Essays

Fun-House

The life partner and I are having an ongoing fight interspersed with listening to music in separate rooms. What happened, you ask? He tried to handle a medical bill three months after I first began asking him to do so. He insisted it wasn’t urgent and was feisty in a bad way every time I brought it up.

As a result, a couple of weeks ago, I almost got put into collections by the hospital and had to pay the bill in full before I could be seen by my immunologist.

But that’s not what the fight’s about because my window of tolerance for the life partner is larger than he could ever imagine.

The fight is about the fact that he caught a wild anxiety this morning, which happens from time to time, and called the insurance company to figure out why the claim had been rejected. He got in way over his head and couldn’t even identify the correct claim, which made the conversation with the representative go south fast.

He burst, I tell you burst, into my room in a panic with his phone in his hand and a tiny confused voice on the other end of the call, demanding that I help him immediately, which I did by taking over the entire situation and cutting him out of the conversation.

He’s trying to defend the indefensible. That’s what the fight is about. I hate it when our home becomes a series of fun-house mirrors reflecting anxiety and defensiveness, especially on a day when something good is actually happening in my life.

(I’m not sure the two phenomena are mutually exclusive. Any success I have seems to spike his anxiety and, somehow, his need to prove his worth through acting defensively toward me. Other things spike his anxiety, too, like The Rumproast in Chief, which means he’s been anxious about certain issues for a while now.)

What am I listening to? The Crystal Method, of course. I owe this band a debt of gratitude for getting my rear in gear where writing is concerned.

More Abuses in Poetry

I’m reflecting on how I could have stopped writing poetry at any of a number of points over the past year:

Last spring, when a poet I’d known for more than two decades went on his page and threatened me because he thought it was inappropriate for me to tell him that, as a friend, I loved him. He decided that meant we were having an affair. He attacked me privately, then went on his page to tell the entire poetry community he was going to out me as a married woman who was acting disgracefully. I had to watch women poets, including those I know, console him rather than telling him his behavior was inappropriate. That is the one and only time I’ve screenshot a Messenger conversation and shared it. I did so to put an end to the unfounded, untrue, and libelous comments he was making. He immediately blocked me. I never even said his name—though I would if something like that happened again today—and I removed the screenshots the next day rather than leaving them up as I could have. (Update January 26, 2026: They’re back up on my Facebook page.)

Last winter, when a poet who’d been following my work for months and said he wanted to publish some of my poems left an obscenely hostile, sanist comment on one of my microessays lamenting the fact that people are using a bridge down the street to die by suicide. He screamed that I needed to be in therapy rather than writing and that my writing was the last thing he needed in his life, as if he hadn’t followed me and chosen to read, and laud, my work up to that point. As if he didn’t have the power to stop reading what I wrote or unfriend me or mute me or any of a suite of well-adjusted options that were available to him.

Two days ago, when a poet I’ve known for more than a year, perhaps the most successful and talented poet I know, lashed out at me for using the term sanism, indicating that I was “borrowing” the term, implying my experiences with abuse and trauma and my lived experience with bipolar aren’t valid because, unlike him, I haven’t been to war. It was not the first time he’d lashed out at me or the first time he’d engaged in disconcerting comments about and behavior toward women, namely women poets with mental-health diagnostic labels and lived experience.

That’s about one-third of what’s happened over the past year. Poets can be so toxic and vitriolic and othering and fragile and entitled and bullying—and even engage in nasty tactics like gaslighting—that it’s still hard for me to wrap my head around it. I am shocked every time it happens, though I shouldn’t be. Something similar but much worse is why I left poetry for years back in 2015.

Shame on those who engage in behaviors like this. Shame on the effect you’re having on other poets. Shame on the dynamics that underlie what you’re doing. Shame on you for doing everything seemingly in your power to remove folks like me from poetry in particular and the world in general. I mean the human world. I also mean the living world. Like everyone with a dignoastic label and lived experience with bipolar, I have a 1 in 5 chance of unaliving myself. Not trying to. Actually doing it. Anyone who nudges, pushes, or shoves another human being in that direction needs to sit with what they’re doing and why they’re doing it. Bigtime.

I had just finished my essay for Mad in America the day before the poet accused me of appropriating the term sanism. What if I’d pulled that essay? What if I’d decided not to submit my manuscript to any more contests? What if I’d decided not to write poems or essays anymore? What if my mental-health recovery had been compromised?

Folks who need my writing would have lost my voice, including my insights, perspective, and stories. And I would have lost part of myself. That could have been what happened because poets like the ones listed above make poetry too much. Too hard. Too unwelcoming. Too dehumanizing. Too rancid. Because of the sexual assault that occurred with my mentor, which took me away from poetry and—in a sense—my life for seven long and lonely years, I am always close to leaving when some new poet rears his head in a similar way, with similar impulses and similar levels of dysfunction.

