Writing

Conversation with Cavafy

Whatever I try to do is fated to turn out wrong / and my heart lies buried like something dead. / How long can I let my mind moulder in this place?

Windy night. Windy morning. Tumbleweeds congregate in my yard like churchgoers who stick with their own kind and bristle at anything unlike them.

Wherever I turn, wherever I look, / I see the black ruins of my life, here, / where I’ve spent so many years, wasted them, destroyed them totally.

I walk from one tumbleweed to the next literally sizing them up. I want a fat one, nice and round, no thorns. I find one I like and carry it high like a torch to my back door. I imagine I’m carrying justice or truth, though it’s just a dead amaranth and I’m just a person living in Toquerville, Utah, trying to make sense of this place before I leave it.

You won’t find a new country, won’t find another shore. / This city will always pursue you.

This is not a city, I think. Not in any real sense. Eighteen hundred people live in this town named after a Paiute Chief who may not have existed. He makes a nice story, though, one of Native Americans and Mormon pioneers living in harmony, so the locals are sticking to it. There are probably as many cows and chickens as humans here. Six cloned while bulls live up on the hill. Two Shetland ponies reside down the street. More than anything, this place is comprised of sandy soils, so many types they each have a name — alfisols, aridsols, entisols, mollisols — not like the basalt, which is just called basalt. Chief Toquer was named after that basalt, so the story goes.

You’ll walk the same streets, grow old / in the same neighborhoods, turn gray in these same houses. / You’ll always end up in this city.

The tumbleweed will stay on my coffee table until I get on the road to Tucson, where I’ll display it as a reminder of the place I’ve left. Well, mostly left. We never leave the places we leave. Didn’t Cavafy say as much in his poem “The City”?

Don’t hope for things elsewhere: / there’s no ship for you, there’s no road.

But I have hope. Those of us who despair must also hope. It’s like a teeter-totter, but with great effort you can sit closer to the fulcrum and find balance. Hope isn’t a thing with feathers. It’s a tumbleweed trying to spread its seeds as far as possible even after it’s dead. I have that kind of hope, one that moves with me and urges me to move. Movement is breath, is heartbeat. I especially love those slabs of highway that make the car go “ga-dung, ga-dung, ga-dung” the way my heart does when I know I’m alive. The roads between here and Tucson undulate like a roller coaster meant for children. They make me nauseated, which is another way of knowing I’m alive, an old way of knowing, a way I may cast off one day as I tumble along.

Now that you’ve wasted your life here, in this small corner, / you’ve destroyed it everywhere in the world.

Then I might as well go anywhere I want, Cavafy. Why relegate myself to this small corner? Why do here what I could do in wilder lands with deeper histories? Where admission is possible and millions of saguaros throw up their arms to welcome the beloved wrecked and wretched with perfect equanimity.

Rustle and Racket

My husband doesn’t like saguaros. I felt an immediate connection with them. They’re columns of water, not unlike humans. They store what they need so they can survive dry times, deadly times.

Their arms are few or many or long or short or tangled and twisted. One is called Shiva by locals who check in on her and wish her well. She’s as beloved as the wild mustang colt at Salt River who the locals have also named.

Sometimes saguaros grow up and through palo verde trees. Sometimes their arms grow into each other. That’s when they look like they’re dancing or embracing or holding up one of their own who would otherwise fall.

Human, human. Impossibly human. More human than humans, perhaps.

Imagine walking around with woody nests in your hair, the rustle and racket of fledgling crested caracaras who see you before they see much else.

Imagine white blooms erupting from your crown every day for a month before the heat comes, the dry heat, with its days as monotonous as the desert you live in appears, at least at first glance.

Imagine howling nights. Imagine remaining so silent and still some see you as a spiritual teacher, your pleated roots ready to expand for water and more water and more water.

Impossibly Human

My husband doesn’t like saguaros. I felt an immediate connection with them. They’re columns of water, not unlike humans. They store what they need so they can survive dry times, deadly times.

Their arms are few or many or long or short or tangled and twisted. One is called Shiva by locals who check in on her and wish her well. She’s as beloved as the wild mustang colt at Salt River who the locals have also named.

Sometimes saguaros grow up and through Palo Verde trees. Sometimes their arms grow into each other. That’s when they look like they’re dancing or embracing or holding up one of their own who would otherwise fall.

Human, human. Impossibly human. More human than humans, perhaps.

Imagine walking around with woody nests in your hair, the rustle and racket of fledgling Crested Caracaras who see you before they see much else.

Imagine white blooms erupting from your crown every day for a month before the heat comes, the dry heat, with its days as monotonous as the desert you live in appears, at least at first glance.

