Demons

Was I creating demons when I was at a poetry dinner party in Kansas City with Carolyn Kizer, and the entire group attempted to elide over her comments when she talked about another well-known poet attempting to rape her?

Was I creating demons when a member of my poetry class in Kansas City started stalking me, leaving flowers, torn-up copies of my poems, and letters about how bad and offensive my writing was on my windshield?

Was I creating demons when a poet and publisher in Kansas City screamed in front of a large group of poets, including my best friend, that I wanted to fuck him behind a dumpster?

Was I creating demons when a poet in Seattle who had agreed to work with me on my poetry googled (from his IP address) the words married and naked in combination with my name before we met? When he then canceled the appointment, told me I was childish for writing cut-up poems, and said I was wasting his time. When he also created a fake blog username and trolled me on my site (again, from his IP address) for months, trashing everything I wrote, including my poems.

Was I creating demons when two other Southern Utah poets said my work was pornographic and I should find another state that would accept it, while refusing to let me join their two state poetry society chapters and telling me they’d stopped meeting when they hadn’t?

Was I creating demons when a poet who’d been following my work for months and said he wanted to publish some of my poems left a hostile, sanist comment on one of my microessays in which I was lamenting the fact that people are jumping from a bridge down the street? When he screamed that my writing was the last thing he needed in his life, as if he hadn’t followed me and chosen to read, and laud, my work up to that point. As if he didn’t have the power to stop reading what I wrote or unfriend me or mute me or any of a suite of well-adjusted options that were available to him. That poet later disappeared during a mental-health crisis. When I was asked to help, I skip-traced him to his brother’s house, and he was eventually found safe. Because that’s who I am. Not someone who creates demons or treats people like demons. I’m a person who helps people when they need help, no matter how they’ve treated me.

Was I creating demons when a poet asked to read one of my manuscripts, then replied that he was sorry he’d even asked to read it? When he then rewrote part of it the way he’d like to see it, infantilized me and my work, assumed the speaker was me, treated the work not as work but as the opportunity to intervene in my personal life and my past, and talked about me in extremely sexist ways. When I responded and he continued the attack and infantilization, using my own work against me by calling me a little fist of a girl, a line from one of my poems. When he continued to move between unwanted intimacy, flirtation, and attacks in successive emails, even after I asked him to stop communicating with me. Or when my life partner had to intervene to make him observe my boundary.

Was I creating demons when a poet I’d known for more than twenty years threatened me here on Facebook, publicly in front of the entire poetry community, saying I was committing both a transgression and a manipulation when I told him I loved him, platonically, as a friend, something my context made clear? Was I creating a demon when he did similar things to other women and female-bodied poets.

Was I creating demons when a poet messaged me about a gay Arab who had gotten ahold of a photo of him in bed without his shirt on and how upsetting that was for him and who then sent me that photo through DM so I could see what he was so upset about? Or when that same poet viciously attacked a woman who was experiencing psychosis and got a group of poets to gang up on and attack her, which could have put her life in danger. Or when he refused to take his public post about her down so she could get some help without being pushed further into a dangerous or life-threatening situation. Or when he later told me I was borrowing the term CPTSD and wielding the label sanism, implying I don’t live with the former like he does as a war veteran and therefore have no right to identify and address the latter. By the way, I helped that woman, too. I reached out to her directly and got her a welfare check. If I’d been in the same part of the county as her, I would have been there for her in person. That’s a lot better than telling her she’s a terrible person and getting at least a dozen other poets to do the same.

Was I creating a demon when my poetry mentor breached my trust seventeen years ago with his words and his body and his insistence and his intrusion? When he made me talk about the ways in which my father abused me and became aroused when I did so. While he had me pinned down with his body. While he talked real nice, real childlike. While he continued despite no and stop and no and no and no. That was not a demon. That was a man. And a poet. A beloved one at that. I didn’t create that man any more than I create demons.

