Ad Astra

There’s a point at which there are diminishing returns with regard to learning more about a place, a culture, a collective mindset, a community fever.

There’s a point at which it becomes time to pray with your feet. I’m at that point. I’m not an investigative journalist nor do I want to be one. I’m a creator. I want to create. As Richard Siken says, I’m just a writer. I write things down. That’s what I do and what I need to do. I need to create. I need to bring beauty to what’s awful, to what we want to look away from, to what we want to deny and suppress and ignore. But the beauty part is key. Beauty first, beauty always.

I don’t want to be pulled further into what this place is and does and isn’t and doesn’t do. I don’t want to be somewhere that takes and takes and takes everything from me, leaving no me left to love, to grow, to write, to create.

I’m leaving, come hell or high water. There, I said it. It’s time. It’s beyond time. My return to this place in March was necessary because of my health, because of my trauma, because I had issues to resolve with my husband, and because I needed to make sure I’d done all I could possibly do to be part of this community. I’ve done those things now, and I’m done.

I’m going to Oklahoma, Kansas, and Missouri in September. I’m looking at MFA programs in Oklahoma while I’m there. I’m evaluating the healthcare system, housing costs and availability, and employment opportunities. I have family in Oklahoma. My family. My people. Oklahoma, my home, my home, my home.

I’m going to need help to do this in the form of love, support, and understanding. There’s so much more trauma for me to address now after living in Utah for five years and Southern Utah for three years. I’m a strong person, but I’m now a broken person. I can come back. I know I can. I can become who I am again, who I’m losing, who I may have lost.

Tomorrow is my birthday. I’ll be fifty-two. One year ago, I was radioactive. I was sitting in a rented tiny home overlooking the Virgin River Gorge because I had to be isolated for several days. I spent hours talking to Jose Faus on the phone after watching the gorge all day. I had just started writing poetry again. I read a short piece to Jose over the phone as he fell asleep. Maybe my words put him to sleep. That’s OK. I always fall asleep reading my own writing, too. Anyone out there with insomnia might consider using my work to help them regulate their sleep.

Seven years ago, I was sitting in a hospital room in Kansas City with my husband, my legs under constant pressure and a breathing device on the table that I had to use every thirty minutes or so—the former to prevent leg clots and the latter, I think, to prevent a pulmonary embolism. I’d just had my thyroid removed to cure my autoimmune thyroiditis. They found tumors during the procedure, but the doctor assured me they wouldn’t be malignant. He came into my room all ego and narcissism and said there was only a one-percent chance the tumors would be cancerous. That’s why he went easy, left a little tissue in sensitive places. That’s why he didn’t remove the lymph nodes. Then he wished me a happy birthday. The pathology report came in a week later. It was cancer, and it hadn’t all been resected.

What will tomorrow bring? My husband and I plan to look at the stars with a telescope we’re borrowing. I plan to visit a bookstore. I plan to play with our dog, Lexi. I plan to write and write and write and read and read and read. That’s the plan. We’ll see what actually happens.

Love to those dealing with health issues, emotional issues, addictions, dependencies, and any form of pain or suffering. Love to those who’ve almost died and managed to survive. Love to those who tried to survive and didn’t manage to do so. Love to you beyond place, beyond time, beyond loss, beyond memory.

Love to you all. All of you, love.

Ad astra per aspera. PrairyErth, we are one.

It’s not Oklahoma’s fault that I was abused in Oklahoma, that I was raped in Oklahoma, that I was trafficked within and beyond Oklahoma. Humans destroy each other. Humans destroy the land. The land never destroys us. The land never trafficks us. The land never rapes us. The land never abuses us. The land never destroys itself.

I am grateful for this pain. This pain is a compass. This pain is a signal. This pain is my dearest friend, my greatest protector, my guide, my heart. This pain is everything.

Every day is a journey, and the journey itself is home. ― Matsuo Bashō

The Insomnia Diaries

Insomnia Diary Entry One: The price I’m paying for going to bed at 9:29 p.m. last night is waking to strange dreams and observations at 1:29 a.m. this morning. As if that weren’t bad enough, my weaving room clock is four hours slow for some reason, so when I dragged myself in here to write down my strange dreams and observations, it said it was only 9:29 p.m. I feel like I slept zero minutes, not two-hundred-forty weird, totally off, minutes. What do I do now? Eat? Vomit? I hate waking up like this, being off like this. My ear wax is melting. The light from this pink Himalayan salt lamp is too bright. I think I need to hydrate.

Insomnia Diary Entry Two: Based on my symptoms, I’d say my TSH level is moving around wildly again and that it has been since I started a new dose of thyroid replacement and a new form of the medication, this time an amber liquid that burns my gums. My body no longer knows what to do, how to regulate, its TSH levels. Within a month’s time, I’ll swing from clinically hypothyroid to severely thyrotoxic. This has been happening every month for a year or so.

Heart palpitations are back. Big tears are back, rolling ones like dew drops on iris leaves in Kansas on any given spring morning. Nausea is back. Exhaustion. Word-finding issues.

I forgot my maternal grandmother’s first name two days ago. (It’s Ruth, a word I always see as red, like a ruby. Ruth, my gem of a grandmother, my red velvet cake grandmother, my faceted grandmother throwing off an eerie red light, my film noire grandmother if the lighting was black and red, not black and white. And she, Ruth, surely was all of those things. So how could I forget her name, given all the ways synesthesia allows me to vividly see it?)

I confused trammel and trample yesterday. (I didn’t just make that play on words in a post for fun. I actually forgot the difference between the words, then turned my language-related malady into a wry comment on nature and culture, or something like that. A real poor-me of a post.)

I forgot traffic (n.) and traffick (v.) both exist. I’m still not convinced they’re both real, but the dictionaries seem to think so. I’m pretty sure I’ve been leaving the “k” off the verb form for years, a startling realization that leads me to ruminate about all the other words I must be getting wrong without realizing it. It’s like my late-90s disk and disc meltdown all over again. Floppy? Frisbee? C or K? K or C?

