not to train. I guess there are actually two questions at this point.

On Writing, Poetry, Health, Trauma, Surviving, and Lucid Dreams

This essay was written on Twitter throughout the day on January 1, 2023.

I’m drafting a new essay here piecemeal, the way I write my notes for a story on a series of notecards, real ones, old school. That’s really all I ever do here: Write long stories in small chunks, in vignettes and aphorisms and observations. I’m doing that today.

Ginsberg didn’t have time for metaphors. I might not have the time or desire to fix my typos or to state things perfectly in this story outline. I certainly don’t have time to say things in order. That will come later. Or the narrative will remain disjunctive, which I also like.

There’s power in disjunctive narrative. Is disjunctive even what I mean? It’s not. What do I mean? I mean narrative that’s all scrambled up the way we think about our lives and stories. I mean: no imposed order other than capturing what the mind presents as quickly as I/we can.

Because we all do this. We all have minds. Our minds don’t live inside narrative. We have to learn narrative in order to survive. Narrative turns chaos into something we can respond to and live within. But today, the particular, infinitesimal part of the we doing this is me. This is my scrambled story.

Welcome to my mindfield. You have one, too. We all do.

You’re inside your mindfield right now. I’m inside mine. Don’t confuse the mindfield with a minefield. Having a mind is not the same as littering the land with weapons: the communal land; our lands that are shared but are not, and never will be, owned.

I’ll tell you the two endings to this draft essay right up front, where they belong in a scrambled story. First, this ends today. I had transient ischemia overnight, then SVT, then atrial fibrillation, then hypoxia. Diltiazem will end that until I visit Mayo next month.

Second, I had the most profound lucid dream in that hypoxic, crushed-heart state. About my trauma, of course. But also about healing. There was healing once I made the choice to leave the concrete place with the men and dance on sand with four women who’ve tried to be my mothers.

But it ends today. Once I have the diltiazem on board, along with the fludrocotisone, along with other treatments that are on the way, this will be over. What, you ask? All this trauma (re)processing. These dreams. This heart stuff. This near-death stuff. Over. And on my terms.

I’m fixing my busted heart enough for now to get back to real sleep, not the galloping, faltering sleep of the arrhythmic and heart-strained. I’m throttling my trauma (re)processing until I can do it slowly and sustainably.

That image, the one where I’m dancing on the sand with my four mothers, is where I’m landing with the trauma work for now. It’s what I’m holding onto. Because I did that. In my dream, I made the choice to leave the nightmare of concrete men. I went to my mothers in the soft sand.

[Interlude while heart recovers. Imagine soft music playing. Mill about.]

[Adding a note to clarify that I have my endocrinologist’s and interventional cardiologist’s support to take diltiazem. I’m not making that call on my own.]

I’ve been making use of a writing studio I rent from time to time. It’s ten minutes from my home, just on the other side of Flying Monkey Mesa as the locals call it because of its dreadful googlable history. I’ve been able to drive to it since I started taking fludrocortisone.

I can’t sleep at the studio because of my heart issues, but I can be here during the day. This morning, on my way here, I encountered a rockslide that the police are monitoring. Then I hydroplaned twice. It’s been raining, a lot. The rocks and roads aren’t behaving.

Depending on what happens with the rockslide, I may have no way home this afternoon. The police officer said he didn’t think things would get so bad that all the lanes would be affected. We also haven’t had this kind of rain in years, so … [shrugs] … who knows?

I want to say “of course” about the rockslide and the hydroplaning. As in: Of course, this, too, is happening on top of all the other issues and impediments in my life that are or appear to be in the way of my living right now.

But there’s no “of course” about it. That would be my mindfield imposing on the rock, on the road, and on my travels in this time and place. The natural world does not collude. And roads are just petroleum-based gloop we smear on the land. Of course roads succumb to the elements.

Earth is not people. It’s chock full of us—mostly the dead, as Nietzsche observes—but it’s not people. It’s of us, in a way, but not us. It doesn’t lie. It doesn’t conceal. It has no desire to do harm.

Earth is mostly not even of us. There’s so much in addition to and beyond us. We’re just people: a minority in the living, breathing world.

You might be ahead of me if you had an OK childhood. It’s taking me longer than it might have taken you to figure out people and their behaviors and what informs those behaviors. I’m also thinking about all of this in light of what I read by Aldo Leopold yesterday.

I’m watching rain fall from my writing studio’s eaves. It’s wearing little ruts in the decomposed granite in perfect little lines. I could align my knobby spine with the ruts and have perfect contact with the Earth—or at least with the decomposed granite lovingly spread on it.

I can’t speak to the collective mindfield other than to caution us against thinking we, together, know more than we know or are more important than we are. These thoughts feel basic, pedestrian. I feel silly sharing them.

We got into trouble when we made ourselves larger than the Earth.

My thoughts are as simple as a Yugo. I’m not a 1963 Ferrari 250 Gran Turismo Omologato thinker.

I want to talk about surviving. When my mother died, she left me a letter. Part of it read, Do whatever you need to survive. It was her last bent-tree message, her last encoded bit of wisdom, stripped bark-bare at the end of her life.

It’s what she’d been telling me all along, in words and through her example: Do whatever you need to survive. And I have. I’ve already survived, as have you if you’ve lived through trauma. Surviving is a process, not an end state. It’s not something we have to strive for.