More recently, was I creating demons when a poet told me my comment about mentors not taking advantage of their students, which stems from my own experience, didn’t need to be said because it was already implied in the statement that students shouldn’t sleep with their mentors? That, in other words, we should all just be following the programming we’ve been given, which is to place responsibility on victims for not being or becoming victims. Look at my paragraph above. What part of that looks like a mentor trying to sleep with me? What part of that could I have avoided under the circumstances? Was I creating demons when that poet interrupted me in front of a group of poets to make his assertion? How about when he turned my gender into a joke and literally wanted to tell it as a joke on his joke podcast. How about when he asked how my life partner felt about my having sex with whoever I wanted and continuing to ask me that inappropriate bullshit question even as I kept repeating the word asexual, emphasizing the first syllable in the hope he’d understand not only his error but the violation intrinsic in his question. Is that evidence of my demon-making. (Note to everyone: Just because someone uses language for their gender and sexuality doesn’t make it your right to ask personal questions about either, especially not when first meeting them.)

Was I creating a demon when a friend of the poet in the paragraph above, one who’d been supportive of me, my work, and everything I’ve discussed about poets and poetry—up until it involved someone he personally knows—sent me a message in response to my asking not to be invalidated in which he says I am marshaling evidence, finding demons, distracting from real communication, seeing a glitch as a serious issue—thereby invalidating my concern about that issue—calling me a wrecking ball, making it clear none of the poets in the group, my former friends, like me, not even the one who appears to like me, saying this very personal issue around my story of sexual assault should have been mediated in the group and as a group—as if my experience and my trauma should be on trial and the most painful parts of my life should be made freely available to the group? Then, when in order to drive the point home about what a terrible person he thinks I am, he says, I think you’re a great writer. That opinion is somehow impersonal and won’t change. Or when he ends by saying he knows his own mind and I am welcome in it anytime I welcome that.

And that was from a friend, a dear one, who in one paragraph tried to invalidate everything I’ve ever seen or experienced and to get me to see myself as nothing, as worthless, as a monster. He reminds me of my father. He reminds me of my father’s best friend. He reminds me of Ruthie’s father and her brothers. He reminds me of Shawn Green and Greg Kullich and Jack Ladd and Matt Rawlinson and my trigonometry teacher, Steven Knight. He reminds me of my nephew. And of my old friend Jared.

The life partner says I tend to be drawn to creative people, and they tend to be drawn to me. I need more boundaries around that, clearly: who gets access to me and when and where and how. In this case, I’m at a bit of a loss. I’d been close friends with this person for years, the one who reduced me to creating demons. It feels like another example of someone being with me all the way until I talk about someone they know personally. That happened around the assault seventeen years ago as well.

Ironically, the group I created where this rift occurred was supposed to be a safe space, a place for creativity to flourish, and a place for peer support around mental-health issues. That’s something I need in my life and know others need as well. Instead, my biomarkers have been negatively affected, I feel like I was attacked when being vulnerable, I feel like my story was submerged under the weight of those who don’t want to hear it, and I feel like this last email was designed to destabilize my mood and be health- and even life-threatening. One in five is the statistic for those living with bipolar, not even bipolar coupled with trauma. Knowing my past and what I’ve survived, I can’t reconcile how this poet, this friend, would choose to do the maximum amount of harm possible, including attacking my sanity, my motives, my perceptions, and my worth as a human being.

I’m at a loss. With regard to my relationships. With regard to poetry. With regard to this country. All I can do is honor my commitment to speak out and keep speaking out about issues and injustices at all levels. I am not on this Earth to remain silent. The moment I let someone silence me is the moment I stop living.

The Fog

Writing used to be my way of working through things in order to discover beauty, complexity, and meaning, as well as what escapes meaning, to feel those textures and colors the body and mind together send to the surface like koi in a pond waiting to be fed. All those little mouths mouthing at once. All those fat bodies and watery fins. So much movement but not without pattern, like music.

Writing used to be my music, its notes distributed like lilypads the bodymind somehow reads through touch, for that’s what language is. Something we touch, not something we see. Something we touch and hear.

I worked hard to learn how to write despite my dyslexia. To write, to read, to understand. I wanted into that world because of what poems could do.

              The fog comes
              on little cat feet.