I’m so tired of being dyslexic and having auditory processing disorder and working memory issues and attention deficits with ironic hyperfocus and rumination and neat and tidy OCD and complex PTSD and regular PTSD and other flavors of anxiety on top of my primary immunodeficiency and autoimmune diseases and arrhythmias and dysautonomia and possible kidney issues and whatever the hell is going on with iron overloading and concurrent anemia and TSH issues that come and go without explanation and that cancer I had and may still have and the edema and the asthma and whatever else I can’t even remember at this moment.

It’s a lot, folks. It’s getting old. Y’all, I just want to move around the cabin of life freely and with some assurance that I’m doing an OK job at that. Instead, I end up back by the lavatories when I think I’m heading toward the emergency exit. It’s sheer disorientation much of the time: in my mind, in my body, and at the seams where my mind and body meet the world.

I was trying to make a play on the cabin reference above by following it with the lavatories and emergency exit references, but it didn’t work. It’s too jumbled, the image too burdened. I can’t bring myself to delete the attempt, though, because my body-mind really worked hard at it and I’m so exhuasted and here come the big dewy tears and this water isn’t hydrating me at all because I’m still a walking desert and my GI tract is full of angry fists that feel like a mob is trying to punch its way out of me and I’m so awaketired, so hungrynauseated, so tinglenumb, that the cursed trinity (cabin/lavatories/emergency exit) isn’t going anywhere. It’s staying put. It’s evidence of and a testament to my dysfunction.)

All the hunger all the time and all the eating all the time without moving the needle on the scale at all are back. Parasthesias are back. Maybe some neuropathy, too, which I don’t even want to acknowledge, but the weird stabbing pains in my legs and the sudden feeling of having stepped in water when there is no water aren’t going anywhere, it seems.

Some of this is also from having dysautonomia. Some of this is from having immune system dysregulation and all the diseases and conditions that flow from that dysregulation. Not all of this is because of my TSH dysregulation, and I suspect that dysregulation isn’t a thing on its own, anyway, but instead flows from some combination of my other health issues, as well as from my trauma. Traumas, let’s be honest. It’s traumas, plural. It’s also trauma 👎 and trauma (v) if trauma can verb.* I think it can. Think: She will trauma her way through life. Think: May she trauma in peace. Maybe we should spell the verb form differently to avoid confusion, like traffic and traffick. But what would trauma look like spelled any other way? Whatever form it takes, it all looks like ruin.

* Why did Facebook turn my n in parentheses into a thumbs down? I’m too tired to fight you on that, Facebook. Have it your way. You always do. We’re all just here for your profit and pleasure, Facebook. Don’t think we don’t know that’s the case.**

**Oh, I know why. I forgot the periods after the “n” and the “v” on second reference. Fine. My bad, Facebook.

Insomnia Diary Entry Three: I think people count sheep when they can’t sleep because sheep sounds like sleep, so we’re indirectly invoking sleep by using sheep as a kind of mantra, one that allows us to sidle up to sleeping without getting sleep anxiety as we think about how we’re not sleeping.

Oh, no. That’s not it at all. Apparently, shepherds in medieval Britain had to keep a headcount of their sheep each night if they used communal grazing land, so they counted their sheep before going to sleep to ensure they were all there.

Still, I think my thing is also correct: I think sheep works because it’s a stand-in, soundwise, for the thing we’re trying to do, which is sleep.

Insomnia Diary Entry Four: I had two thoughts upon waking at 1:29 a.m. First thought: I’ve reached the age where I can no longer tell if physical exertion is building muscle or destroying muscle. Second thought: The price I pay for whatever I’m doing is having to do more of whatever I’m doing.

Insomnia Diary Entry Five: I am not dovetailed to this world. I’m glued and stapled to it.

Insomnia Diary Entry Six: When someone starts a sentence with the words I’m no conspiracy theorist, you can put money on the fact that a conspiracy theory (technically, a conspiracy hypothesis) will complete that utterance.

Insomnia Diary Entry Seven: I’m no conspiracy theorist, but I don’t trust the water here in Toquerville, Utah. On record, our water management people said at a city council meeting that they sometimes forget to check the water pumps. Then, earlier this year, one of the water pumps broke, and our irrigation water was turned off until a new pump could be ordered.

I just don’t know. You know, govnmnt and whatnot. You never can tell. Never can tell. No, sir. No, siree.

I do know that, without proper filtration, there’s one-thousand-one-hundred times the “safe” amount of arsenic in our water, and that figure isn’t hyperbolic. I looked into it. You know, inurnet and whatnot.

What I’m getting at is this: I drank all my water just now, and I needed more water. My husband and I recently bought a fancy office-level water filter thing that makes cold water, hot water, tea, and coffee. We decided to do it because govnmnt and inurnet and all that, and also because my gums were starting to burn after brushing my teeth with, you guessed it, the local water. (I see a pure D bona fide theory emerging here, not just a measly hypothesis!)

We love the new water filter thing. Just adore it. It’s like the watery baby we never had. We coo at it. We pet it. But it makes this rattling sound whenever it’s used as it pumps more water into whatever parts of the machine need water pumped to them. So I couldn’t fill my water bottle with filtered water just now or else I’d wake my husband up and he’d be all why’d you wake me up you’re ruining my sleep and I’d have no choice but to be all because my own sleep is ruined forever and always and we’re married and this is the for worse part of it which you agreed to in front of that pantheist minister in Eureka Springs Arkansas during a freak March snowstorm back in 1999 so deal with it just deal with it and rub my shoulders while you’re here and get me some filtered water too please and thank you and I love you and don’t leave me and hold me and get away from me and I’m sorry so so sorry I’m just so tired and hurt and tired. And I wouldn’t want to do that, so here I am filling myself with liquid arsenic, folks. The things a good wife does. The things a good wife does.

Insomnia Diary Entry Eight: How do I select my titles? That depends. Sometimes, I write a big thing while I have insomnia, then I look at the thing, my eyes fall to some of the words in the thing, and in my bleary state, I think, Gee whiz, those random words seem like they’d make a good title. Usually, they do. Case in point: Henceforth, the collective title of these insomnia diary entries shall be “Cabin Lavatories Emergency Exit.”

