Bipolar

Demons

Was I creating demons when I was at a poetry dinner party in Kansas City with Carolyn Kizer, and the entire group attempted to elide over her comments when she talked about another well-known poet attempting to rape her?

Was I creating demons when a member of my poetry class in Kansas City started stalking me, leaving flowers, torn-up copies of my poems, and letters about how bad and offensive my writing was on my windshield?

Was I creating demons when a poet and publisher in Kansas City screamed in front of a large group of poets, including my best friend, that I wanted to fuck him behind a dumpster?

Was I creating demons when a poet in Seattle who had agreed to work with me on my poetry googled (from his IP address) the words married and naked in combination with my name before we met? When he then canceled the appointment, told me I was childish for writing cut-up poems, and said I was wasting his time. When he also created a fake blog username and trolled me on my site (again, from his IP address) for months, trashing everything I wrote, including my poems.

Was I creating demons when two other Southern Utah poets said my work was pornographic and I should find another state that would accept it, while refusing to let me join their two state poetry society chapters and telling me they’d stopped meeting when they hadn’t?

Was I creating demons when a poet who’d been following my work for months and said he wanted to publish some of my poems left a hostile, sanist comment on one of my microessays in which I was lamenting the fact that people are jumping from a bridge down the street? When he screamed that my writing was the last thing he needed in his life, as if he hadn’t followed me and chosen to read, and laud, my work up to that point. As if he didn’t have the power to stop reading what I wrote or unfriend me or mute me or any of a suite of well-adjusted options that were available to him. That poet later disappeared during a mental-health crisis. When I was asked to help, I skip-traced him to his brother’s house, and he was eventually found safe. Because that’s who I am. Not someone who creates demons or treats people like demons. I’m a person who helps people when they need help, no matter how they’ve treated me.

Was I creating demons when a poet asked to read one of my manuscripts, then replied that he was sorry he’d even asked to read it? When he then rewrote part of it the way he’d like to see it, infantilized me and my work, assumed the speaker was me, treated the work not as work but as the opportunity to intervene in my personal life and my past, and talked about me in extremely sexist ways. When I responded and he continued the attack and infantilization, using my own work against me by calling me a little fist of a girl, a line from one of my poems. When he continued to move between unwanted intimacy, flirtation, and attacks in successive emails, even after I asked him to stop communicating with me. Or when my life partner had to intervene to make him observe my boundary.

Was I creating demons when a poet I’d known for more than twenty years threatened me here on Facebook, publicly in front of the entire poetry community, saying I was committing both a transgression and a manipulation when I told him I loved him, platonically, as a friend, something my context made clear? Was I creating a demon when he did similar things to other women and female-bodied poets.

Was I creating demons when a poet messaged me about a gay Arab who had gotten ahold of a photo of him in bed without his shirt on and how upsetting that was for him and who then sent me that photo through DM so I could see what he was so upset about? Or when that same poet viciously attacked a woman who was experiencing psychosis and got a group of poets to gang up on and attack her, which could have put her life in danger. Or when he refused to take his public post about her down so she could get some help without being pushed further into a dangerous or life-threatening situation. Or when he later told me I was borrowing the term CPTSD and wielding the label sanism, implying I don’t live with the former like he does as a war veteran and therefore have no right to identify and address the latter. By the way, I helped that woman, too. I reached out to her directly and got her a welfare check. If I’d been in the same part of the county as her, I would have been there for her in person. That’s a lot better than telling her she’s a terrible person and getting at least a dozen other poets to do the same.

Was I creating a demon when my poetry mentor breached my trust seventeen years ago with his words and his body and his insistence and his intrusion? When he made me talk about the ways in which my father abused me and became aroused when I did so. While he had me pinned down with his body. While he talked real nice, real childlike. While he continued despite no and stop and no and no and no. That was not a demon. That was a man. And a poet. A beloved one at that. I didn’t create that man any more than I create demons.

