Poetry

For Carolyn Kizer

My severe hypothyroidism is taking a toll. For the past two weeks, gobs of hair have been falling out every day. I’ve been in bed since Friday. I need to have blood work done to see if the new dose of thyroid-replacement medication is improving things at all, but I didn’t have the energy to call the lab to schedule an appointment because the required opening up the cabinet where I put the lab paperwork, pulling it out of a stack of papers, finding the phone number, dialing the phone, and talking to someone. Too much. Also too much: doing my immunoglobulin infusions, the ones that keep me alive; preparing for the support group I’m facilitating that starts this week; hydrating; exercising; bathing; eating.

In this hypothyroid state, which has been creeping up on me since last fall, I’ve also been thinking a great deal about poetry and what I’m doing as a poet. A hypothyroid state isn’t the best one to be in when having these thoughts, but anyone who’s been hypothyroid knows these are the kinds of thoughts one has when hypothyroid.

Here’s my conclusion. Poetry is, at its worst, a discriminatory and harmful system. I’ve experienced discrimination and harm firsthand. But the system being what it is doesn’t make it one I can walk away from. I’m a poet. Being a poet isn’t something I chose or can unchoose. It’s a way of being.

When I was close to death in 2022, writing an imitation poem after Richard Siken is what brought me back to life and what allowed me to continue living. There was no question for me then that I was bound to poetry, to being a poet. It doesn’t matter that it was a Richard Siken poem. It could have been any poem, imitation or otherwise. I time-traveled in that poem. I found my way into and through time itself, not because I’m special or any given poet is special. What’s special is poems: who we are in them, who we aren’t, what we see, what’s beyond seeing. That dissolving when we need to dissolve. That emerging when we need to emerge. That liminal space between dissolving and emerging where we can live more expansively.

I came back to poetry. I can’t leave it again. I think my presence makes poetry better, not worse. I’ve written about what happened to me in poetry and beyond. I see issues at the systemic level and call attention to them. Because I’m older, I have a longer memory than a lot of poets do, which gives me insights others may not have. I make choices about where to send my work and who to associate with accordingly, which is necessary when poems enter the world of poetry, that less-than-optimal system that can and does do damage.

I’m neither a sycophant nor the poetry police. I call things like I see them. I’m not trying to make anyone feel bad about the unexamined biases that exist in poetry or the ways in which they may be contributing to those biases or at least not helping alleviate them. I do think we should all pay more attention to the institutions and organizations we support, the people we defend, and how we talk about those who are exploited and otherwise victimized within the system. But I know I can’t change anyone or the system as a whole. I can only control how I navigate it and who I am within it.

I suspect things would be different if poets didn’t have jobs to worry about or tenure or getting published or securing money for their projects or any of the other pressures that keep the system humming along without much change over the past several decades. I’m not fettered by any of that. I just read and write poetry.

I still remember Carolyn Kizer telling a group of poets that another famous poet tried to rape her. It was at a dinner before a reading she was giving. I also remember how the other poets at the table responded, which was to react in a flustered way and quickly change the subject. That was nearly thirty years ago, when I was just starting to write poetry. But what happened to her occurred decades earlier.

Poetry has had systemic issues that affect individual poets for a long time. These issues didn’t start yesterday, and they won’t end tomorrow. That’s why I’m not going to stop writing poetry or talking about what I’ve experienced and seen in the poetry community. Carolyn Kizer was talking to me that day in 1997. She was warning me. I heard her. I try to hear everyone who speaks.

The Portal

I dreamed the poetry community was a psychosis-inducing haunted mansion that all the poets had to live in together. My room had a closet with a secret panel. Behind the panel was information about a poet who’d died in the 1800s. Behind that panel was another panel with warnings about not ever opening the second panel ever no matter what. The second panel popped open on its own. Behind it was the corpse of the poet laid out in an open casket. It was Emily Dickinson in her white dress. Behind the casket was a tunnel that led straight down to hell. I bumped the casket. Dickinson’s corpse slid down the tunnel. I almost followed but braced myself against the tunnel’s walls. Once I was back in my room, I sat on the bed and vowed to tell none of the other poets what had happened. The panel covering the tunnel had no latch. I waited for whatever was going to come through to come through as fear crawled up my spine. That fear was the devil. Downstairs, the other poets laughed and drank and carried on, unaware.