Actually, I think I’ll make the whole series into a poem. But first, I must sheep. I mean sleep. One two three four. Or arrhythmically like my heart: one two (pause) three (longer pause) four.

Insomnia Diary Entry Nine: to sheep, perchance to leme.

Insomnia Diary Epilogue: I slept. Finally. I dressed up like Liza Minnelli after we got back from Jon’s doctor’s appointment, the one about his liver, and I took a hot, stupid, mid-morning nap on top of the covers and with my little dog between my legs, her favorite place to sleep. Was it comfortable? No. I had sequins on and big flashy earrings. All the material from my jeans somehow managed to bunch up between my legs. My dog was bristly like the hairbrush my mother made me use for well over a decade, the pink one that was passed down to me after my sister left the home.

Yes, I had to use my grown sister’s hairbrush when she moved out of the house. If that doesn’t prove to you that I’m the product of Depression- and Dust Bowl-era Oklahomans, nothing will.

See, the Great Depression and the Dust Bowl made my mother frugal. I get it. I do. But seriously, who keeps a hairbrush around that long, washing it every month in the sink like it was going to the spa, rescuing it from various dogs’ mouths and returning it to my drawer covered in an ever-lengthening tactile Morse-like Code of tooth marks? (Maybe that would make it Braille-like. Who cares.)

I didn’t even know people could buy hairbrushes until I was seventeen and saw them at the store. Don’t ask how I never saw them before then. I have attention differences, and my mother probably steered me away from the expensive beauty aisles, especially after my father died and we were trying to make it on her income from the state mental hospital, where she worked as a psychiatric nurse for thirty-five years.

Anyway, at the store back in those days, I was always busy taking the empty glass Coke bottles in to get our deposit back or to buy some cigarettes — if you can even call menthol Virginia Slims that — for my mother. I never saw any hairbrushes until the day I did as a teenager and my mind was blown. I bought one on the spot. A Goodie.

I confronted my mother about the decades-long hairbrush ruse when I got home. She just shrugged or something, then probably took a sip of her vodka, then took a drag of her cigarette, and clicked the clicker to watch the news, something she loved to do because she was passionate about politics. She was a feverish democrat who was in the closet about her political opinions until my father died, then she let it all loose. She’d call all her nurse friends when anything remotely of political interest happened, like the time Reagan came to town and two kids sneaked a big protest sign into the rally.

I know the kids who did that. I wasn’t one of them, sadly. I still had a perm and claw bangs and listened to Duran Duran. I had no desire to tape parts of a sign to my body so I could smuggle them into a room full of adults, then assemble the sign once I was inside. I didn’t want to get arrested. I didn’t want to be dragged anywhere. I had Guess jeans. I had a Coach purse. I was going places in my jelly shoes.

The point is. I took a shit nap, but it was still a nap, and I’m grateful for it.

I’m still pretty violently ill. I have a five-hour training tomorrow as a substitute teacher with ESS, who recently hired me. ESS handles subs for numerous states, including Utah, New Mexico, and Oklahoma. I might be able to use ESS to claw my way out of this state. (And of course I love teaching.) I may have to reschedule the training if things continue to go the way they’re going now.

Listen, all I want is the ease my childhood hairbrush knew. I want to lie in soapy, hot water whiling away my time staring at the nicotine-stained plaster ceiling, not a thought in my bristles, not a pain in my handle. Is that too much to ask? For a little time like that?

That brush. On brush-washing day, I remember having to comb all my hair out of it as my mother ordered. I remember being told to dry it off with a towel. I remember having to position it so it could air dry in the sun streaming through the bathroom window before it went back into the drawer.

That brush was my mother’s favorite child. It’s so obvious. Coddle, coddle, love, love. Hugs and kisses, little brush.

I want this acute health situation to be about bad spinach, mild food poisoning, but the evidence — shared by me last night in the second installment in this series—suggests something more is going on, as always. Maybe if I just don’t eat between now and tomorrow’s training, I’ll be OK. This is the same approach I’ve used as a workaround in the recent past that’s contributed to my losing more and more and more weight.

Conversely, eating more and more and more when violently ill won’t result in my absorbing any calories or nutrients, as they’ll just … ahem … shoot through me like Big Bertha, the tunnel-boring machine used in Seattle’s Alaskan Way Viaduct replacement tunnel project. Except it won’t be like Big Bertha at all, because she got stuck for two years starting in 2013 and eventually had to be partially excavated for a repair to solve the issue. Trust me, nothing’s getting stuck inside me and nobody is going to cut into me to bring my body the spare parts it needs to operate properly again.

So to eat, or not to eat, that is the question. To train, or not to train. I guess there are actually two questions at this point.

Truss Me

Cancer cells can hide inside other types of cells within the body, which is how cancer can evade detection and continue taking up residence inside us even after cancer treatment.

Viruses can mask themselves inside us and avoid being found for years. Hepatitis C does so using FAD, a molecule composed of Vitamin B2 and the energy carrying molecule ATP.

It only takes one B cell turning on our bodies to get all the B cells around them whipped up and make them act the same way, at least for a time. That’s how autoimmune diseases like alopecia areata happen, where an itch or some other benign thing affecting the skin turns into a bald patch that lasts for months or forever because first one, then many, B cells misinterpret the itch as a threat.

My immune system is dysregulated. In addition to having immune deficiency, I have several forms of autoimmunity. My humoral immune system doesn’t always attack invaders such as viruses and bacteria, but it does attack me, my body, routinely. Dysautonomia looks like it’s an autoimmune disease. That tracks with my immune system dysregulation and the way I’ve been developing more and more autoimmune diseases over the course of my adult life.

Many of the health issues I’ve been having over the past two years seem to be my body saying no, the way Gabor Maté discusses such phenomena in his book titled When the Body Says No. My body has been saying no since I was a child, since my trauma started, my familial sex abuse and trafficking. My body keeps saying no and is now in a rhythm of saying no, sometimes quietly and—in a pattern that starts every seven years and resolves in about a year’s time—sometimes piercingly.