More recently, was I creating demons when a poet told me my comment about mentors not taking advantage of their students, which stems from my own experience, didn’t need to be said because it was already implied in the statement that students shouldn’t sleep with their mentors? That, in other words, we should all just be following the programming we’ve been given, which is to place responsibility on victims for not being or becoming victims. Look at my paragraph above. What part of that looks like a mentor trying to sleep with me? What part of that could I have avoided under the circumstances? Was I creating demons when that poet interrupted me in front of a group of poets to make his assertion? How about when he turned my gender into a joke and literally wanted to tell it as a joke on his joke podcast. How about when he asked how my life partner felt about my having sex with whoever I wanted and continuing to ask me that inappropriate bullshit question even as I kept repeating the word asexual, emphasizing the first syllable in the hope he’d understand not only his error but the violation intrinsic in his question. Is that evidence of my demon-making. (Note to everyone: Just because someone uses language for their gender and sexuality doesn’t make it your right to ask personal questions about either, especially not when first meeting them.)

Was I creating a demon when a friend of the poet in the paragraph above, one who’d been supportive of me, my work, and everything I’ve discussed about poets and poetry—up until it involved someone he personally knows—sent me a message in response to my asking not to be invalidated in which he says I am marshaling evidence, finding demons, distracting from real communication, seeing a glitch as a serious issue—thereby invalidating my concern about that issue—calling me a wrecking ball, making it clear none of the poets in the group, my former friends, like me, not even the one who appears to like me, saying this very personal issue around my story of sexual assault should have been mediated in the group and as a group—as if my experience and my trauma should be on trial and the most painful parts of my life should be made freely available to the group? Then, when in order to drive the point home about what a terrible person he thinks I am, he says, I think you’re a great writer. That opinion is somehow impersonal and won’t change. Or when he ends by saying he knows his own mind and I am welcome in it anytime I welcome that.

And that was from a friend, a dear one, who in one paragraph tried to invalidate everything I’ve ever seen or experienced and to get me to see myself as nothing, as worthless, as a monster. He reminds me of my father. He reminds me of my father’s best friend. He reminds me of Ruthie’s father and her brothers. He reminds me of Shawn Green and Greg Kullich and Jack Ladd and Matt Rawlinson and my trigonometry teacher, Steven Knight. He reminds me of my nephew. And of my old friend Jared.

The life partner says I tend to be drawn to creative people, and they tend to be drawn to me. I need more boundaries around that, clearly: who gets access to me and when and where and how. In this case, I’m at a bit of a loss. I’d been close friends with this person for years, the one who reduced me to creating demons. It feels like another example of someone being with me all the way until I talk about someone they know personally. That happened around the assault seventeen years ago as well.

Ironically, the group I created where this rift occurred was supposed to be a safe space, a place for creativity to flourish, and a place for peer support around mental-health issues. That’s something I need in my life and know others need as well. Instead, my biomarkers have been negatively affected, I feel like I was attacked when being vulnerable, I feel like my story was submerged under the weight of those who don’t want to hear it, and I feel like this last email was designed to destabilize my mood and be health- and even life-threatening. One in five is the statistic for those living with bipolar, not even bipolar coupled with trauma. Knowing my past and what I’ve survived, I can’t reconcile how this poet, this friend, would choose to do the maximum amount of harm possible, including attacking my sanity, my motives, my perceptions, and my worth as a human being.

I’m at a loss. With regard to my relationships. With regard to poetry. With regard to this country. All I can do is honor my commitment to speak out and keep speaking out about issues and injustices at all levels. I am not on this Earth to remain silent. The moment I let someone silence me is the moment I stop living.