              Death is not a jinn.
              It’s a hollow limb snapped off
              the tree, a portal.

The Fog

Writing used to be my way of working through things in order to discover beauty, complexity, and meaning, as well as what escapes meaning, to feel those textures and colors the body and mind together send to the surface like koi in a pond waiting to be fed. All those little mouths mouthing at once. All those fat bodies and watery fins. So much movement but not without pattern, like music.

Writing used to be my music, its notes distributed like lilypads the bodymind somehow reads through touch, for that’s what language is. Something we touch, not something we see. Something we touch and hear.

I worked hard to learn how to write despite my dyslexia. To write, to read, to understand. I wanted into that world because of what poems could do.

              The fog comes
              on little cat feet.

If fog could be a cat, I could be anything in language, not what I was in my home. I didn’t have to be that child or a child at all. I could be something that made sense or was so far beyond sense that sense wouldn’t matter anymore. I wanted to do that with language, to unlock its magic. It took decades, but I did. I think I did.

I’ve come to identify with being a poet and writer, with sitting down at my desk and writing every day. I told people poetry was everywhere, always, like a faucet you can just open up and there it is.

I don’t feel like that anymore. I open the tap and there’s nothing. People are cruel. I’ve encountered more cruelty in the past three years, which is when I started writing again, than in the other twenty years of writing combined, with the exception of some awful things that went down in the poetry community in 2015. I’ve been personally threatened, accused of appropriating the term CPTSD (as if my trauma isn’t real), attacked both for not really being neuroatypical (based on how I appear) and for using the neurotype framework, told nobody should listen to me because I have bipolar, that I’m morally unclean, that my writing is doing harm, and more.

That’s on top of the more general comments people have made in response to my writing: things like everyone who has a mental-health label should be round up and forcibly removed from Utah or queer people are evil and satanic.

               It sits looking
              over harbor and city

These comments are like gargoyles draining the life from my writing and from me as a person. They go well beyond discourse. They’re attacks. They’re erasures. They’re discriminatory. They’re scary.

They’re what passes for engagement these days. We’re all seeing comments like this day in and day out, especially on social media. Some of us are participating in it in our own ways. Most if not all of us are negatively affected by it. Even outlets that are designed to give us a voice can end up sending us to slaughter with every piece of ours they publish. For civil discourse? For freedom of speech? Or for clicks, shares, page views, and increased reach? If an outlet wants to keep you angry at those who also trying to speak to the larger issues in our culture, our country, and our communities rather than catalyzing you to also speak and act in response to those larger issues in your own way, ask yourself what that outlet’s motives are and what effect the infighting it generates has on anyone’s ability to advocate for anything—or even to survive what’s become increasingly difficult to survive.

How is a writer who, for years, wrote for some of the largest medical organizations and research universities in the country, as well as an esteemed consortium comprised of the top medical and research centers, in this position? Who’s routinely had work in competitive literary journals and with well-regarded indy presses? Some of this is coming from social media and website comment threads and is in response to my essays and opinion pieces. Some of it’s happening with friends on Facebook, namely people who read my work and then project things onto me so that, when I am not what they think I am or what they want me to be to them, they can and sometimes do become irate, belittling me and my poetry.

This is how things are now. And they’re going to get worse. But I don’t have to keep saying OK to it. I’ve already started saying none of this is OK. Now, I’m grieving on many levels—what poetry and writing can and can’t be, what kinds of audiences it can and can’t have, what the writing community and our communities in general are and aren’t—and I’m waiting for the faucet to flow again. That may be the only faith I have left in me. I believe I can find my way back to poetry, and poetry can find its way back to me. I have to believe this to survive.

              on silent haunches
              and then moves on.

May the fog that obscures poetry move on. May the fog that keeps us from seeing each other move on. May the fog that blankets our entire country move on. Let it move on. Let it move on.