But I told myself when I came back that I will not leave. I will not budge. I will not back down. I will be a 4 in 5 even if certain men in poetry have absolutely no regard for my health, well-being, or life. That’s the biggest fuck you I can give men like that.

And I will write. I will not stop writing.

—

And those of you who know these types of folks and do nothing? Shame on you as well.

And those of you who think folks like me should shut up about things like this, who confuse us for the problem because we speak about the problem, who tell us to just get over it or at least not talk about it publicly? Shame on you, too.

I do not have the capacity for any of you. The work I’m doing is far more important than publishing poetry, that is if I have to stay silent about abuses in order to have work accepted or dissociatively participate in the system without being able to advocate for change within the system. I will not stay in the good graces of a toxic culture. This is about human rights. All of it. My life, my work, my purpose.

Get in Line, Brian Kilmeade

Days of Bruising in the Sunflower State. Kansas City, Kansas, June 19, 2015.

You want me dead, Brian Kilmeade? Trust me, there’s a psych tech in Kansas who couldn’t agree with you more. This photo was taken three days after leaving KU Medical Center in 2015 with bruises all over my body after being beaten by a psychiatric nurse who also put me in a face-down hold, despite that position being illegal in most states and despite my having asthma. He threatened to hurt me even more if I ever “tried anything.”

What I had “tried” was getting my inhaler because I couldn’t breathe. The staff refused to give it to me, saying it was expired by one day, and they didn’t have orders for another one. I’d just been diagnosed with common variable immunodeficiency by the lead immunologist at KU Medical Center, but the staff in the psychiatric unit said I was making my diagnosis up. I also had thyrotoxicosis at the time, but nobody at KU Medical Center did the simple test necessary to reveal that was the case, even though it’s in their algorithm to test the TSH level of anyone who presents with symptoms similar to mania. The psychiatric unit’s former director implemented that policy.

Photos of these bruises are also on file at Shawnee Mission Medical Center, where social workers from KU Medical Center and a local organization for women took me to document what had happened to me. Of course I never did anything about what happened. Lawyers weren’t interested in my case. The state human rights organization wanted me to tell my story over and over again, which was retraumatizing. And my records from KU Medical Center were not accurate. This incident, for example, didn’t make it into the record. Nor did the EKG they had to do while I was blacked out, which I’m only aware of because I woke with a node still stuck to me. Nor did my being undressed, washed enough to be wet all over, and dressed again, but without my underwear.

The staff withholding my medication didn’t make the record. Nor did the staff throwing food on the floor for me to eat. Nor did two male techs standing in the doorway laughing at me. Nor did a female nurse dogging me in the hall outside my room while saying “I didn’t do anything to you,” as if this absolved her from everything that was done. Nor did the staff hanging up the phone on me while I was trying to call my immunoglobulin company, which I’d been instructed to do to set up my infusion deliveries after I left the unit,* or important organizations like the one that was trying to advocate for me, or my friends, or my family members. Nor did their crushing me in the doorway to the room where the phone was located while trying to remove me from that room. Nor did their playing violent movies in which women were being beaten. There are more nors, I’m sure. But you get the idea.

—

* Having these infusion deliveries set up was a condition of leaving the unit. The staff repeatedly refused to let me use the phone or hung up mid-call in an attempt to keep me from being discharged.

Updated Immunotypical Privilege List

In 2014, I wrote a piece titled “44 Signs of Immunotypical Privilege” shortly after my diagnosis with common variable immunodeficiency. It’s a compilation of my experiences and those articulated by others living with various forms of primary immunodeficiency. The Irish Primary Immunodeficiencies Association published it on their site and had plans to make it into a brochure, though I’m not sure the brochure ever materialized.

My piece was inspired by Peggy McIntosh’s famous essay, “White Privilege: Unpacking the Invisible Knapsack,” written in 1998. I later updated my piece when “COVID” and “monkeypox” became household names. It’s now titled “46 Signs of Immunotypical Privilege.”

I plan to write a new piece titled “44 Signs of Neurotypical Privilege in the Poetry Community.” It won’t make people feel comfortable. That’s not the point. The point is that it needs to be written, and it matters, and I can’t see how to not do so after what amounts to an executive extermination order against those with mental-health issues. Ask Brian Kilmeade. He sees that order for exactly what it hopes to be and understands exactly what it allows those who hate us through and through to say, including my fellow Utahns.

—

46 SIGNS OF IMMUNOTYPICAL PRIVILEGE

Every day, as an immunotypical person—

  1. I can go out when COVID is circulating without being in a high-risk category that makes me much more likely to be hospitalized, die, or develop long COVID.

  2. I can go out during flu season without worrying too much about how serious contracting the flu could be.

  3. I can see the exponential rise in monkeypox cases and not worry that I might be especially vulnerable to the disease.

  4. I know my immune system will respond to flu and COVID vaccines. I might even skip vaccination altogether without serious health consequences. Attenuated, live vaccines such as the one for monkeypox are safe for me because my immune system works properly.