If fog could be a cat, I could be anything in language, not what I was in my home. I didn’t have to be that child or a child at all. I could be something that made sense or was so far beyond sense that sense wouldn’t matter anymore. I wanted to do that with language, to unlock its magic. It took decades, but I did. I think I did.

I’ve come to identify with being a poet and writer, with sitting down at my desk and writing every day. I told people poetry was everywhere, always, like a faucet you can just open up and there it is.

I don’t feel like that anymore. I open the tap and there’s nothing. People are cruel. I’ve encountered more cruelty in the past three years, which is when I started writing again, than in the other twenty years of writing combined, with the exception of some awful things that went down in the poetry community in 2015. I’ve been personally threatened, accused of appropriating the term CPTSD (as if my trauma isn’t real), attacked both for not really being neuroatypical (based on how I appear) and for using the neurotype framework, told nobody should listen to me because I have bipolar, that I’m morally unclean, that my writing is doing harm, and more.

That’s on top of the more general comments people have made in response to my writing: things like everyone who has a mental-health label should be round up and forcibly removed from Utah or queer people are evil and satanic.

               It sits looking
              over harbor and city

These comments are like gargoyles draining the life from my writing and from me as a person. They go well beyond discourse. They’re attacks. They’re erasures. They’re discriminatory. They’re scary.

They’re what passes for engagement these days. We’re all seeing comments like this day in and day out, especially on social media. Some of us are participating in it in our own ways. Most if not all of us are negatively affected by it. Even outlets that are designed to give us a voice can end up sending us to slaughter with every piece of ours they publish. For civil discourse? For freedom of speech? Or for clicks, shares, page views, and increased reach? If an outlet wants to keep you angry at those who also trying to speak to the larger issues in our culture, our country, and our communities rather than catalyzing you to also speak and act in response to those larger issues in your own way, ask yourself what that outlet’s motives are and what effect the infighting it generates has on anyone’s ability to advocate for anything—or even to survive what’s become increasingly difficult to survive.

How is a writer who, for years, wrote for some of the largest medical organizations and research universities in the country, as well as an esteemed consortium comprised of the top medical and research centers, in this position? Who’s routinely had work in competitive literary journals and with well-regarded indy presses? Some of this is coming from social media and website comment threads and is in response to my essays and opinion pieces. Some of it’s happening with friends on Facebook, namely people who read my work and then project things onto me so that, when I am not what they think I am or what they want me to be to them, they can and sometimes do become irate, belittling me and my poetry.

This is how things are now. And they’re going to get worse. But I don’t have to keep saying OK to it. I’ve already started saying none of this is OK. Now, I’m grieving on many levels—what poetry and writing can and can’t be, what kinds of audiences it can and can’t have, what the writing community and our communities in general are and aren’t—and I’m waiting for the faucet to flow again. That may be the only faith I have left in me. I believe I can find my way back to poetry, and poetry can find its way back to me. I have to believe this to survive.

              on silent haunches
              and then moves on.

May the fog that obscures poetry move on. May the fog that keeps us from seeing each other move on. May the fog that blankets our entire country move on. Let it move on. Let it move on.

I appreciate my friends on Facebook who feel their way through the world using language and take the time to communicate thoughtfully. You are the antithesis to much of what passes for communication these days.

The poem used in this essay is “The Fog,” by Carl Sandburg. It is in the public domain.

The Insomnia Diaries

Insomnia Diary Entry One: The price I’m paying for going to bed at 9:29 p.m. last night is waking to strange dreams and observations at 1:29 a.m. this morning. As if that weren’t bad enough, my weaving room clock is four hours slow for some reason, so when I dragged myself in here to write down my strange dreams and observations, it said it was only 9:29 p.m. I feel like I slept zero minutes, not two-hundred-forty weird, totally off, minutes. What do I do now? Eat? Vomit? I hate waking up like this, being off like this. My ear wax is melting. The light from this pink Himalayan salt lamp is too bright. I think I need to hydrate.

Insomnia Diary Entry Two: Based on my symptoms, I’d say my TSH level is moving around wildly again and that it has been since I started a new dose of thyroid replacement and a new form of the medication, this time an amber liquid that burns my gums. My body no longer knows what to do, how to regulate, its TSH levels. Within a month’s time, I’ll swing from clinically hypothyroid to severely thyrotoxic. This has been happening every month for a year or so.