I’m at the end of one of those cycles now, but my body isn’t coming back. I’m a rubber band whose elastic has failed, the kind that ultimately break after years of use. I still can’t gain the weight I lost. I’m in pain every day, sometimes extreme pain. My heart gallops and loses its pacing. It would be put down at the track. I’m struck by bouts of exhaustion that come when they please and leave when they please. My TSH absorption continues to be significantly dysregulated despite not even having a thyroid anymore.

I’m fighting, but I’m not coming back. I don’t know if I’ll return this time. The trauma I’ve experienced is severe. My health issues are alarming and serious. Complicated, my doctors say. Your health is complicated. They are somber when they speak to me. They don’t have as much hope as I do, or at least as much as I once had.

The first person Maté writes about in his book dies. She can’t come back from her health issues and ultimately succumbs to them. Cancer, I think. I’d have to look again, and I can’t bear looking. That book is hard for me to read. This life is hard for me to live.

But I want to live. I will live fully as long as I can, whatever that looks like for me and whatever that continues to look like over time.

Haters, especially local haters who think the problem in this community is me because of my gender and sexuality and because of the ways in which I talk about my trauma, especially in and through my poetry: You don’t need to keep me down or hold me back or marginalize me. Stop doing that to me and to others like me. You’re poison. We need the antidote, not more of you. You will be ashamed of yourself someday. You will wish you’d led with love, been flooded with love, exuded love. Trust me. (Dont’ truss me.)

Fight

From grade school forward, I was bullied, harassed, sexually assaulted, and raped by my classmates. The lesser infractions started when I was younger, with the exception of the CCSA I experienced at an older boy’s home where my mother had me go every day after school until she got off work. The more serious incidents occurred when I was an older student.

Things got much worse after my father died when I was thirteen. Most of my peers didn’t even know he was dead. His fatal heart attack occurred the Friday before spring break. My mother made me go to school the week after spring break ended. She didn’t like the way it would have looked for me to have taken any time off.

It was around that time that the orchestrated bullying began rather than the sporadic outbursts that had occurred earlier. It was a sport—I was a sport—for a growing group of students, even other students who were LGBTQ+, who were neuroatypical, who had serious health issues that made them the target of kids who didn’t like weakness, paleness, physical differences and the like, or who were scared, marginalized, and unpopular for other reasons. I was the most unpopular. I was everyone’s target and, for some, a ticket to greater inclusion and popularity if they could demonstrate a shared hatred of and derision for me.

In groups, my classmates would call me names, ridicule me, and more: in the school’s hallways, inside classrooms, on the bus. My neighbor across the street, a student I’d been friends with up until my father died, would even open her door and, alone or with her friends who were over, call me bitch or slut anytime she saw me in the yard or driveway.

What was I to them? Prude. A slut. Stupid. Ugly. A bitch. Slow. Retarded. Flat-chested. Boyish. Easy. Gay. (Only they didn’t use the word gay. They used words that were darker, words that catch in my throat to this day. I lived in terror of them finding evidence to back up that last claim. What would they say—what would they do—to me then?)

They were like plaque, those students, the way they gathered, the way they clumped up like something clogging an artery that would otherwise function properly. After my biology class, I’d go to my locker, which was just outside the classroom. It was a lower locker. JL, a tall, funny, wildly adored boy had the locker above mine. One day, he started ramming my face into his crotch and simulating oral sex, holding the back of my head, forcing it into his genital area over and over as he pretended to orgasm. I thought it was only going to happen once, that someone would stop it. A teacher. Other students. School officials. They didn’t. JL repeated the abuse anytime he caught me at my locker. It became a joke most of the students in that building participated in. They’d linger after class, stand in groups gawking, laughing, as he simulated rape.

Though this wasn’t my first experience with CCSA, it was my most public, on display right there in the bustling, glimmering hallway where the floor tile and walls were all paste white, chalk white, as white as the flour babies the girls in some kind of love and marriage class had to carry around to prove they’d one day be able to take care of a child.

I began leaving class early to go to my locker or lingering after the bell rang so I could switch my heavy books out after class had started. It worked for a while until JL caught on.

I went to the school counselor. She told me boys will be boys. The more I resisted what JL was doing, she said, the more he would do it. It was, in essence, my fault. What happened to me was *my* fault, not JL’s. The counselor didn’t do anything. I asked her if I could be assigned a different locker. She refused. I asked her if she could talk to him. She saw no need. JL continued to force my head into his crotch whenever he could.

I got a large backpack. I put all my books in it. The backpack was tremendously heavy, weighed down by my literature, chemistry, physics, biology, Latin, music, and other books. I’d managed to overcome my learning disabilities, which I’d been bullied for in grade school. I fought my way into language, into mathematics, into all the letters and numbers that confused and frustrated and bewildered me all through grade school and early middle school. I knew being smart was my only way out. Education was my way out. College was my way out.

I knew my classes were more important than anything. I didn’t want to end up like JW, who got pregnant and was never seen again. Or like MW, whose entire family disappeared overnight. Or like RY and KA and LL and LB, all of whom ended up addicted to drugs, some of whom were raped, and one of whom was gang raped. (I failed to avoid being raped, twice, but that’s another story.) I forced myself to learn how to read and do math with no help from anyone and without my learning disabilities being recognized. By junior high, I was in advanced classes. I wasn’t going to let JL or anyone hold me back. My backpack gave me the freedom to avoid my locker. My shoulders and back hurt from lugging it around, but at least I could be mobile and move away from any tangles of students forming in or between the school’s buildings, ready to attack me verbally, physically, sexually, or in some combination of the three.

Years later, I spoke with one of those classmates, a brilliant student named PD. She explained why she and the other students did what they did. You were unflappable, she said. No matter what we did, we could never get a response out of you. So they did more. And more. And more. It was a challenge.

They were trying to break me. They never broke me. I’m still not broken.

They didn’t know what kind of family I’d been born into, what I’d already survived in my own home. What I survived every day.