—

I appreciate my friends on Facebook who feel their way through the world using language and take the time to communicate thoughtfully. You are the antithesis to much of what passes for communication these days.

The poem used in this essay is “The Fog,” by Carl Sandburg. It is in the public domain.

The Order

I want to talk about the concentration camp being built in Utah, where I live, that will warehouse people who are unhoused and force treatment on them for real or perceived mental-health issues and substance-use issues. I want to compare it to the Topaz concentration camp that was built here in 1942 and operated until 1945 under Executive Order 9066, whose name I know because I have to know it. To survive. To advocate. To resist. To not repeat the past even as we repeat the past because others don’t know the name Executive Order 9066 or what it did, what it made our country and its people: ugly, cruel, inhumane. Those who don’t (or don’t want to) know about EO 9066 also may not know that another EO made this new concentration camp in Utah possible, the one written July 24, 2025, whose official title I won’t mention because it doesn’t describe what the order does, what it enables. It would be better if it just had a number, not a misleading title. It would be better if it didn’t exist at all.

But I can’t talk about the concentration camp because my language isn’t welcome, especially among those who also have lived experience with mental-health issues. Those I most want to communicate with will attack me for using the diversity model to give context to what I’m conveying. Those of us with lived experience with mental health have different experiences and use varied frameworks for communicating our experiences. We are and should be polyvocal. Yet there’s a growing push for monovocality—for one way of speaking, for one way of perceiving and communicating human experiences. So I’m not talking, not the way I want to be or to the audience I want to talk to. At least I have this loose take on the haibun.

              The age of pastures
              is over. Detention is
              involuntary.

                            Your right to exist
                            on your own terms ends now.
                            You belong on outskirts.

              Get used to the word
              stern. Your life is a concrete
              slab if you’re lucky.

                            Say no and go to jail.
                            What is this if not jail
                            by another name?

              Like a rose. You think
              you’re like a rose when really
              you’re a line item

                            in a multi-million
                            dollar budget. You’re our
                            ticket, our future.

              Containing you is
              business. Here’s a pill.
              We’re sorry it’s come to this.

                            Swallow. Concentrate
                            means gather. We gather you
                            today for Holy

              Capital, for the bottom
              line. You’ve lost your right
              to leave, so don’t try.

Called to Serve

When Sandra Cisneros spoke at the Desert Nights, Rising Stars Writing Conference yesterday, I felt like every poet and writer in the audience was being called to do our best and be our best as creators and as human beings. I felt a sense of purpose and responsibility, the way our country’s leaders used to make me feel when I listened to their most inspiring speeches. I haven’t felt that way in a long time, and I’ve never felt that way as a poet: encouraged to live and write thoughtfully, mindfully, with presence, and with clarity.

Worthless Words

These are photos of the sculpture at Glore Psychiatric Museum in St. Joseph, Missouri, that I incorporated into a poem titled “The Sculpture.” (It was first published in Muzzle’s 2015 mental-health issue as “The Letter.”)

A patient at Glore made the piece when the hospital was still in operation. I’m visiting the museum in the spring to document the writing on each piece of foamboard along with a diagram that shows where the pieces are situated in the work.

One of the museum’s employees took these photos and sent them to me. I haven’t seen the piece in person since 2015. I’m happy it’s still on display and in good condition. Anything can outlive us. Anything can matter after we’re gone, just as we matter while we’re here. These words are not “worthless,” as the sculpture’s creator says on one of the foamboard strips.

Frictions

“Nothing about us without us.” That’s a guiding principle in the disability-rights movement. It applies to the mental-health justice and recovery movements as well because mental-health issues are often disabilities for those of us who live with them—sometimes because they are truly disabling and sometimes because our cultures disable us, our communities disable us, and those around us disable us because they don’t understand us (or try), don’t include us (or try), discriminate against us (often because of unexamined or dismissed bias), and subject us to their versions of who we are, which happens daily through language and actions and the way real and conceptual spaces are structured.