Frictions

“Nothing about us without us.” That’s a guiding principle in the disability-rights movement. It applies to the mental-health justice and recovery movements as well because mental-health issues are often disabilities for those of us who live with them—sometimes because they are truly disabling and sometimes because our cultures disable us, our communities disable us, and those around us disable us because they don’t understand us (or try), don’t include us (or try), discriminate against us (often because of unexamined or dismissed bias), and subject us to their versions of who we are, which happens daily through language and actions and the way real and conceptual spaces are structured.

I bought a clicker, one of those old-fashioned ones that employees at the academic library where I worked in college used to track how many people came in each day. I’m going to use it for two weeks and track how many times I encounter instances of sanism, both in real life and on social media. I started doing something similar last week by making ticks on a piece of paper. But I like the idea of using a clicker in part because it’s an object I can hear and feel as I operate it, in part because it fits in my hand, and in part because it’s a bright color. I have the kind of sensory processing that appreciates those things. The clicker also feels more formal and official, and I can use it even when I don’t have a pen and paper with me, which makes it more practical. I may include notes about each instance, including the context, date, and time.

OK, I actually bought six clickers in an array of colors because they came in a set, but that’s beside the point. You may think that’s too many clickers. I don’t. I’m mildly tachycardic right now just thinking about their arrival. There’s a black one and a green one and a pink one and a red one and a white one and a yellow one. I’m actually trying to humanize myself in this paragraph and the last one because I made some big assertions in my opening paragraph, the kind that make people (in this case me) unlikable mostly because they fall under the information you didn’t ask for that I think you should know category but also because they may apply to you or those you know rather than some far-off “they” that we can all join in both hating and distancing ourselves from together.

“Nothing about us without us.” I take this principle seriously. It’s like no taxation without representation, only it’s like no characterization, no proclamations based on misinformation, no policy decisions, no representations in the arts and the media, no casual or formal conversations, no application of diagnostic labels especially when used in a pejorative manner, and no limited or completely erroneous lay insights without our representation. That means we are centralized, not marginalized. We are present, not absent. We are heard, not talked over, not silenced, not discounted. It means if we say there’s an issue, you listen. You don’t shift in your seat or put up a wall or fail to respond or shift blame to us. 

I’m no longer entering rooms where there are frictions only I appear to see and concerns only I appear to discern, one thousand frictions that are invisible to those who are not queer or neuroatypical or living with trauma or serious mental-health issues. That doesn’t mean those frictions don’t exist. It just means they may not exist for you, and if that’s the case, I’m happy for you. I’m glad a room is just a room is just a room. But your inability to see what others see, feel, and experience in those rooms—your failure to cultivate literacy about the things those who are oppressed and marginalized have to see in order to survive every day—is part of why rooms continue to not be the same rooms for you that they are for others.

These rooms are exhausting. Click click click (click click). If in addition to instances of sanism, I count instances of trans erasure (click), ableism (click), neurotypical bias (click), discounting of women and those who are female-bodied (click), jokes about diversity (or the lack thereof) in a space (click), and more,* there will be no end to the clicking in too many rooms, even rooms full of poets.

It’s impossible to know which rooms will be full of frictions. I’m trying to figure out what clues I can look for ahead of time and to develop a matrix I can use so I know when to call any given room quits. I no longer believe I can change hearts and minds with my presence, my words, or my work. I feel like, more than ever, I’m in a box called “crazy” and that terrifies people, no matter how I live, what I accomplish, how I treat others, or how wonderful folks think I am before they learn I have a DSM diagnostic label or that I’m queer or that I’m neuroatypical in numerous ways. I’ve seen that semipermeable membrane more times than I can count: the one where inclusion becomes exclusion and being part of becomes being removed from.

I feel like my attempts to address frictions only lead to more frictions, many of them in the form of irritation, denial, resentment, and even fear and disgust. But I will do what I can until I realize I can’t do any more. Then I’ll leave before I accept my own erasure and even start erasing myself. I can’t abide that or any other form of complicity.