Heart palpitations are back. Big tears are back, rolling ones like dew drops on iris leaves in Kansas on any given spring morning. Nausea is back. Exhaustion. Word-finding issues.

I forgot my maternal grandmother’s first name two days ago. (It’s Ruth, a word I always see as red, like a ruby. Ruth, my gem of a grandmother, my red velvet cake grandmother, my faceted grandmother throwing off an eerie red light, my film noire grandmother if the lighting was black and red, not black and white. And she, Ruth, surely was all of those things. So how could I forget her name, given all the ways synesthesia allows me to vividly see it?)

I confused trammel and trample yesterday. (I didn’t just make that play on words in a post for fun. I actually forgot the difference between the words, then turned my language-related malady into a wry comment on nature and culture, or something like that. A real poor-me of a post.)

I forgot traffic (n.) and traffick (v.) both exist. I’m still not convinced they’re both real, but the dictionaries seem to think so. I’m pretty sure I’ve been leaving the “k” off the verb form for years, a startling realization that leads me to ruminate about all the other words I must be getting wrong without realizing it. It’s like my late-90s disk and disc meltdown all over again. Floppy? Frisbee? C or K? K or C?

I’m so tired of being dyslexic and having auditory processing disorder and working memory issues and attention deficits with ironic hyperfocus and rumination and neat and tidy OCD and complex PTSD and regular PTSD and other flavors of anxiety on top of my primary immunodeficiency and autoimmune diseases and arrhythmias and dysautonomia and possible kidney issues and whatever the hell is going on with iron overloading and concurrent anemia and TSH issues that come and go without explanation and that cancer I had and may still have and the edema and the asthma and whatever else I can’t even remember at this moment.

It’s a lot, folks. It’s getting old. Y’all, I just want to move around the cabin of life freely and with some assurance that I’m doing an OK job at that. Instead, I end up back by the lavatories when I think I’m heading toward the emergency exit. It’s sheer disorientation much of the time: in my mind, in my body, and at the seams where my mind and body meet the world.

I was trying to make a play on the cabin reference above by following it with the lavatories and emergency exit references, but it didn’t work. It’s too jumbled, the image too burdened. I can’t bring myself to delete the attempt, though, because my body-mind really worked hard at it and I’m so exhuasted and here come the big dewy tears and this water isn’t hydrating me at all because I’m still a walking desert and my GI tract is full of angry fists that feel like a mob is trying to punch its way out of me and I’m so awaketired, so hungrynauseated, so tinglenumb, that the cursed trinity (cabin/lavatories/emergency exit) isn’t going anywhere. It’s staying put. It’s evidence of and a testament to my dysfunction.)

All the hunger all the time and all the eating all the time without moving the needle on the scale at all are back. Parasthesias are back. Maybe some neuropathy, too, which I don’t even want to acknowledge, but the weird stabbing pains in my legs and the sudden feeling of having stepped in water when there is no water aren’t going anywhere, it seems.

Some of this is also from having dysautonomia. Some of this is from having immune system dysregulation and all the diseases and conditions that flow from that dysregulation. Not all of this is because of my TSH dysregulation, and I suspect that dysregulation isn’t a thing on its own, anyway, but instead flows from some combination of my other health issues, as well as from my trauma. Traumas, let’s be honest. It’s traumas, plural. It’s also trauma 👎 and trauma (v) if trauma can verb.* I think it can. Think: She will trauma her way through life. Think: May she trauma in peace. Maybe we should spell the verb form differently to avoid confusion, like traffic and traffick. But what would trauma look like spelled any other way? Whatever form it takes, it all looks like ruin.