I bought a clicker, one of those old-fashioned ones that employees at the academic library where I worked in college used to track how many people came in each day. I’m going to use it for two weeks and track how many times I encounter instances of sanism, both in real life and on social media. I started doing something similar last week by making ticks on a piece of paper. But I like the idea of using a clicker in part because it’s an object I can hear and feel as I operate it, in part because it fits in my hand, and in part because it’s a bright color. I have the kind of sensory processing that appreciates those things. The clicker also feels more formal and official, and I can use it even when I don’t have a pen and paper with me, which makes it more practical. I may include notes about each instance, including the context, date, and time.

OK, I actually bought six clickers in an array of colors because they came in a set, but that’s beside the point. You may think that’s too many clickers. I don’t. I’m mildly tachycardic right now just thinking about their arrival. There’s a black one and a green one and a pink one and a red one and a white one and a yellow one. I’m actually trying to humanize myself in this paragraph and the last one because I made some big assertions in my opening paragraph, the kind that make people (in this case me) unlikable mostly because they fall under the information you didn’t ask for that I think you should know category but also because they may apply to you or those you know rather than some far-off “they” that we can all join in both hating and distancing ourselves from together.

“Nothing about us without us.” I take this principle seriously. It’s like no taxation without representation, only it’s like no characterization, no proclamations based on misinformation, no policy decisions, no representations in the arts and the media, no casual or formal conversations, no application of diagnostic labels especially when used in a pejorative manner, and no limited or completely erroneous lay insights without our representation. That means we are centralized, not marginalized. We are present, not absent. We are heard, not talked over, not silenced, not discounted. It means if we say there’s an issue, you listen. You don’t shift in your seat or put up a wall or fail to respond or shift blame to us. 

I’m no longer entering rooms where there are frictions only I appear to see and concerns only I appear to discern, one thousand frictions that are invisible to those who are not queer or neuroatypical or living with trauma or serious mental-health issues. That doesn’t mean those frictions don’t exist. It just means they may not exist for you, and if that’s the case, I’m happy for you. I’m glad a room is just a room is just a room. But your inability to see what others see, feel, and experience in those rooms—your failure to cultivate literacy about the things those who are oppressed and marginalized have to see in order to survive every day—is part of why rooms continue to not be the same rooms for you that they are for others.

These rooms are exhausting. Click click click (click click). If in addition to instances of sanism, I count instances of trans erasure (click), ableism (click), neurotypical bias (click), discounting of women and those who are female-bodied (click), jokes about diversity (or the lack thereof) in a space (click), and more,* there will be no end to the clicking in too many rooms, even rooms full of poets.

It’s impossible to know which rooms will be full of frictions. I’m trying to figure out what clues I can look for ahead of time and to develop a matrix I can use so I know when to call any given room quits. I no longer believe I can change hearts and minds with my presence, my words, or my work. I feel like, more than ever, I’m in a box called “crazy” and that terrifies people, no matter how I live, what I accomplish, how I treat others, or how wonderful folks think I am before they learn I have a DSM diagnostic label or that I’m queer or that I’m neuroatypical in numerous ways. I’ve seen that semipermeable membrane more times than I can count: the one where inclusion becomes exclusion and being part of becomes being removed from.

I feel like my attempts to address frictions only lead to more frictions, many of them in the form of irritation, denial, resentment, and even fear and disgust. But I will do what I can until I realize I can’t do any more. Then I’ll leave before I accept my own erasure and even start erasing myself. I can’t abide that or any other form of complicity.

I’ve mainly seen this level of friction in Utah. At least in other places, my experience has been that I become more human when I talk, when I write, when I take part in things. Of course, I was largely in the closet about my bipolar until two years ago. That may be part of why people accepted me as a human being and not as an amalgam of their stereotypes, biases, and misunderstandings about bipolar. Who knows what those places are like now, in this new world that has us all doing the work of marginalizing and dehumanizing others on some level.

The rooms with poets are the ones I must approach with care above all the others because I need to believe in poets, even if that belief is misguided. I’m not ready to let go of that yet. I know better. I think I know better. I want to know better but, more than that, I want to be wrong. I want to believe in poets the way some people want to believe in God. It’s like that for me.