Unflappable. A challenge. The word is strong. The word is a survivor. The word is fierce. I was fierce, but the body and mind can’t take eighteen years of constant abuse from within the family, from within the school, from within the community, without repercussions. We aren’t designed to withstand that kind of treatment. But we are designed to heal. This is what healing looks like, believe it or not. Right now, it’s me at age fifty-one waking from a nightmare in which I’m a teenager being sexually assaulted poolside, writing this down, and processing these emotions and memories on my own terms all these years later, as I have for many years up until this point. It’s a Mobius strip, healing. It’s a process. There’s no clear beginning and no clear end.

It’s life. It’s the life I’ve had up to this point and the one I fight for every day. It’s the me I fight for, and the others I fight for, and the fight I continue for those I’ve known and loved who have fallen because they could no longer fight. My comrades. My kindreds. The ones who didn’t make it. It’s JW and RY and KA and LB and, most recently, KB. And it’s DG. Dana Guthrie. Dana Lynn Guthrie, the name I was born with, the name I got from my father and the parts of him that I still carry with me. He was a boy, too. Boys who’ll be boys. Men who’ll be men. Fathers who aren’t always fathers.

The birds are singing. Wake up. It’s time to wake up.

Yesterday, The Human Rights Campaign declared a state of emergency for LGBTQ+ people in the United States and released a guidebook that includes laws it deems discriminatory in each state, information about LGBTQ+ rights, and resources to help people relocate to states with stronger LGBTQ+ protections. Those who are LGBTQ+ are more likely to experience child sexual abuse, sexual assault, and rape. We can live with ongoing bullying, harassment, and discrimination all our lives, including during critical developmental years. We’re more likely to be stigmatized and marginalized, to receive less and poorer healthcare (including care that is neither trauma-informed nor LGBTQ-literate), and to receive inaccurate diagnostic labels when we seek mental health care—labels that are biased and don’t account for the relentless, systematic abuse we’ve faced and survived or that shift the blame for those experiences to us. Conversion therapy, which is legal in numerous states, may even be employed.

Anti-Trans Is Anti-Humanity

Last fall, I wrote a letter to the editor of The Salt Lake Tribune in response to several Southern Utah politicians speaking at a meeting in which LGBTQ+ folks were repeatedly called evil and satanic. Members of the community left numerous disturbing comments in response to that letter. Seventy percent of the comments were deleted by The Tribune‘s staff because they were threatening or otherwise violated the publication’s comment guidelines. I saw some of those comments before they were deleted. I’ve been terrified ever since.

Similar comments were left on stories in other publications that discussed LGBTQ+ rights, including stories I was quoted in or otherwise participated in. Those comments were also deleted, but that doesn’t change the mindset of those in our community who have the feelings they have and who threaten, defame, harass, dehumanize, and discriminate against those in the LGBTQ+ community for no reason other than the fact that we are LGBTQ+.

These community members are taking their cues from the politicians who have turned their attention to the trans community because being anti-trans is a good political strategy. It gets people whipped up in ways that catalyze people to act, often without thinking, from shadowy places that all humans possess but that don’t need to govern our lives, determine our values, inform our beliefs, or control our behaviors.

What I mean is, fear, disgust, and loathing are all being conjured but not so we can explore those feelings and work through them to gain a better understanding of their origins. Instead, they’re being exploited, and words and actions that stem from these feelings are spreading like wildfire across parched land.

Who’s being destroyed? Not just trans folks. Not just the entire LGBTQ+ community. It’s everyone. Everyone who’s been discriminated against. Everyone who doesn’t have equality. Everyone who’s made gains and is now losing ground.

And everyone who’s harming others.

When our common ground is burned, our shared humanity singed beyond recognition, we all end up having nothing.

Anti-trans legislation will most likely be one of the top agenda items for conservative politicians in 2024. We’re already seeing a wave of anti-trans legislation and anti-trans language and attitudes across the United States, as well as here in Utah. Bills and emergency rules are getting more expansive, more disturbing, and more life-threatening.

At the same time, people are making statements that are more violent, caustic, and harmful than ever.

Earlier this month, a community member in St. George, Utah, stood up and told city officials that it’s not harassment and discrimination against LGBTQ+ folks which is causing us to die by suicide because we’re all mentally ill anyway. The implication is that we can be treated however by whomever because we’re broken, defective, and disposable.

Last month, a local politician who spoke at the meeting I mentioned above shared a cartoon on social media depicting the LGBTQ+ community as being a Trojan Horse full of pedophiles. That’s not about “protecting” children, which is the line these politicians use when they propose anti-trans legislation. It’s literally an elected official characterizing every person who’s LGBTQ+ as a pedophile.

At an event last week, a fellow volunteer approached me and said that “we” are supposed to be boycotting Bud Light because the company has a transgender spokesperson. We? We who? What we? That’s not a we that includes me. That’s not a we that will ever include me. And that’s not a space where I’m welcome or safe.

Where am I welcome or safe these days? Where are any LGBTQ+ folks welcome and safe? We’re running out of spaces that are inclusive.

I was recently told that the solution is for me to conform, adapt, tolerate, or otherwise learn to live compatibly with the very same people in this community who are attacking the LGBTQ+ community, who have attacked me, and who are making it impossible for LGBTQ+ folks to feel and be safe here. I don’t know what the solution is, but that’s not it.

Pain, Uncertainty, Hard Work, and Writing

I’m wearing my Victorian chemise. I’ve been cleaning and crying and organizing my closets all day. While gently spreading a newly washed flat sheet across my bed, I thought about my dog Hayden, who died almost two years ago.

Pain, pain, pain. It came sharp and quick like needles marching up and down my body—not just losing Hayden but all the pain before and after. I think we so suddenly remember the animals we’ve lost because they allow us to enter into other painful experiences. Animals are guides, I believe, even when they’re no longer with us.

There’s been so much pain in my life, in my husband’s life, in our friends’ lives, in our families’ lives, in the neighborhoods where we’ve lived, in the cities and states we’ve called home, in public spaces, in private spaces, in our country, in the world.

Leonard Cohen spent six years meditating in silence on Mount Baldy. He finally came back because he knew he was a writer and had to write. He was writing all the time while meditating, he said.