  5. I can read about measles resurgences without feeling alarmed. After all, the measles vaccine isn’t contraindicated for me, and I know my body has mounted an immune response to the disease.

  6. I can touch door handles and other surfaces in public without much concern.

  7. If I get a slight cough, I don’t have to worry about it turning into bronchitis or pneumonia.

  8. My health status never goes from relatively normal to life-threatening in a matter of hours.

  9. When I take antibiotics, they work quickly, and I only need one round.

  10. I haven’t been on antibiotics dozens or even hundreds of times over the course of my life.

  11. I’ve never been on prophylactic antibiotic therapy. I don’t even know what that is.

  12. I don’t have to routinely take medicines such as prednisone that weaken my bones and put me at greater risk for osteopenia and osteoporosis.

  13. I don’t have to wonder what comorbidity might be lurking just around the corner and if it will be a noninfectious condition, a malignancy, or an autoimmune disorder.

  14. I’ve never heard the phrase “immune dysregulation” and don’t have to concern myself with what that might mean.

  15. For me, boosting immunity means popping more vitamin C or Airborne. I have no idea what immunoglobulin is or why it’s essential to the human immune system.

  16. When I attempt to eat out, I don’t have to think too much about how long items are left on buffet tables or how well food is washed and prepped by food handlers.

  17. When I’m out in public, I don’t have to worry when people cough into their hands or without covering their mouths.

  18. I can be sure that, when I go to classes, movies or restaurants, I’ll find a place to sit in which I’m free from issues that exacerbate my breathing problems, such as perfumes, fragrances, and cigarette smoke.

  19. I know I won’t have to pass on social activities because they would put my health at risk.

  20. I know family gatherings won’t pose a threat to my health, even if young, potentially unvaccinated, children are present.

  21. If someone I love is in the hospital, I don’t have to think about when I can visit, how long I can stay, or other health considerations. I can fully focus on that person and their health needs.

  22. I can attend school, have a full-time job, raise a family, and engage in recreational activities without also having to manage the many conditions that would affect me if my immune system didn’t function properly.

  23. I can leave meetings, classes, and conversations and not feel excluded, fearful, attacked, isolated, outnumbered, unheard, held at a distance, stereotyped, or feared because of my immune system.

  24. If I pick up a magazine or watch television, I’ll see images that represent me and my experience of my health.

  25. I never have to speak on behalf of all those who are immunotypical. My thoughts about my immune system can be my own with no need for political alliance relative to my immune function.

  26. My actual and potential contributions to society will not be challenged because of my immune system.

  27. I can go for months without thinking about or being spoken to about my immunotypicality.
  28. I’m not identified by my immunotypicality.

  29. I won’t lose friends who can’t relate to what I’m going through, who think I’m exaggerating about my symptoms, or who just can’t deal with having a friend with my health status.

  30. I know I won’t be discriminated against by employers who neither understand my condition nor have the desire to provide a reasonable accommodation, despite the legal requirement that they do so.

  31. I don’t have to be afraid that, when I talk with others about my health, they will suggest unsolicited supplements, dietary approaches or exercise programs.

  32. I won’t be told by friends, family, and even uninformed members of the medical community that my condition is really just a psychological problem such as anxiety or depression.

  33. I know nobody looks at me and makes assumptions about why I appear to be ill (or well), or why I am too thin (or too heavy), or why I am not fit (or manage to stay fit despite my illness), or why I do (or do not) eat what I do (or do not) eat.

  34. I don’t have to explain why I have a lingering cough, why I might sometimes need to wear a mask in public, or why situations and settings that are safe for others may not be safe for me.

  35. Because I have never had to wear a mask in public, I have never been asked to leave a public place because the manager or owner of the establishment believes I am putting others at risk, when in fact the mask is to protect me from the pathogens others carry.

  36. I don’t have primary immunodeficiency, so I never encounter people who make the assumption that, despite the condition being genetic, I somehow brought it on myself through my diet or lifestyle.

  37. People aren’t embarrassed to be seen with me because of my health status.

  38. When I talk about my health, I can be certain that friends, family, co-workers, and others won’t become uncomfortable and change the subject.

  39. My partner doesn’t suffer from undue stress and hardship because they’re my primary or only caretaker.

  40. Nobody tells me I should feel lucky to have primary immunodeficiency because it means I don’t have to work or accomplish anything during my lifetime.

  41. My doctors have seen a lot of patients who are immunotypical. This means I’m not put in the position of having to educate them about my immunotypicality, since they’re already familiar with it.

  42. When I present in a health crisis at the emergency room, I’m given prompt medical treatment, not told I’m merely having a panic attack.

  43. I’ve never had the experience of being misdiagnosed over and over again throughout my life.

  44. I don’t have old misdiagnoses in my medical record that can’t be removed without a great deal of time and effort on my part.

