I used to think to be not alone meant / never having to walk through the high wheat / or struggle in the water.

— Allison Seay

I am standing in the high wheat. Field with Sheafs, by August Haake (1911–1914), oil on cardboard. Image used in accordance with U.S. public domain laws.

When I was a teenager, my mother’s best friend came over one night after a long absence from the weekly happy hour my mother hosted. When she arrived, the friend was serious, even somber. She stayed just long enough to tell my mother and their mutual friends that she wasn’t coming back to the group because she had quit drinking.

Couldn’t you just come and not drink, someone asked, flummoxed by the surprise announcement.

No, she said. And I can’t be around any of you again, not while you’re still drinking.

She explained that being around people who drank would jeopardize her recovery. She couldn’t be in that physical or psychological space anymore. My mother didn’t understand, or maybe she understood but didn’t accept her friend’s decision. This was, after all, the woman who had been there through everything with my mom. They’d known each other for more than thirty years. This woman even picked out something for my mother to wear to my father’s funeral. I remember her bringing a selection of outfits home for my mother to try on.

Nothing black, my mother had insisted. I hate it when widows wear black at funerals.

Her friend complied. She fanned out half a dozen wool and satin pieces in beryl blue, emerald green, and ruby red—the rich colors of a painted landscape. My mother sat slumped on the edge of her bed, barely present.

Get up and try these on, her friend coaxed.

Her concern for my mother was evident. It was one of those defining moments in a friendship. Through death, they had become even closer—friends for life, or at least that’s what everyone thought at the time.

After her announcement, my mother’s friend rose and walked purposefully through our paneled den, the one with the mirrored wet bar my father built before his death. She reached the thick cedar door and let herself out.

Empty Space

There are many differences between the alcohol recovery model and the mental health recovery movement. Still, situating myself within the recovery movement feels similar to leaving everyone and everything I’ve known, the way my mother’s best friend had to all those years ago. For one thing, there isn’t a recovery-oriented support group in my area. I don’t feel comfortable at local support groups that follow the disease model, suppress or dismiss research that challenges that model, treat the DSM as authoritative, teach people that medications are the best and often only option for managing their assigned illness, accept funding from pharmaceutical companies, and act as mouthpieces for those companies.

I’ve tried to take part in those groups—to create a space for myself and my view there—and I’ve been met with everything from dismissiveness to outright disdain. For me, they are not places where healing can occur. Rather, they are culdesacs that lead to feeling, and learning to be, what Lewis Mehl-Madrona describes as “forever ill.” In Coyote Wisdom, he writes:

On the down side [sic], support groups for particular illnesses sometimes encourage stories that keep people sick and support them in seeing themselves as ill. People who absorb these stories can come to define themselves as forever ill. A healing story needs to challenge their membership in the community of sufferers.

In my experience, label-specific support groups don’t tell healing stories or encourage peers to create those types of stories for themselves. Instead, I’ve heard group leaders refer to their own mental health labels as “awful,” “terrible” and “horrible.” I’ve seen peers internalize that language and mindset. This does an incredible disservice to the community and is, in my opinion, contemptible. I won’t set foot in those groups anymore because of the culture of self-loathing they cultivate.

Recently, I ran into someone from a group I used to attend. Though it was wonderful to see him, I wasn’t sure how to pick up where we left off more than a year ago. My DSM diagnosis has changed since I attended that group, but that information isn’t important because the DSM isn’t an accurate or helpful classification system. Whatever label I do or don’t have is just that: a label. My thyroid disease has also been addressed, but explaining how that affects my well-being is taxing for even the most attentive listener. So a silence opened in the conversation, like a crevasse in brittle ice. I stood on one side, he on the other. I care about him. I also care about myself and need to do what’s best for me, which includes walking purposefully on my own path, the one that leads to healing. Now I understand how space forms between people, like it did between my mother and her best friend.

Hello, Out There?

There are like-minded people in my area, and I’ve had a difficult time connecting with them. Often, when I reach out, I don’t get a response. I know survivors experience frustration, exhaustion, burnout, and a host of other issues related to trying to have their voices heard while also caring for themselves. Nobody in the recovery movement owes me anything, and I don’t want to take time or energy away from their important work. At the same time, it’s hard to go it alone when I know there are others in town who feel the same way as me. I like to imagine us coming together in friendship and shared purpose. (That’s my internal idealist talking. I’m trying to find my internal realist, but so far she’s eluded capture.)

I’ve had difficulty with recovery-oriented online support groups as well. Members seem to spend an inordinate amount of time fighting with one another, suppressing individual voices, and creating caustic environments in other ways. It’s exhausting to take part in those groups. I often come out feeling worse than when I went in. Online groups also tend to share a great deal of misinformation about mental health, most of which goes unchecked. There are perspectives and opinions, certainly, and those should be respected. But sharing inaccurate information doesn’t help anyone.

Whether in person or online, it probably doesn’t help that, in addition to being an idealist, I’m sensitive, introverted, and have a low threshold for interpersonal strife—either experienced or witnessed. Still, I’m here. I want to speak, write, and act in accordance with what I value, which is a model that promotes well-being over ill-being, individual approaches over generalized protocols, and healing over harm.

I’m over here in the high wheat, in the water. I will stay here even if nobody joins me.

Aside: Reaching Across the Crevasse

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One way the mental health recovery movement differs from the alcohol recovery model is that there’s really no room for leaving anyone behind. That silence I felt when talking with my friend recently? I decided to try to connect with him to the best of my ability. He’s my people. Everyone with lived experience is my people, and I am their people. I can’t forget that. While I do need to distance myself from the disease model and the “therapeutic” frameworks that fall out of it, I don’t need to distance myself from anyone who’s open to where I am coming from, even if they remain on the other side of the crevasse.

In part, I told my friend that I am looking at well-being as opposed to ill-being these days, and at a mental health model that supports everyone (regardless of DSM label or lack thereof) having the tools and supports to live meaningful lives. I added that I believe we can all heal from trauma, adversity, and distress—which comes in many forms and touches most of our lives in one way or another. Finally, I said that I don’t think the medical system (physical or mental) goes far enough in not just treating illness and ill-being but in showing us ways that we can thrive and experience well-being.

I guess that’s my new elevator pitch, though it’s a little long. I’ll work on it.