* Why did Facebook turn my n in parentheses into a thumbs down? I’m too tired to fight you on that, Facebook. Have it your way. You always do. We’re all just here for your profit and pleasure, Facebook. Don’t think we don’t know that’s the case.**

**Oh, I know why. I forgot the periods after the “n” and the “v” on second reference. Fine. My bad, Facebook.

Insomnia Diary Entry Three: I think people count sheep when they can’t sleep because sheep sounds like sleep, so we’re indirectly invoking sleep by using sheep as a kind of mantra, one that allows us to sidle up to sleeping without getting sleep anxiety as we think about how we’re not sleeping.

Oh, no. That’s not it at all. Apparently, shepherds in medieval Britain had to keep a headcount of their sheep each night if they used communal grazing land, so they counted their sheep before going to sleep to ensure they were all there.

Still, I think my thing is also correct: I think sheep works because it’s a stand-in, soundwise, for the thing we’re trying to do, which is sleep.

Insomnia Diary Entry Four: I had two thoughts upon waking at 1:29 a.m. First thought: I’ve reached the age where I can no longer tell if physical exertion is building muscle or destroying muscle. Second thought: The price I pay for whatever I’m doing is having to do more of whatever I’m doing.

Insomnia Diary Entry Five: I am not dovetailed to this world. I’m glued and stapled to it.

Insomnia Diary Entry Six: When someone starts a sentence with the words I’m no conspiracy theorist, you can put money on the fact that a conspiracy theory (technically, a conspiracy hypothesis) will complete that utterance.

Insomnia Diary Entry Seven: I’m no conspiracy theorist, but I don’t trust the water here in Toquerville, Utah. On record, our water management people said at a city council meeting that they sometimes forget to check the water pumps. Then, earlier this year, one of the water pumps broke, and our irrigation water was turned off until a new pump could be ordered.

I just don’t know. You know, govnmnt and whatnot. You never can tell. Never can tell. No, sir. No, siree.

I do know that, without proper filtration, there’s one-thousand-one-hundred times the “safe” amount of arsenic in our water, and that figure isn’t hyperbolic. I looked into it. You know, inurnet and whatnot.

What I’m getting at is this: I drank all my water just now, and I needed more water. My husband and I recently bought a fancy office-level water filter thing that makes cold water, hot water, tea, and coffee. We decided to do it because govnmnt and inurnet and all that, and also because my gums were starting to burn after brushing my teeth with, you guessed it, the local water. (I see a pure D bona fide theory emerging here, not just a measly hypothesis!)

We love the new water filter thing. Just adore it. It’s like the watery baby we never had. We coo at it. We pet it. But it makes this rattling sound whenever it’s used as it pumps more water into whatever parts of the machine need water pumped to them. So I couldn’t fill my water bottle with filtered water just now or else I’d wake my husband up and he’d be all why’d you wake me up you’re ruining my sleep and I’d have no choice but to be all because my own sleep is ruined forever and always and we’re married and this is the for worse part of it which you agreed to in front of that pantheist minister in Eureka Springs Arkansas during a freak March snowstorm back in 1999 so deal with it just deal with it and rub my shoulders while you’re here and get me some filtered water too please and thank you and I love you and don’t leave me and hold me and get away from me and I’m sorry so so sorry I’m just so tired and hurt and tired. And I wouldn’t want to do that, so here I am filling myself with liquid arsenic, folks. The things a good wife does. The things a good wife does.

Insomnia Diary Entry Eight: How do I select my titles? That depends. Sometimes, I write a big thing while I have insomnia, then I look at the thing, my eyes fall to some of the words in the thing, and in my bleary state, I think, Gee whiz, those random words seem like they’d make a good title. Usually, they do. Case in point: Henceforth, the collective title of these insomnia diary entries shall be “Cabin Lavatories Emergency Exit.”

Actually, I think I’ll make the whole series into a poem. But first, I must sheep. I mean sleep. One two three four. Or arrhythmically like my heart: one two (pause) three (longer pause) four.

Insomnia Diary Entry Nine: to sheep, perchance to leme.

Insomnia Diary Epilogue: I slept. Finally. I dressed up like Liza Minnelli after we got back from Jon’s doctor’s appointment, the one about his liver, and I took a hot, stupid, mid-morning nap on top of the covers and with my little dog between my legs, her favorite place to sleep. Was it comfortable? No. I had sequins on and big flashy earrings. All the material from my jeans somehow managed to bunch up between my legs. My dog was bristly like the hairbrush my mother made me use for well over a decade, the pink one that was passed down to me after my sister left the home.