I also can’t help but see something else in those rooms, wherever they’re located: a kind of arts-driven traveling medicine show meets multilevel marketing network. It’s not quite either of those things, but it does feel like a system that created itself and now uses its existence as a way of validating itself, one that enriches the few and relies on the many, and one that’s unhinged from actual oversight or governance by the institutions many of these poets actually work or once worked for, which means those institutions will not act based on anything that happens, up to and including sexual assault, in or near those rooms. It’s hard not to see it like that, especially after some of my personal experiences in such rooms, which makes it even harder to find spaces that are safe and poets who are doing good work in those spaces.

—

* I’m just listing ones I’ve encountered recently.

Doffered

Meanwhile, locals are sharing a hate flag—you know the one—in Facebook comments on a news story about someone here who’s trans, including one made by arranging four pride flags in a particular way. Tell me two poets misgendering Andrea Gibson over and over at a local literary event is no big deal, especially in this larger context. Tell me I need to be more forgiving. To forget. To get over it, all of it. To at least raise my concerns quietly, privately, and with decorum and grace. Tell me I’m the problem. Tell me.

Quiet never got anyone anywhere other than silenced, gone, or dead. What others say openly will never be a secret I carry. I’m done bouldering men’s shames. They won’t go with me to my grave. Hell, I won’t even have a grave. I’ll be the dust my life partner holds to the Southern Utah wind. I’ll be southwesterly then. You can sing a song to the four elements when the time comes. Right now, there’s work to be done. Do it with me or don’t. Draw scars on the face of the world if that’s your thrust. Make hate not peace if you must. Fulfill your flimsy purpose like a lace doily under a dusty candle in an abandoned cabin in some forgotten town. Be dimity. Go forth and doffer. Tell me again why I bother.

One (Sanist) Country for All

I emailed the organizer of the poetry event I was at and sent a letter to the faculty member whose comments concerned me. I don’t expect anyone to support me or even understand my concerns, but here’s the letter.

—

I’m deeply troubled by your comments yesterday about Ezra Pound at the [writing conference]. Many accounts support the fact that he had a psychotic disorder. Whether you believe that or not, your venom toward him and your characterizations about what a terrible person he was were emblematic of sanism. Your comment about the authorities not being able to put him in prison or kill him were incredibly painful given that they came on the heels of Fox news anchor Brian Kilmeade’s comments two weeks ago about those who are unhoused or who have mental-health issues needing to be killed, not to mention the July 24, 2025, Executive Order that trammels the rights of those who are unhoused, have mental-health issues, and have substance-use issues.

I stood up and took a risk by sharing my own mental-health issues with everyone at the conference in the context of helping those in my community overcome stigma about mental-health diagnostic labels and lived experience only to see you reinforce stigma and nearly seethe over someone who had a psychotic disorder. You undermined everything I tried to do, and you made that space unsafe for me and for those like me who are just trying to survive, which is especially hard to do here in Utah if you live with a mental-health label.

Your flippant comment about Pound being placed in an asylum (because he couldn’t be put in prison or killed) denies the reality of those institutions and the myriad harms they did to people in this country and all over the world. My mother worked in an asylum-turned-psychiatric hospital as a nurse. She was also subjected to great harm in similar hospitals as someone who lived with bipolar.

Those places are not a joke, should not be talked about lightly, and were the setting of, and justification for, countless human-rights abuses. This is the crux of my work as a poet and essayist: uncovering and documenting abuses that those with mental-health issues have experienced and continue to experience.

I was ashamed of myself yesterday, of my existence, as you spoke. Then I realized what I’m actually ashamed of is you: your attitude, your words, and your carelessness. Nothing you shared is why I paid the expenses associated with [the conference], why my husband took time off work to accompany me there, or what I hoped to learn during the event. If you hate Pound that much, you should have chosen a poem that wasn’t by him. Then the entire rant could have been avoided.

I’m nobody to someone like you, but I’m writing this to you anyway because I’m somebody to me, and I’m somebody to those I fight with and for. I will not stop speaking back to bigotry and hate, even when I encounter it in the unlikeliest of places.