  45. I don’t have to deal with the financial burden of expensive, ongoing medical care and therapy.

  46. I don’t have to face insurance companies that must review coverage for my life-saving therapy before that treatment is approved; that sometimes make patients go off their therapy for months in order for those patients to prove they still have the condition; and that sometimes deny therapy because they don’t feel the patient is ill enough to warrant it, despite documentation to the contrary in the patient’s file.

Black Box

I had an exciting thought about a poem at the tail end of a dream, and now I can’t go back to sleep. The fact that poems thrill me after three decades says a lot about poems. Perhaps it’s not just the Earth and sky that last forever, as the band Kansas asserts. It’s also the verse, the line.

I will never remember what happened to me two years ago today because I was overmedicated in the emergency room at Intermountain Health after being turned away when I went to the mental-health access center there for help the day before, but not before the access center kept me in a loud, brightly lit room for 24 hours with no bed, where I was left alone with two male nurses. What a terrifying thing for someone with a history of abuse at the hands of men to endure while in a state of trauma about her childhood abuse. Also, sleep deprivation and exposure to lights and noise, including music, day and night are more in keeping with prison torture tactics than with mental-health care, but sadly, the two are often one in the same. Shame on Intermountain for engaging in such practices.

To top it off, they failed to give me my thyroid-replacement medicine for hours, thereby exacerbating the state I was in by disrupting my endocrine system, which in turn negatively affected my HPA axis. That axis is key to emotional regulation. I don’t have a thyroid thanks to thyrotoxicosis and cancer, so my thyroid-replacement medication is critical. My TSH was already 11mIU/L when I got to the access center. It should have been less than 1mIU/L. The access center made my hypothyroid state even worse by not administering my medicine in a timely fashion.

The ER overmedicated me after I said Joseph Smith was delusional. What I actually said was, Sure. It’s fine when Joseph Smith does it, but not me. I wasn’t being hyperreligious. I was deconstructing religion, in that moment Mormonism, as well as the unwritten social rules that appear to govern when someone is seen as insane, divine, or both. Crazywise, as some call the latter. But not, largely, Southern Utahns, and certainly not ER workers at Intermountain.

That’s the last thing I remember. I blacked out for more than a day, this one: September 9, 2023. It’s a dark, rough-hewn box I can’t open, but I think Sharon Olds’ devil from her collection Satan Says might be inside it. By that, I mean my father.

Breaking Molds or Just Breaking

More notes on how and why I’m at an impasse with poetry. I’m amending my previous statement about my poetry and writing not being strong enough to continue with either. I think both are strong but that my poetry in particular is not aligned with what editors and publishers are looking for and that shaping my work so it’s better aligned with what contemporary editors want will destroy something fundamental in the work, in the process, and in my healing.

I don’t want to slot my poems into this or that mold. I don’t even want to be aware of what the molds are. Poetry is as much about breaking molds as honoring those that have a history of serving poems and their readers well, even if it’s just because familiar molds create one less barrier for the reader. But new molds do something for the reader as well, and for the poet. And barriers aren’t always a bad thing. Some of the most rewarding poems require thoughtful consideration on the part of the reader. New molds are important and shouldn’t be rejected because they’re unfamiliar. Not everything new is bad. Not every outsider poet has no idea what they’re doing.

The highly endogenous nature of poetry doesn’t always serve poetry well, as folks tend to gravitate to the names they know and the styles of poetry that sound a lot like the other poems they’ve been reading. How many voices are being missed? My guess is a lot.

I think poetry has moved in some disconcerting directions in the past few years in terms of what’s allowed and what’s not allowed, which extends to which voices are included and which are excluded. I’m not down with any of that. I’m down to write—and to write from my embodied self as it relates to the world. I don’t want to see my work altered to the point of being unrecognizable so that it can get published. What use do I have for a poem that doesn’t look or feel like me anymore? I don’t want to see my work or my life or my mother’s life gutted for the sake of having an easier or more palatable or less complicated poem or understanding of the world or understadning of things like psychosis.

I also recognize that if I had more talent or if my poems were challenging in the right ways (whatever that means), there would have been some evidence of it by now. That evidence doesn’t exist. As I move into my mid-50s, I have to consider what I’ve invested in poetry over the past three decades and whether I can continue to invest in it. Workshop fees, contest fees, manuscript reviews, submission fees, and more add up, as does traveling to read my work, assuming I could even get an invitation to read anywhere. I don’t have the time, energy, or health to keep up with the financial and other demands of poetry, all while waiting years for something, anything, to happen.

Then there’s the sexual assault I’ve talked about more than some of you might like. That experience in itself was awful, but worse, perhaps, was the poetry community’s response years later when information about that poet came to light from several sources. Hundreds of poets were involved in discounting the poet’s actions and claiming he couldn’t have done what he was accused of doing. By that I mean: hundreds of poets I respected up until that collective public outburst were involved in discounting the poet’s actions and claiming he couldn’t have done what he was accused of doing.