I used to say I was a text generator, not a writer. I was rejecting agency and narrative. A fellow poet and dear friend influenced me in this regard or maybe we influenced each other. The stance was entertaining but preposterous. I’m actually a writer, not a text generator. But I had folks fooled: On Twitter, some of my followers actually thought I was a bot.

It would be easier to be a bot. It would. This world makes me bleed, and I bleed into it in turn.

When I was arranging a stack of poetry books on a high shelf this afternoon, one of them fell on my head and left a welt between my eyebrows. It’s kind of a third-eye type of thing. The offending collection was by John Donne, my favorite poet, a man whose work sets my heart beating in time with his lines. What’s that saying? Something about being hit over the head … Donne’s aim was a bit off, but close enough. Point made.

Earl Smith, a man I met once who’s dear to me said we just have to do three things: try, love, and use our gifts to help others. Phil Stutz, a Jungian analyst whose work I admire, says we will never escape the following three things: pain, hard work, and uncertainty.

That’s what I’m meditating on now, after three days of sitting with an especially painful situation. I need to try. I need to love. I need to use my gifts to help others. And I need to do those things despite pain being unavoidable, hard work being necessary and constant, and uncertainty being ever-present.

And I’m going to have to write at least some of it down. I think that’s unavoidable, too.

The Singing in My Veins

As a survivor of severe childhood trauma, I had a rule that I fastidiously observed until I was well into my twenties: Never own more than you can pack into your car. (This is why I had a futon for years as opposed to a mattress.)

Making sure everything I had could be wedged into my car allowed me to get out of any situation as quickly and as nimbly as possible. I could leave my mother’s house when she got too drunk or too sad or too cruel (or all three). I could leave my boyfriend’s six-pack apartment in Kansas City when he screamed at me moments after we’d moved in together, and he threw me out with nowhere to go. I could leave an unsafe Plaza-adjacent apartment building where men with guns surrounded me one morning in the lobby and told me how pretty I was.

I learned the fit-everything-in-a-car approach to living early in life when I ran with my best friend. She and I ran hard and fast in the day and in the night—especially in the night, in the dark, dark night. We had to run. We had to. But we also knew where to rest, where to hide, and where and how to find safety—often with each other but increasingly on our own as we grew older.

Running is an art. Running is a science. Running is a way to survive. It only looks like flailing to those who’ve never had to run to live, so kindly leave your pathologizing language and frameworks out of this, or I might be forced to say Bless your heart, my words like water moving around a stone so I can continue to speak.

I’m trying to tell you about running, about what we need to live, and about how to get what you need in a car, day or night, wherever you happen to be in the world.

By you, I mean me. By me, I mean anyone.

Once I got my first pieces of antique furniture—a dainty cast-iron bed, a 1920s English flip-top game table, and an Art Nouveau-inspired vanity—I could no longer fit my whole life in my car, but I could still fit what I needed into it.

What did I need when I came to Kansas? When I had to come here quickly because my medical situation was spiraling out of control with no hope or answers or treatment in sight in Southern Utah? When the hate and vitriol and threats against the LGBTQ+ community in general and against me in particular became its own form of disease? When my marriage desperately needed breathing room in the form of space and the clarity space can provide?

I needed the following, all of which fit neatly in my vehicle with room to spare: my books, my poetry collections, my writing notes and research, my professional portfolio, my college papers, my phone, my computer, my monitor, my mouse, my mousepad, pens, pencils, rubber fingers, a fidget spinner, one of my looms, yarn, weaving supplies, binoculars, birding guides, my flute, flute music, a music stand, baskets, a throw blanket, a dream catcher, my favorite kachina doll, my crochet mouse, my dog Hayden’s ashes, a small stereo, CDs, food, water, electrolyte drinks, clothing, coats, jewelry, gloves, shoes, an umbrella, health and beauty stuff, medications, and my medical records (ten binders organized by specialty).

Controlled flight, I call it. I deeply and unwaveringly honor what my body senses and knows long before my brain can interpret those sensings and knowings. I honor what my friend and I learned as children, as well as the way I’ve refined my running over the past half-century. I run now to what I need, when I need it. I run into the future so I can have a future. I run to my people, my land, my past—which is my present and my future all at once because there really is no time, is there?

But there is running. There’s also stopping and breathing after. There’s rest. There’s ease. There’s I made it singing in my veins. I hear it today in the rain.

I made it, my dear friend. I made it. I see you shimmering beside me. I will love you always. Let’s stop and breathe. Breathe with me. Hold my hand.

On Writing, Poetry, Health, Trauma, Surviving, and Lucid Dreams

This essay was written on Twitter throughout the day on January 1, 2023.

I’m drafting a new essay here piecemeal, the way I write my notes for a story on a series of notecards, real ones, old school. That’s really all I ever do here: Write long stories in small chunks, in vignettes and aphorisms and observations. I’m doing that today.

Ginsberg didn’t have time for metaphors. I might not have the time or desire to fix my typos or to state things perfectly in this story outline. I certainly don’t have time to say things in order. That will come later. Or the narrative will remain disjunctive, which I also like.

There’s power in disjunctive narrative. Is disjunctive even what I mean? It’s not. What do I mean? I mean narrative that’s all scrambled up the way we think about our lives and stories. I mean: no imposed order other than capturing what the mind presents as quickly as I/we can.

Because we all do this. We all have minds. Our minds don’t live inside narrative. We have to learn narrative in order to survive. Narrative turns chaos into something we can respond to and live within. But today, the particular, infinitesimal part of the we doing this is me. This is my scrambled story.

Welcome to my mindfield. You have one, too. We all do.

You’re inside your mindfield right now. I’m inside mine. Don’t confuse the mindfield with a minefield. Having a mind is not the same as littering the land with weapons: the communal land; our lands that are shared but are not, and never will be, owned.

I’ll tell you the two endings to this draft essay right up front, where they belong in a scrambled story. First, this ends today. I had transient ischemia overnight, then SVT, then atrial fibrillation, then hypoxia. Diltiazem will end that until I visit Mayo next month.

Second, I had the most profound lucid dream in that hypoxic, crushed-heart state. About my trauma, of course. But also about healing. There was healing once I made the choice to leave the concrete place with the men and dance on sand with four women who’ve tried to be my mothers.