—

I should mention the fact that, thanks to the July 24 Executive Order and its erosion of decades of protections for those it targets, it is now legal to hold anyone who’s affected by the order, including those with mental-health issues, in prison indefinitely. That’s yet another reason the faculty member’s comments are poorly timed and extremely insensitive.

—

In response to a comment on Facebook about this note, which was initially shared there: One of my concerns about Pound is that scholars who are not experts in psychiatry have tried to make the case that Pound either didn’t have a psychiatric issue or was feigning one. We aren’t in a position to make that determination, both because we aren’t there to assess him and because we don’t have the background that would allow us to do so.

The literature I’ve read that makes the case that Pound did not have psychosis doesn’t hold up and betrays more about the person doing the long-distance, time-traveling assessment than it does about what it’s like to have lived experience with mental-health issues or to have had them during a time when diagnoses, understandings, and treatments were rapidly changing.

Pound was in the asylum right before my mother had her own experiences both as a psychiatric nurse and as a psychiatric patient. There’s actual overlap there in terms of the dates. My mother’s diagnosis changed many times, as did her treatments, as did the degree to which she was affected by her psychosis.

Pound is challenging, difficult, and complicated. We can’t complicate him more by injecting one or more layers of sanism on top of his story. This was a class about concision in the poetic line. We weren’t there to study Pound or fascism or history or mental health. We weren’t. And to bring that into the conversation in a way that lacked skill and an understanding of what’s happening today in the United States to those who have mental-health issues, with a proposed resurgence of asylums and all, is alarming, heartbreaking, and soul-crushing, at least for me.

Just a couple of months ago, I saw a prominent poet get a whole group of poets riled up here on Facebook about another poet who was clearly experiencing psychosis. The pile-on was awful and included sanist labels, attitudes, and outright attacks. We need less of that kind of thing in the world and in the world of poetry, not more. I feel the way Pound was discussed two days ago promotes more of that kind of thing in the here and now, not less.

Good Dreams and Bad Wakings

I had an exciting thought about a poem at the tail end of a dream, and now I can’t go back to sleep. The fact that poems thrill me after three decades says a lot about poems. Perhaps it’s not just the Earth and sky that last forever, as the band Kansas asserts. It’s also the verse, the line.

I will never remember what happened to me two years ago today because I was overmedicated in the emergency room at Intermountain Health after being turned away when I went to the mental-health access center there for help the day before, but not before the access center kept me in a loud, brightly lit room for 24 hours with no bed, where I was left alone with two male nurses. What a terrifying thing for someone with a history of abuse at the hands of men to endure while in a state of trauma about her childhood abuse. Also, sleep deprivation and exposure to lights and noise, including music, day and night are more in keeping with prison torture tactics than with mental-health care, but sadly, the two are often one in the same. Shame on Intermountain for engaging in such practices.

To top it off, they failed to give me my thyroid-replacement medicine for hours, thereby exacerbating the state I was in by disrupting my endocrine system, which in turn negatively affected my HPA axis. That axis is key to emotional regulation. I don’t have a thyroid thanks to thyrotoxicosis and cancer, so my thyroid-replacement medication is critical. My TSH was already 11mIU/L when I got to the access center. It should have been less than 1mIU/L. The access center made my hypothyroid state even worse by not administering my medicine in a timely fashion.

The ER overmedicated me after I said Joseph Smith was delusional. What I actually said was, “Sure. It’s fine when Joseph Smith does it, but not me.” I wasn’t being hyperreligious. I was deconstructing religion, in that moment Mormonism, as well as the unwritten social rules that appear to govern when someone is seen as insane, divine, or both. Crazywise, as some call the latter. But not, largely, Southern Utahns, and certainly not ER workers at Intermountain.

That’s the last thing I remember. I blacked out for more than a day, this one: September 9, 2023. It’s a dark, rough-hewn box I can’t open, but I think Sharon Olds’ devil from her collection Satan Says might be inside it. By that, I mean my father.