This is what I mean when I say pathology is systemic. In this case, it wasn’t just one poet doing harm. It was many, including editors and publishers, the very people I won’t placate now with easy-to-slot work that doesn’t raise anyone’s hackles or that only raises certain hackles the right way (again, whatever that means). There are too many of these poets to avoid. They live in every part of the country, teach at numerous institutions, and have published with just about every publisher out there. I remember what they said. It’s triggering to see their names throughout the day when someone brings one of them up or quotes their work or drops their name into a group chat I’m in.

When I crept back to poetry cautiously in 2022, I thought things would be better. They aren’t. The kinds of things that happened to me are continuing to happen to other poets. Poets are still largely silent about everything that happens in poetry and protective of those who create and sustain systems that lead to inappropriate exertions of power.

Navigating all this is weighing heavily on me. I told myself in 2022 that I’d go as far as I could go in poetry and that I’d stop if it became clear I needed to. I would just stop. I said this to myself as if it would be simple, stopping. It isn’t. Continuing isn’t simple, either.

Faltering

In a place that’s lacking in diversity, one that doesn’t cultivate an inclusive mindset at the individual and collective levels, broad-based cultural sensitivity and cultural literacy will falter. That’s what it comes down to for me as I look at Southern Utah through the lens of systems theory.

The cultural literacy here is concentrated in teachings and the culture of the LDS church and influences everything and everyone, even those outside the church. That focus leaves those who aren’t members out of social events and social support systems while tending to reinforce small-minded and small-hearted views, at least in this part of the state, about those whose identities aren’t accepted, aren’t represented, or have been historically misrepresented in and by the church. If you don’t believe that, ask me when slave day stopped being celebrated at the local schools. Ask my why it ever existed here in an area folks still insist on calling Dixie. Ask me about the Confederate flags folks fly and display on their trucks.

The selective cultural literacy here is why I experienced no fewer than twenty-seven frictions when attempting to participate in a local literary event, from five different folks centrally and peripherally involved in that event, on seventeen different occasions. Those frictions rose to the level of discrimination in eight cases. The others involved invasive questions about my gender and sexuality, othering, negating, trans erasure, and trauma erasure. The forms of discrimination included ableism, sanism, and gender- and sexuality-based discrimination.

Nobody here can see what happened. They literally can’t see it. The lack of cultural sensitivity and cultural literacy is what allows folks to feel entitled to probing about my gender and sexuality as if I owe them an explanation, to treat me like I’m scary because I have bipolar, to tell me talking about my trauma isn’t appropriate, and more. These attitudes and behaviors also have the effect of expunging me and folks like me from local events, from the local university, and from the area as a whole.

But they really don’t see it. They have no idea. To them, I’m a troublemaker, a problem, someone who’s just hastily making assumptions, not responding to a suite of valid experiences and real erasures that have been occurring for eight months and, outside this event, for five years, which is when my husband and I moved to Southern Utah.

It won’t change. This place won’t change. But what’s happening here underscores why we need more understanding, not less. More inclusivity, not less. More cultural literacy outside of one specific culture, not more of the same. We need these things across the country, but Southern Utah is where their effects are felt earlier than in other places and more painfully and more deeply and more consistently, all outside of a larger supportive community. There is no larger supportive community here unless you believe those intent on gaslighting you into thinking there is or that there is no issue here that isn’t all in your head.

Walks Close to Whining

In this collection you are saying something that needs to be said and you are saying it in language that cannot be ignored or hidden from. The truth told with a very sharp knife. Yet part of this truth is that women allow this shit to go on. Do we not allow men to have the power you describe? It seems to me that as you rip men a new one—the same needs to happen to women. What in the hell are we doing—why do we let our power go? Without this emotional component the collection walks close to whining (in my opinion) which always occurs from a place of weakness. Yet this collection would seem to be aiming at a recognition of the power imbalance between men and women and the way men frequently force their will on us—and then a turn toward a new balance. But the only way that will happen is if women acknowledge their complicity in the imbalance.

The publisher of one of my collections, which dealt with CSA, including my own experiences and those of my best friend when I was young, made the comment above about it in 2011 after soliciting the work from me. I never should have allowed them to proceed with publishing the collection. I just came across the comment again while searching for something else in my email. That publisher was a woman, and it wasn’t Juliet Cook or Margaret Bashaar. It speaks to myriad ways in which some women and female-bodied poets who believe they’re empowering themselves and others can be misguided and do harm. It’s not just men in poetry who harm others and the community as a whole.