But it ends today. Once I have the diltiazem on board, along with the fludrocotisone, along with other treatments that are on the way, this will be over. What, you ask? All this trauma (re)processing. These dreams. This heart stuff. This near-death stuff. Over. And on my terms.

I’m fixing my busted heart enough for now to get back to real sleep, not the galloping, faltering sleep of the arrhythmic and heart-strained. I’m throttling my trauma (re)processing until I can do it slowly and sustainably.

That image, the one where I’m dancing on the sand with my four mothers, is where I’m landing with the trauma work for now. It’s what I’m holding onto. Because I did that. In my dream, I made the choice to leave the nightmare of concrete men. I went to my mothers in the soft sand.

[Interlude while heart recovers. Imagine soft music playing. Mill about.]

[Adding a note to clarify that I have my endocrinologist’s and interventional cardiologist’s support to take diltiazem. I’m not making that call on my own.]

I’ve been making use of a writing studio I rent from time to time. It’s ten minutes from my home, just on the other side of Flying Monkey Mesa as the locals call it because of its dreadful googlable history. I’ve been able to drive to it since I started taking fludrocortisone.

I can’t sleep at the studio because of my heart issues, but I can be here during the day. This morning, on my way here, I encountered a rockslide that the police are monitoring. Then I hydroplaned twice. It’s been raining, a lot. The rocks and roads aren’t behaving.

Depending on what happens with the rockslide, I may have no way home this afternoon. The police officer said he didn’t think things would get so bad that all the lanes would be affected. We also haven’t had this kind of rain in years, so … [shrugs] … who knows?

I want to say “of course” about the rockslide and the hydroplaning. As in: Of course, this, too, is happening on top of all the other issues and impediments in my life that are or appear to be in the way of my living right now.

But there’s no “of course” about it. That would be my mindfield imposing on the rock, on the road, and on my travels in this time and place. The natural world does not collude. And roads are just petroleum-based gloop we smear on the land. Of course roads succumb to the elements.

Earth is not people. It’s chock full of us—mostly the dead, as Nietzsche observes—but it’s not people. It’s of us, in a way, but not us. It doesn’t lie. It doesn’t conceal. It has no desire to do harm.

Earth is mostly not even of us. There’s so much in addition to and beyond us. We’re just people: a minority in the living, breathing world.

You might be ahead of me if you had an OK childhood. It’s taking me longer than it might have taken you to figure out people and their behaviors and what informs those behaviors. I’m also thinking about all of this in light of what I read by Aldo Leopold yesterday.

I’m watching rain fall from my writing studio’s eaves. It’s wearing little ruts in the decomposed granite in perfect little lines. I could align my knobby spine with the ruts and have perfect contact with the Earth—or at least with the decomposed granite lovingly spread on it.

I can’t speak to the collective mindfield other than to caution us against thinking we, together, know more than we know or are more important than we are. These thoughts feel basic, pedestrian. I feel silly sharing them.

We got into trouble when we made ourselves larger than the Earth.

My thoughts are as simple as a Yugo. I’m not a 1963 Ferrari 250 Gran Turismo Omologato thinker.

I want to talk about surviving. When my mother died, she left me a letter. Part of it read, Do whatever you need to survive. It was her last bent-tree message, her last encoded bit of wisdom, stripped bark-bare at the end of her life.

It’s what she’d been telling me all along, in words and through her example: Do whatever you need to survive. And I have. I’ve already survived, as have you if you’ve lived through trauma. Surviving is a process, not an end state. It’s not something we have to strive for.

You are here. You have survived. Your body knows how to do this and how to continue doing it, even when the seasons change, even when your heart is strained, even when new aspects of your trauma come tumbling out of your mind’s many closets.

I want to pause here and say this: Men deal with this, too. Men have power and privilege, but it’s not doled out equally, and men are asked to do so many unspeakable, nearly unsurvivable things during their lives. Everything from war to daily living is hard on men. It is.

Men survive unfathomable trauma, too. My heart is with those survivors. In the end, many of us are survivors, maybe most of us. Some of us don’t even know what we’ve survived, the enormity of it. The iceberg below the surface of it.

But when men come through great trauma and it’s paired with power and privilege, they can become dangerous in ways they wouldn’t be without that power, that privilege.

[Another interlude. My body needs me for a moment.]

[Also, Happy New Year. I’m expunging today. What are you doing?]

[I’m suddenly thinking about James Tate’s Jesus riding his little donkey. I think of that poem in moments of sudden, unexpected happiness while surrounded by what is awful. The poem pleases me in ways I can’t articulate or even comprehend. I mean, I could but I won’t. Explication is a buzzkill.]

[I’m wrecking grammar right now. I sort of love it: both grammar and the wrecking of it. Better than wrecking lives, including my own.]

[James Tate came after T.S. Eliot. Matthew doesn’t know that. Matthew thinks no poet has written significantly since Eliot. Matthew’s wrong. He was wrong in The New York Times. Writers write things down, so it’s not Matthew’s fault. Good writers can write the wrong things down.]

[The problem is the voice Matthew has, the power. Matthew is part of a larger system of power that’s a problem now and has been and will continue to be a problem.]

I’m drawing an iceberg now, an iceberg of something: behavior and what informs behavior? What we see and what we don’t see? I’m trying to figure something out.

My family and the Land Run, my family and Choctaw Nation, my family and Chickasaw Nation, my family and secret pregnancies, my family and the circus, my family and the rich husband, my family and a fancy house, my family and phonographs, my family and furs, my family and cars.

My family and suicide, my family and The Great Depression, my family and shipyards, my family and displaced Asian-American families in California, my family and racism, my family and fighting racism, my family and no farm, my family and no fancy house.

My family and being shunned, my family and learning to run, my family and fire, my family and oil, my family and power, my family and crime, my family and lies, my family and phobia, my family and rape, my family and incest, my family and trafficking.

Also, my family and surviving.

I forgot a big one: My family and the Dust Bowl. Also, my family and Freemasonry. My family and Mormonism. My family and (alleged, attempted) poisoning. My family and a gunshot to the back (at least, I think that’s how it was told to me). My family and mobile bars in GMC vans. Well, one van. One mobile bar.