Yes, I had to use my grown sister’s hairbrush when she moved out of the house. If that doesn’t prove to you that I’m the product of Depression- and Dust Bowl-era Oklahomans, nothing will.

See, the Great Depression and the Dust Bowl made my mother frugal. I get it. I do. But seriously, who keeps a hairbrush around that long, washing it every month in the sink like it was going to the spa, rescuing it from various dogs’ mouths and returning it to my drawer covered in an ever-lengthening tactile Morse-like Code of tooth marks? (Maybe that would make it Braille-like. Who cares.)

I didn’t even know people could buy hairbrushes until I was seventeen and saw them at the store. Don’t ask how I never saw them before then. I have attention differences, and my mother probably steered me away from the expensive beauty aisles, especially after my father died and we were trying to make it on her income from the state mental hospital, where she worked as a psychiatric nurse for thirty-five years.

Anyway, at the store back in those days, I was always busy taking the empty glass Coke bottles in to get our deposit back or to buy some cigarettes — if you can even call menthol Virginia Slims that — for my mother. I never saw any hairbrushes until the day I did as a teenager and my mind was blown. I bought one on the spot. A Goodie.

I confronted my mother about the decades-long hairbrush ruse when I got home. She just shrugged or something, then probably took a sip of her vodka, then took a drag of her cigarette, and clicked the clicker to watch the news, something she loved to do because she was passionate about politics. She was a feverish democrat who was in the closet about her political opinions until my father died, then she let it all loose. She’d call all her nurse friends when anything remotely of political interest happened, like the time Reagan came to town and two kids sneaked a big protest sign into the rally.

I know the kids who did that. I wasn’t one of them, sadly. I still had a perm and claw bangs and listened to Duran Duran. I had no desire to tape parts of a sign to my body so I could smuggle them into a room full of adults, then assemble the sign once I was inside. I didn’t want to get arrested. I didn’t want to be dragged anywhere. I had Guess jeans. I had a Coach purse. I was going places in my jelly shoes.

The point is. I took a shit nap, but it was still a nap, and I’m grateful for it.

I’m still pretty violently ill. I have a five-hour training tomorrow as a substitute teacher with ESS, who recently hired me. ESS handles subs for numerous states, including Utah, New Mexico, and Oklahoma. I might be able to use ESS to claw my way out of this state. (And of course I love teaching.) I may have to reschedule the training if things continue to go the way they’re going now.

Listen, all I want is the ease my childhood hairbrush knew. I want to lie in soapy, hot water whiling away my time staring at the nicotine-stained plaster ceiling, not a thought in my bristles, not a pain in my handle. Is that too much to ask? For a little time like that?

That brush. On brush-washing day, I remember having to comb all my hair out of it as my mother ordered. I remember being told to dry it off with a towel. I remember having to position it so it could air dry in the sun streaming through the bathroom window before it went back into the drawer.

That brush was my mother’s favorite child. It’s so obvious. Coddle, coddle, love, love. Hugs and kisses, little brush.

I want this acute health situation to be about bad spinach, mild food poisoning, but the evidence — shared by me last night in the second installment in this series—suggests something more is going on, as always. Maybe if I just don’t eat between now and tomorrow’s training, I’ll be OK. This is the same approach I’ve used as a workaround in the recent past that’s contributed to my losing more and more and more weight.

Conversely, eating more and more and more when violently ill won’t result in my absorbing any calories or nutrients, as they’ll just … ahem … shoot through me like Big Bertha, the tunnel-boring machine used in Seattle’s Alaskan Way Viaduct replacement tunnel project. Except it won’t be like Big Bertha at all, because she got stuck for two years starting in 2013 and eventually had to be partially excavated for a repair to solve the issue. Trust me, nothing’s getting stuck inside me and nobody is going to cut into me to bring my body the spare parts it needs to operate properly again.

So to eat, or not to eat, that is the question. To train, or not to train. I guess there are actually two questions at this point.