Imagine howling nights. Imagine remaining so silent and still some see you as a spiritual teacher, your pleated roots ready to expand for water and more water and more water.

This Canyon

The problem with this canyon is that it doesn’t know it’s a canyon, so it will go on being a canyon until someone stops it from being a canyon.

This canyon has moods. Its moods can’t be contained. It’s cold wind, warm wind, hot wind. It’s the echoes of coyotes howling from the land and hawks and vultures screeching in the air. It takes on all these sounds, all this movement, without thought, without hesitation, without common sense.

We want to put this canyon in a long-term program so it can learn how to be a church lot or a fractional-ownership community. Anything but a canyon. Maybe a golf course or a shopping mall. Maybe a water park or an RV site. We need more of those. What we don’t need is more canyons.

This canyon is a burden to the taxpayer. It never gets any better at not being a canyon. We’ve tried everything we can with no luck. This canyon doesn’t listen. This canyon doesn’t learn. This canyon doesn’t stay on task. It won’t tell us its history. It doesn’t answer our questions. It just goes on and on about rivers and rocks and how it’s millions of years old, all evidence of its derangement.

We can’t help this canyon if this canyon won’t cooperate.

We don’t need any more canyons here in these canyons which are always annoyingly so canyonlike. Canyons should be outlawed. They should be jailed. They should be shocked into being what we want them to be.

This lousy canyon. This maniacal canyon. Such a waste, such a terrible waste.

—

The last sentence of this poem is from the ending of Charles Bukowski’s poem “Paper and People.”

Neonatal Pig

Wood rats are the hamsteriest of all the rats. We have one who uses our rock wall like a little cubby-filled highway. We watched each other for a long time yesterday as she darted in and out of openings making her way up to our neighbor’s house. I’m going to leave some trinkets out for her, things she might like for her midden.

Traffic was at a standstill on the highway through Toquerville this morning. Two sheriffs and an animal shelter officer were trying to capture a pig who was on the loose.

I moved a cobblestone in the yard and found a western fence lizard attempting to stay warm on this chilly morning. I carefully replaced the stone and apologized for the intrusion.

If you can love a chicken, you should be able to love a human being, but things aren’t always that simple.

I describe my complexion as neonatal pig.

Upheavel and Loss and Despair

I heard stories of fear growing up, stories of anger, stories of upheaval and loss and despair. The aunt who was poisoned by her husband who was also the man who molested my mother when she was a child.

The great aunt who drowned in pills, who scraped her throat raw trying to force the pills back up after regretting what she did in the moment, in the moment. Before that, the way she waded into a lake and tried to drown herself but someone saw her and fished her out to face the blessing and curse of another day.

Stories of fish on the line, writhing, all muscle and intent. Streams of urine flowing like fountains into the red-tongued water. Who stole watermelons again? Who was chased by a landowner with a shotgun? Father, father. It was father. The urine was him, too. The fish was everyone he touched, everyone who wanted to break free from his hold.

Father and his women and his girls and his parties and his CB radio and his handle and the handle he gave me when he made me talk to truckers on one of the biggest sex-trafficking highways in the country.

Oh, wait. That’s my story, not one I heard. I only understood it completely two years ago. It seared my mouth when I tried to tell it, so I wandered toward the sun and begged it to turn me into ash, into smoke, into anything other than this dredged body. Wait, that’s my story, too.

Part Sand

I have so many things to do, but my dog is sleeping on my lap.

A turkey vulture glides over the creek, wings bent, head down. Fist-shaped clouds fill the sky. Am I the only one who braces a little all the time — in the Walmart, in the wildlands, in my home? You just never know what’s coming. When I was manic, I told the ER doctor my family was always exploding and floating. It’s true. The only way we survived each other was to float like vultures in our violent skies. Mania is a way to float when gravity’s fussy little hands won’t let go, when the weight of reality is unsurvivable. It’s a way up and out, all wing and wonder. Then you land, hard, the earth splitting you with its open hand. What’s my faith? That I’ll be broken again in this lifetime. I have faith in that the way the vulture has faith that he’ll find carrion before nightfall.

The vultures and the storm arrive together. Below, the dead, waiting. Below, the dry land, waiting. Famine, feast. Drought, water. A blue tractor pushes a single bale of hay across the pasture just before the rain begins to fall.

I hated the wind when I couldn’t escape the wind. Now the wind is gone. I miss the wind. I love the wind.

Part wind part sand. Part sand part canyon. Part canyon part water. Part water part stone. Part stone part moss. Part moss part bark. Part bark part loam. Part loam part clay. Part clay part man. Part man part prayer. Part prayer part song. Part song part wind. Part wind part sand.