[Interlude. Heart racing. I met a poet once who said she disdained any poet who feels anything while writing. That still has me stumped.]

In the dream, two men were after me. One was the devil. I was in one of those Russian-looking apartment complexes with exposed-aggregate concrete and iron rails everywhere and an open courtyard with all the apartments surrounding it, facing in.

I knew both men, but one was a shape-shifter, a self-identifying soothsayer. I never knew if he was there to help or harm. I saw the first through his window while passing by with a load of laundry. He was red, hot, everywhere in the room, and spinning like PSR J1748−2446ad.

The second caught me looking in the window. He saw me run toward the open concrete stairs leading to my apartment. He ran after me, yelling: I told you the devil was real. I told you to look to the angels. I fell, my heart arrhythmic. I clung to the rail, bleating.

I thought the second man was going to help me. Instead, he told me it was my fault. What had to happen now was on me because I didn’t feed the angels. He grabbed my ankles and dragged me, step by rough step, lower and lower. The concrete tore at my knees and shins.

I don’t want to do this, he said. He meant it. He was doing what he thought he had to do, what he was compelled to do by some imagined power. My skirt snagged on the stairs, exposing more and more of my legs, then pulled higher. I clung to the railing. I was so tired. I almost let go.

Then I did it. I said no to the dream, to the scene, to the weakness, to the surrender. To all of it. I closed my eyes. When I opened them, I was on the sand, in wildlands, no concrete in sight and no men.

Four women were with me: my mother, my mother-in-law, my dearest friend Pat Best who always said I was her daughter, and my neighbor—the one who recently tried to love me.

We stood in our respective traumas, unable to speak, tension in and between us like circus wires. Then the tension broke. We danced. For the Earth. For ourselves. For each other. For our bodies. For surviving. We danced and laughed and felt love’s malleable connective tissue.

Three of those women are dead. I love them dearly and understand them better now more than ever. It was just a dream, one I lucidly chose, but there was real healing in it. The one who’s alive can’t love me. We are tension in this life, but we are soft support in other realms.

I had four mothers: one cloth mother, and three cloth-wire mothers. It’s still four mothers. I’m lucky.

I had one motherlike monster, a skinwalker who trafficked me with her husband. I was also unlucky.

As we were dancing, one of my mothers had chest pain. She pulled out a blood pressure cuff and took a reading on her right arm. The other mothers laughed. Stop, I said. This is important. We all need to take our blood pressure readings now in both arms. Things got serious.

Our blood pressures checked out. No big differences between each arm. No heart disease. No blocked arteries. We laughed and continued to dance. I woke up.

That’s all I have to say today. The rest will have to wait. I’m staying on the sand with my four mothers, with their cloth and wire. We’re all together there, and we’re surviving. The cloth is for our bodies. The wire is what we’re using to skid over life’s glowing coals.

Matthew

Matthew, this would have happened with any first poem you got your hands on: repeating lines mantralike. Any good poem could have been that for you. That’s how poems work and how we move through what Hazard Adams calls the offense of poetry.

Matthew, all poems have an incantatory power.

Matthew, Eliot had some issues. Big ones. Pound, who you also mention, too. Maybe you address that in your essay. I’m just responding as I read the piece. Let’s see if you factor those issues into why there might not be great fanfare right now for great work.

Matthew, we don’t even know if there will be a one-hundred years from now let alone what poetry will or will not be celebrated at that time. Do you have tea leaves we can’t see? A divining rod? A hat with a rock in it?

Matthew, you’re etherizing your own essay on the table now. I can barely read this. I have a bad heart. Your words are making it clomp and stomp.

We stopped writing good poetry because we are now incapable of doing so. Matthew, I’m going to have to ask you to vacate your essay now. Please. There’s still time for you to not complete it, to not publish it, to save … oh, wait, you’ve already published it.

The culprit is not bad pedagogy or formal experimentation but rather the very conditions of modern life, which have demystified and alienated us from the natural world. Matthew, this is deranged. There are so many rural places. I live in one and am surrounded by them. Travel.

Permit me, by way of argument, a medium-size quotation. Matthew, this is your freaking article, in The New York Times. You know you don’t need our permission to include your little medium-sized quotation in your essay. And it is sized, not size. At least for us Gen X editors.

Matthew, my eyes are glazing over at your essay, not poetry. It’s not your fault I have POTS, but your words are literally inducing presyncope. And I use literally the way any good Gen Xer would: to emphasize something literal while expressing my annoyance at having to do so.

Matthew, I do like Milton.

Matthew, does science disenchant? Does technology deaden? That’s not been my experience of either. Did the stove and the kitchen sink wreck the blues? Or were they folded into lyric and life alike?

Matthew, why do you think poets of all people can’t see the world as anything other than an undifferentiated mass of resources to be either exploited or preserved? Make your case, or do you think you’re doing so in this essay?

Matthew, yes. Poets can draw from everything. Everything! That’s not bad. What do you … why … what’s really bothering you, Matthew?

Matthew, I like some of these paragraphs you wrote about Eliot and LSJAP.

Matthew, I don’t know that Eliot is an end-of-tracks poet. I just don’t buy that.

Matthew, I see that you’re about to reference Slavoj Žižek. Please don’t. I beg you.

Matthew, Žižek also plagiarized ideas. You know that, right? And frankly, others have also said that thing you say he said. It’s also not a very interesting thing to say. I prefer Fritjof Capra on similar matters.

Matthew, I feel like you’re upset at the internet, not poetry. Am I getting close? Can we go then?

Matthew, I need to do some shit now like ignoring men like you. One of you, your ilk, tried to destroy me years ago. By one I mean many. It didn’t work. I’m here on behalf of muses, of mystery, of wonder, and of words you might not know. Time for me to mutter, retreat.

One more thing, Matthew. The problem is content. The shift to content. That happens on the internet but is not of the internet. It’s just shit that’s happening, mostly on social media and driven by forces you didn’t even manage to allude to. Unless you did and I nodded off.

Hey, what’s your last name again, Matthew?