Through her lens, my work about CSA walked close to whining and needed to discuss power dynamics that don’t apply to children who are being harmed, including dynamics forced into the strict binary of male and female, one that’s oppositional, not dialectical. The speaker and others who inhabit the poems aren’t even male or female. That isn’t called out ever. As a nonbinary person (who was publicly identifying as trans at the time), it’s not how I envisioned them.*

And this was from someone who wanted to publish and ultimately did publish my collection. Again, I should have yanked it. She ended up quietly removing the collection at some point without telling me or preserving the files in any way. It was a digital collection with custom artwork. I would have liked to have had it, even just for myself. I believe I know why that happened. In any case, it was another form of erasure of me and my work.

Also, to those who say things like, Your work just isn’t for everyone, and that’s OK, please see that this assessment isn’t about the work, nor was that the case with the poet I just had the dreadful, unwanted interactions with. It’s fine for work to not be right for someone. These kinds of interactions go deeper than that, so please quit uncoupling literary assessment (which isn’t even what this kind of thing is) from personal attacks and assessments that go far afield of the work.

* The word nonbinary wasn’t yet in use, and trans felt like a better fit than saying I was bisexual. I knew gender was involved, not just sexuality, and the binary nature of the word bisexual wasn’t a good fit for me anymore, either. I knew both gender and sexuality were on a continuum. I was trying to find the language for my place on those continua as language was evolving to be more inclusive and less oppositional. Also, people can move around on these continua over the course of their lives. For instance, I’m asexual at this point, which used to be the last letter in LGBTQIA+, though it has largely been truncated away, along with the interior T, which has disappeared for political reasons. I never would have identified as asexual in my 20s or 30s. But bodies change, minds change, and age changes, which changes a lot of things about body and mind—in my case sexuality, hence my move to the term queer, which covers the waterfront where gender and sexuality are concerned. More specifically, thanks to a friend, I’ve started using the term neuroqueer because it’s not only inclusive of all my forms of neuroatypicality, it also suggests a relationship between my neuroatypicality and my sexuality and gender. For me, that relationship is real and meaningful.

The one thing I agree with in this publisher’s assessment is that I should not have allowed her to frame my work the way she did. It was a great publishing company. I didn’t think I’d ever get an opportunity like that again. I sold myself, my work, and my values, and I fawned at her the way I learned to in order to survival the unthinkable as a child. That will never happen again. I’d rather live in one of DT’s camps than live a life that’s bought and sold, one in which I’ve been bought and sold.

I will add this one last thought: I recognize that some of the same forces that shaped me in my life may have shaped this publisher in her life. I realize she’s been through it, probably for decades now, the way women, those who are female-bodied, and other oppressed and marginalized groups have been and continue to go through it. But she was still wrong in this instance. She foisted a huge thing on me and my work. Anyone can be misguided. I understand that more when someone isn’t coming from a place of completely (or at least largely) unexamined privilege. That means I do have empathy for her. I still shouldn’t have published with her.

Ashfall and a Window Strike

It rained ash on and around our home last night. I haven’t experienced anything like that since 2011 in Walla Walla, Washington, when a flaming tumbleweed breached a controlled burn line and set a field, then more than just the field, ablaze. Even then, the ash-rain never reached our home. We just ended up in it one day when we went walking in a nearby town. Ash-rain isn’t real rain—of course not—we’re in a drought. It’s just rain in the sense of raining down, the way water does but isn’t.

The smoke is affecting wildlife, including a juvenile Bullock’s oriole who hit a clerestory window this morning on the north side of our house, despite our following the method David Sibley uses at his home for protecting birds from window strikes. We have custom screens on all the large windows to protect the birds, but we draw vertical lines every four inches on the outside of the clerestory windows with a Sharpie. (As of this writing, those lines are now two inches apart.) This allows birds to see the windows and thereby realize they aren’t passable. They also interpret the vertical lines as branches, so they tend to steer clear of them. This method works for us, or at least it did until this morning when the young oriole, perhaps disoriented or otherwise weakened from the smoke, tried to fly between two of the Sharpie lines.

It was a hard hit. We heard it throughout the house. We have a protocol we follow when wildlife is in distress. Within minutes, the nearest wildlife rescue had been called, the bird had been placed in a special container we use for transport, and I was on my way to Wild Friends, a subset of Best Friends, over in Kanab, Utah, so the bird could get medication to prevent brain swelling and gabapentin for pain management—that is, if they survived the eighty-minute drive.

I would never drive to Kanab, especially not this time of year, because the only roads there and back are festooned with wildlife who rest on the asphalt, cross the asphalt, fly over the asphalt, and otherwise end up in harm’s way with every passing vehicle. Right now, many of these critters are young, or littles, as I call them. They’ve never seen cars before and don’t know the danger they pose. Juvenile birds don’t fly well and haven’t learned to stay above the cars. Baby squirrels think the roadways, which are cool in the morning, are a great place to hang out and socialize. The roads to Kanab are human intrusions into lands that belong to critters. We don’t belong there. I didn’t belong there. But I knew the oriole, who lives in my yard and fledged recently, would die without help. So I took the risk and drove carefully and stopped when animals were sitting in the road and slowed down and veered this way and that as needed and even slowed nearly to a crawl at one point with my hazard lights on because there were too many animals for higher rates of speed to be safe.