I’ve mainly seen this level of friction in Utah. At least in other places, my experience has been that I become more human when I talk, when I write, when I take part in things. Of course, I was largely in the closet about my bipolar until two years ago. That may be part of why people accepted me as a human being and not as an amalgam of their stereotypes, biases, and misunderstandings about bipolar. Who knows what those places are like now, in this new world that has us all doing the work of marginalizing and dehumanizing others on some level.

The rooms with poets are the ones I must approach with care above all the others because I need to believe in poets, even if that belief is misguided. I’m not ready to let go of that yet. I know better. I think I know better. I want to know better but, more than that, I want to be wrong. I want to believe in poets the way some people want to believe in God. It’s like that for me.

I also can’t help but see something else in those rooms, wherever they’re located: a kind of arts-driven traveling medicine show meets multilevel marketing network. It’s not quite either of those things, but it does feel like a system that created itself and now uses its existence as a way of validating itself, one that enriches the few and relies on the many, and one that’s unhinged from actual oversight or governance by the institutions many of these poets actually work or once worked for, which means those institutions will not act based on anything that happens, up to and including sexual assault, in or near those rooms. It’s hard not to see it like that, especially after some of my personal experiences in such rooms, which makes it even harder to find spaces that are safe and poets who are doing good work in those spaces.

—

* I’m just listing ones I’ve encountered recently.

Jacks

Two years ago today, I came out of my medication-induced blackout at the inpatient psychiatric unit and began working on an elaborate origami project that involved making the Sydney Opera House with a theater and stage inside it. I used paper placemats and pages from a colorful book for this purpose. I was given a copy of the Book of Mormon by the staff, but I didn’t use its pages in my project. It sat in my room idle as I worked.

I wrote and performed rap songs with another patient named H— to the delight of other manic patients on the unit. Those with severe depression were not moved by our artistry. We were good at the rapping, and our antics provided a counterpoint to the aimlessness, the hall-wandering, and the five-minute interfaces with the psychiatrist each day in which he blamed us for having depression or bipolar.

I used a deck of cards to map out human networks that are responsible for abusing and trafficking others. The kings and jacks were big players in those networks, and they were also stand-ins for my father and his best friend. The networks were very organized and knew how to hide other cards, and themselves, as needed. My father’s name was Jack. He was a jack of all trades, even ones that weren’t legal.

I wrote short poems and made notes about my stay using a tiny pen that only sporadically worked. Pencils, Intermountain. Give patients on B-Ward pencils.

In my chart, the staff noted that I was well-behaved and posed no threat to anyone. I did throw paper at one point, down a long hall, overcome suddenly by how dehumanizing psychiatric care is. Nobody noted that in my chart, but one tech did scream, If you do that again … without completing the threat.

I declare today, September 10, the Day of Origami and Rapping forevermore. Long live folded paper and battled song.

Folding

This is the two-year anniversary of my stay at the local inpatient psychiatric hospital where the psychiatrist described me as being involved in sex trafficking, as if I was trafficking others as an adult as opposed to having been trafficked as a child. The psychiatrist also said my trauma had nothing to do with my mania, told me in so many words to be a better wife when I expressed my concerns to him about my husband’s behavior, refused to help me get services from the local organization that helps people who’ve survived sexual abuse, and wrote in my chart that I had a poor prognosis because I have no insight into having bipolar.

And he was supposed to be one of the better psychiatrists at that hospital.

This is also the day I briefly saw Utah poet laureate Lisa Bickmore and thought she was some kind of healing Earth goddess, which I still think is the case. When I’m manic, I see essences. Lisa is a lot more than a healing Earth goddess, but she also has the essence of a healing Earth goddess.

These are the final days of my hegira, the one I declared over before it was over. Over the next few days, I’ll be sitting with everything that happened two years ago in a process that’s like folding now and then together the way two ingredients are combined in baking. Not that I bake. I prefer folding time to folding things like whipped eggs and melted chocolate. When I need to eat something, I just eat it. I rarely mix it with something else.