This morning, the sky is a common opal, milky blue-white with deeper blue-gray behind that. Nothing shining through. Nothing casting off light. Nothing for us to point at and say, There it is, evidence of God. This dull sky hangs above the desert’s painted soils, its gutted reefs, its nameless headstones. It neither consumes us nor purges us. Just another day. Just another sky. We’ve all seen thousands like it. Good morning.

Facebook, how would I watch two rescued prairie dogs eat grape tomatoes without you?

Isn’t this why we’re all here? To postpone our own and each other’s departures? From life, I mean. From life.

Exploding and Floating

A turkey vulture glides over the creek, wings bent, head down. Fist-shaped clouds fill the sky. Am I the only one who braces a little all the time—in the Walmart, in the wildlands, in my home? You just never know what’s coming. When I was manic, I told the ER doctor my family was always exploding and floating. It’s true. The only way we survived each other was to float like vultures in our violent skies. Mania is a way to float when gravity’s fussy little hands won’t let go, when the weight of reality is unsurvivable. It’s a way up and out, all wing and wonder. Then you land, hard, the earth splitting you with its open hand. What’s my faith? That I’ll be broken again in this lifetime. I have faith in that the way the vulture has faith that he’ll find carrion before nightfall.


Stone Heavy

This stone-heavy ball of hope. This gravel-slick hill before me.

It’s easier to forgive the dead for what they’ve done than to forgive the living for what they’re doing.

Cinched by cumulus clouds, the Pine Valley Mountains are sugar-white thanks to yesterday’s snow. Below, sand-encrusted cars zip behind the cattle ranch’s picket fence. Three rock doves draw my eye from cottonwood to rooftop, then everything is still until the air shifts, until another car passes, until another bird flies. I could waste my life here, right here.

That beating? It’s the rhythm of death but also the rhythm of life.

Good morning, air. Good morning, land. Good morning, birds singing the desert to life.

Weaponing Healthcare

Today, my primary care doctor opened my appointment by telling me that he believes I’m a hypochondriac. I’ve survived and/or live with multiple illnesses, including cancer. I live with more than one rare disease, including common variable immunodeficiency, which is serious and life-threatening. I have autoimmune diseases, renal insufficiency, postural orthostatic tachycardia, and arrhythmias. I’ve been treated for atrial fibrillation. I have aortic root and ascending aortic dilations. And I have PTSD and serious, life-threatening, bipolar.

All of this is documented in my medical record at Intermountain, where my primary care doctor works. It’s not in my head. It’s not me imagining health issues that don’t exist. They exist, and I’m attempting to address them. I worked as a medical writer and editor at some of the best institutions in the country for years. When I get a diagnosis or face a health challenge, I do research and have the determination to address the situation however I can.

Today, I was asking about my fasting blood glucose being over 100 for the past two years. That’s diagnostic for prediabetes, but none of my doctors brought the high results to my attention. High blood sugar seems like something I should be able to discuss without being called a hypochondriac. It’s especially important given that my chances of developing diabetes are 3 to 4 times higher because I have bipolar disorder.

I was also at the appointment to discuss my BUN level and (BUN/creatinine ratio). My BUN has doubled in the past 5 months and is above the normal range. Perhaps that’s not an issue, but given my history of renal insufficiency and the fact that lithium, which I started taking at a higher dose 5 months ago, causes kidney disease in about 26 percent of patients, the higher BUN level seems like a valid issue to raise.

Healthcare systems don’t seem to welcome the type of patient I am—one who’s female, has chronic health issues, and has a mental health diagnosis. We wait years or decades before our issues are taken seriously and addressed. By that time, we often have medical trauma because of how the healthcare system has treated us or our conditions have progressed, often irreversibly, because we were gaslit into thinking it must all be in our heads, a point our doctors belabor.

If I can’t approach my doctor for routine care, explanation of test results, or to discuss a health concern—the very things primary care providers are supposed to do with their patients—without the entire encounter being dismissed as evidence of a mental health problem, then why am I even trying so hard.

This isn’t the first time this has happened here in Southern Utah. Another doctor at Intermountain denied the fact that I had atrial fibrillation despite a preponderance of evidence that I had the condition. I was denied the medication I needed because of his insistence that I didn’t have afib. Yet another doctor at Intermountain tried to tell me my diagnosis of common variable immunodeficiency was unfounded despite the fact that I have extensive documentation of that disease from accomplished immunologists who know how to diagnose and treat immune system dysregulation.

I’m tired. I’m tired of this treatment. I’m tired of this sexism, this ableism, this dehumanization. I’m just tired. These attitudes and behaviors on the part of doctors cause unnecessary and severe iatrogenic illness for those of us who are subjected to them. I can’t carry that burden on top of my actual health and mental health issues. I’m tired.