I nearly hit half a dozen animals. I navigated around, beside, and under another hundred or so. Then, right where Arizona turns back into Utah and the speed limit jumps from 25 miles per hour to 45 miles per hour, I saw what I thought was a rock squirrel sitting up in the middle of the oncoming lane. I slowed but couldn’t stop because the guy in the truck behind me was following me too closely. As I approached, I assessed the situation. The squirrel didn’t move. I thought I could continue, slowly, in my lane, and everything would be OK. It wasn’t. The squirrel darted in front of my car just as I passed, and just in time to be hit by both my front and back left tires. I heard it. I felt it.

I stopped to collect the squirrel and take them to Wild Friends with me if there were signs of life. There weren’t. And it wasn’t a rock squirrel. It was a stoat, a kit at that. Not even an adult. I killed a tiny, beautiful stoat, one of my favorite animals on Earth, whom I’ve never seen in the wild until today, when one was lying in the road where I hit them.

I should say lying in the road lifeless. The kit was dead. Body trauma, head trauma. I thought of William Stafford’s poem “Traveling through the Dark,” only this was daytime, and it was a stoat, not a deer, and I’m the one who hit them, not just the one who came across the body. I also thought about how every being that lives causes other living beings to die. Today, that fact was laid bare. I, a living being, helped an oriole live, but in doing so, I caused a stoat to die.

I moved the stoat off the road so ravens and vultures wouldn’t end up getting hit while trying to feed on the body and so people wouldn’t swerve trying to avoid ravens and vultures because to swerve might make more dead, as Stafford says. I also didn’t want the stoat’s body to be hit over and over again. That sort of thing makes me sad.

I apologized to the kit and said a small prayer before returning to the oriole, who needed to get to the rescue for treatment.

About eleven minutes from the rescue, the oriole roused and wanted nothing to do with being inside a box inside a car with me. It was a good sign. The rescue staff said the bird was old enough to get a full dose of all their medicines and that, based on how they were acting, they would most likely make a full recovery. I said Jon and I could come back for the bird and release them at our house. Wild Friends likes to make sure that happens whenever possible. I’ve known that bird since they fledged. I know their whole family. The wildfire here may make coming back impossible, which I understand. Fresh air is important, and we don’t have that right now. But I hope they recover and can come home.

May the fire stop burning. May the smoke clear. May ash-rain be replaced with real rain. May the oriole survive and come home to Toquerville. May the stoat rest in peace. May love restore what we fear we’ve lost forever in our lands, our hearts, and our minds.

—

The birds who sound like they’re laughing at funny jokes are actually Western kingbirds, not Bullock’s orioles. My bad for providing inaccurate information about that in earlier posts. Bullock’s orioles sound kind of like they’re saying, Oh, no! I dropped all my marbles or Look, my marbles! Right here. They are here, here, here.

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The drive back from Kanab, Utah, through Arizona after dropping off the injured juvenile Bullock’s oriole and hitting a stoat. Highway 237. Outside Pink Coral Sand Dunes, July 11, 2025.

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I found out there’s another way to get to the wildlife rescue in Kanab, one that doesn’t require driving through the area that’s so densely populated with wildlife. I didn’t know about the other way. I should have known. Friday would have gone very differently. I wouldn’t have hit and killed the stoat. I also found out that another wildlife rescue has opened in Enoch, which is much closer to my home. I don’t know if they take small birds or if they have the medicines needed after a window strike, but I’ll call them and find out tomorrow. It’s hard to be the reason another living being is no longer living.

—

Some deaths hit me hard. Andrea Gibson’s is one of them. I didn’t know Andrea, but I knew their work and their heart and the spaces they created for others in this world. I haven’t really moved since I learned Andrea died. I want the world to be kinder than it is, as kind as Andrea was. My heart is with all living beings and the Earth we share, which means it’s with Andrea, who is everywhere now.

In the morning, I’m bringing the Bullock’s oriole home from the wildlife rescue so she can join her family and the other orioles who are summering along our creek. Jon is coming with me. We’re taking the long way, the one that avoids the most sensitive wildlife habitats between our home and Kanab, Utah.

The oriole made a full recovery thanks to the rehabilitators who cared for her. She’s enough to get me moving again. Life is motion. Love is motion. Everything is motion.

—

We just got back from the wildlife rescue in Kanab and released the Bullock’s oriole. She flew right into the tree where her family has been hanging out. It might be the tree she was born in. The other orioles were in that tree yesterday evening singing their comical tune as the sun set. Orioles always sound like they’re recounting funny stories to one another, then laughing hysterically. It feels like they’re making fun of humans, which is fine by me.

The orioles didn’t know they’d soon be reunited with the juvenile female they thought they’d lost. They didn’t know she’d return at all. Five days is a long time to be gone and then appear again seemingly out of nowhere. She’ll never be able to explain what happened, and they wouldn’t believe her if she could.