You are here. You have survived. Your body knows how to do this and how to continue doing it, even when the seasons change, even when your heart is strained, even when new aspects of your trauma come tumbling out of your mind’s many closets.

I want to pause here and say this: Men deal with this, too. Men have power and privilege, but it’s not doled out equally, and men are asked to do so many unspeakable, nearly unsurvivable things during their lives. Everything from war to daily living is hard on men. It is.

Men survive unfathomable trauma, too. My heart is with those survivors. In the end, many of us are survivors, maybe most of us. Some of us don’t even know what we’ve survived, the enormity of it. The iceberg below the surface of it.

But when men come through great trauma and it’s paired with power and privilege, they can become dangerous in ways they wouldn’t be without that power, that privilege.

[Another interlude. My body needs me for a moment.]

[Also, Happy New Year. I’m expunging today. What are you doing?]

[I’m suddenly thinking about James Tate’s Jesus riding his little donkey. I think of that poem in moments of sudden, unexpected happiness while surrounded by what is awful. The poem pleases me in ways I can’t articulate or even comprehend. I mean, I could but I won’t. Explication is a buzzkill.]

[I’m wrecking grammar right now. I sort of love it: both grammar and the wrecking of it. Better than wrecking lives, including my own.]

[James Tate came after T.S. Eliot. Matthew doesn’t know that. Matthew thinks no poet has written significantly since Eliot. Matthew’s wrong. He was wrong in The New York Times. Writers write things down, so it’s not Matthew’s fault. Good writers can write the wrong things down.]

[The problem is the voice Matthew has, the power. Matthew is part of a larger system of power that’s a problem now and has been and will continue to be a problem.]

I’m drawing an iceberg now, an iceberg of something: behavior and what informs behavior? What we see and what we don’t see? I’m trying to figure something out.

My family and the Land Run, my family and Choctaw Nation, my family and Chickasaw Nation, my family and secret pregnancies, my family and the circus, my family and the rich husband, my family and a fancy house, my family and phonographs, my family and furs, my family and cars.

My family and suicide, my family and The Great Depression, my family and shipyards, my family and displaced Asian-American families in California, my family and racism, my family and fighting racism, my family and no farm, my family and no fancy house.

My family and being shunned, my family and learning to run, my family and fire, my family and oil, my family and power, my family and crime, my family and lies, my family and phobia, my family and rape, my family and incest, my family and trafficking.

Also, my family and surviving.

I forgot a big one: My family and the Dust Bowl. Also, my family and Freemasonry. My family and Mormonism. My family and (alleged, attempted) poisoning. My family and a gunshot to the back (at least, I think that’s how it was told to me). My family and mobile bars in GMC vans. Well, one van. One mobile bar.

[Interlude. Heart racing. I met a poet once who said she disdained any poet who feels anything while writing. That still has me stumped.]

In the dream, two men were after me. One was the devil. I was in one of those Russian-looking apartment complexes with exposed-aggregate concrete and iron rails everywhere and an open courtyard with all the apartments surrounding it, facing in.

I knew both men, but one was a shape-shifter, a self-identifying soothsayer. I never knew if he was there to help or harm. I saw the first through his window while passing by with a load of laundry. He was red, hot, everywhere in the room, and spinning like PSR J1748−2446ad.

The second caught me looking in the window. He saw me run toward the open concrete stairs leading to my apartment. He ran after me, yelling: I told you the devil was real. I told you to look to the angels. I fell, my heart arrhythmic. I clung to the rail, bleating.

I thought the second man was going to help me. Instead, he told me it was my fault. What had to happen now was on me because I didn’t feed the angels. He grabbed my ankles and dragged me, step by rough step, lower and lower. The concrete tore at my knees and shins.

I don’t want to do this, he said. He meant it. He was doing what he thought he had to do, what he was compelled to do by some imagined power. My skirt snagged on the stairs, exposing more and more of my legs, then pulled higher. I clung to the railing. I was so tired. I almost let go.

Then I did it. I said no to the dream, to the scene, to the weakness, to the surrender. To all of it. I closed my eyes. When I opened them, I was on the sand, in wildlands, no concrete in sight and no men.

Four women were with me: my mother, my mother-in-law, my dearest friend Pat Best who always said I was her daughter, and my neighbor—the one who recently tried to love me.

We stood in our respective traumas, unable to speak, tension in and between us like circus wires. Then the tension broke. We danced. For the Earth. For ourselves. For each other. For our bodies. For surviving. We danced and laughed and felt love’s malleable connective tissue.

Three of those women are dead. I love them dearly and understand them better now more than ever. It was just a dream, one I lucidly chose, but there was real healing in it. The one who’s alive can’t love me. We are tension in this life, but we are soft support in other realms.

I had four mothers: one cloth mother, and three cloth-wire mothers. It’s still four mothers. I’m lucky.

I had one motherlike monster, a skinwalker who trafficked me with her husband. I was also unlucky.

As we were dancing, one of my mothers had chest pain. She pulled out a blood pressure cuff and took a reading on her right arm. The other mothers laughed. Stop, I said. This is important. We all need to take our blood pressure readings now in both arms. Things got serious.

Our blood pressures checked out. No big differences between each arm. No heart disease. No blocked arteries. We laughed and continued to dance. I woke up.

That’s all I have to say today. The rest will have to wait. I’m staying on the sand with my four mothers, with their cloth and wire. We’re all together there, and we’re surviving. The cloth is for our bodies. The wire is what we’re using to skid over life’s glowing coals.