When we got close to the tree and she could hear the other birds, the oriole started to dart around in her enclosure, eager to fly free. Then she did. All I saw were her spread tail feathers as she flew away, her body a noisy propeller trilling through the air.

I’m actually not certain the oriole is female or a juvenile. That’s what the rescue believes, but it’s difficult to tell immature males, immature females, and mature females apart. She’s duller than I would expect a mature female to be, and she lacks the eyeliner I would expect to see on an immature male. There’s no hint of black on her throat, which immature males can have, though probably not birds as young as I believe she is. She had the same clumsy flying behavior I’d seen the fledgling orioles, presumably her and her littermates, exhibiting a few days earlier. Taking all these factors into account, a juvenile female is also my best guess.

Her age matters because she needs to get back to learning how to be a bird and gain as much experience as possible before migration this fall. Five days is a lot of time to lose when you’re new to the world and need to get everything figured out pretty quickly in order to survive. She also needs to decompress from the stressful experience she’s had. I hope she has the time she needs to recover, learn, grow, and thrive.

We have bird-collision film approved by the American Bird Conservancy on order for our clerestory windows since the lines we drew on them didn’t prevent this strike. In the meantime, we’ve covered each window with a thick layer of soapy film. We can’t really see out of them, but that’s fine. I will wrap my entire house in blankets if it keeps birds like this oriole from being injured or dying.

—

Two Bullock’s orioles, a male and a female, just landed in the shrub in front of my window. I think the female is the one I took to the wildlife rescue for treatment after a window strike and later released here at our home, which is also her home. If you felt the ground shake a little wherever you are, it was from my heart exploding with love and joy. The epicenter of that seismic activity was Toquerville, Utah, latitude 37.2310016, longitude -113.2756992.

What I Do

I want to understand the origins of the universe, but right now understanding the origins of hate is more pressing.

I want to write a poem about this, but I have so many windows open on my computer that I have a practical universe of knowledge crowding my screen or maybe crowning my screen, trying to break free.

If I don’t close these windows, my computer is going to crash. Typing has already slowed to a crawl, like time does when we’re in danger and every second counts.

I don’t have time to wrap my head around a birth inside a massive black hole that itself was situated inside a larger parent universe than the one we know, barely know, want to know, can never know.

How much more, I think, could go wrong inside an even larger universe? While physicists try to rewrite the laws of physics, I don’t even have time to write a poem because that’s not what I’m doing today. I’m closing windows. I’m reading things later or never. I’m skimming poems on various pages and either being born again inside them or throwing up my hands and yelling, I don’t like this poem at all before clicking the little x at the top of the page.

What is born from collapse can never not know collapse, can never not return to collapse, I want to say to the nearest physicist while wagging my finger. We had one here in Toquerville three years ago. A particle physicist. She lived in the house next to ours. She and her husband, an assistant attorney general here in Utah, made a killing off the house during the pandemic, bought low and sold high, then left all us Southern Utah townies drought dry.

I tried to tell her wild birds were going to die because she’d placed her feeder in the kill range, which is between 3 and 30 feet of her home’s windows. She asked my husband what he did for a living but not me, all while making sure we both asked her daughter what she liked to do so girls wouldn’t be left out of conversations about how people pass their time.

Later, I watched a Ted Talk the physicist gave in which she said she was discriminated against in science because she was a woman. She never did move her feeder. I trilled when she and her husband sold their place. She made fun of my husband for not understanding her joke about the Large Hadron Collider. It was a bad joke. She erased me in her conversation about girls, women, and erasure. Jon and I were like lower-dimensional objects being absorbed and dissolved by a higher-dimenstional one. That’s a thing, apparently, that physicists have observed. Or believe they’ve observed. Or theorized. Or hypothesized. Or something. Ask our no-longer neighbor.

I want the physicist to see this post. I want her to know how she othered Jon and me even as she spoke publicly about being othered. She and her faculty appointment. She and her dull humor. She and her dark matter.

Not all collapse ends with a singularity, I gather as I glance at the window that contains the story I’m trying not to read or understand. Sometimes, there’s a rebound and expansion occurs. In this model, the force is gravity. Purely gravity. No speculative forces or particles needed. No dark energy or dark matter. Imagine wasting your whole professional life on something that may not even be there at all. I think that’s what it’s like to be a poet, too. To create anything. Hell, just to exist.

If expansion is our future, so be it. Let this all begin again. I hope in that future, whatever me-like energy exists has the guts to be a stronger force than that of a physicist who weaponizes casual conversations so she can feel exponentially larger than those around her.

Oh, look. I feel something like hatred. Let me understand that, universe. Let me explore that energy until I can release it or until we are all released from this, whatever this is, this thing we barely know, want to know, can never know.

By the way, physicist. I’m a writer. I write about folks like you. That’s what I do.