A turkey vulture glides over the creek, wings bent, head down. Fist-shaped clouds fill the sky. Am I the only one who braces a little all the time—in the Walmart, in the wildlands, in my home? You just never know what’s coming. When I was manic, I told the ER doctor my family was always exploding and floating. It’s true. The only way we survived each other was to float like vultures in our violent skies. Mania is a way to float when gravity’s fussy little hands won’t let go, when the weight of reality is unsurvivable. It’s a way up and out, all wing and wonder. Then you land, hard, the earth splitting you with its open hand. What’s my faith? That I’ll be broken again in this lifetime. I have faith in that the way the vulture has faith that he’ll find carrion before nightfall.
Mental Health
Weaponing Healthcare
Today, my primary care doctor opened my appointment by telling me that he believes I’m a hypochondriac. I’ve survived and/or live with multiple illnesses, including cancer. I live with more than one rare disease, including common variable immunodeficiency, which is serious and life-threatening. I have autoimmune diseases, renal insufficiency, postural orthostatic tachycardia, and arrhythmias. I’ve been treated for atrial fibrillation. I have aortic root and ascending aortic dilations. And I have PTSD and serious, life-threatening, bipolar.
All of this is documented in my medical record at Intermountain, where my primary care doctor works. It’s not in my head. It’s not me imagining health issues that don’t exist. They exist, and I’m attempting to address them. I worked as a medical writer and editor at some of the best institutions in the country for years. When I get a diagnosis or face a health challenge, I do research and have the determination to address the situation however I can.
Today, I was asking about my fasting blood glucose being over 100 for the past two years. That’s diagnostic for prediabetes, but none of my doctors brought the high results to my attention. High blood sugar seems like something I should be able to discuss without being called a hypochondriac. It’s especially important given that my chances of developing diabetes are 3 to 4 times higher because I have bipolar disorder.
I was also at the appointment to discuss my BUN level and (BUN/creatinine ratio). My BUN has doubled in the past 5 months and is above the normal range. Perhaps that’s not an issue, but given my history of renal insufficiency and the fact that lithium, which I started taking at a higher dose 5 months ago, causes kidney disease in about 26 percent of patients, the higher BUN level seems like a valid issue to raise.
Healthcare systems don’t seem to welcome the type of patient I am—one who’s female, has chronic health issues, and has a mental health diagnosis. We wait years or decades before our issues are taken seriously and addressed. By that time, we often have medical trauma because of how the healthcare system has treated us or our conditions have progressed, often irreversibly, because we were gaslit into thinking it must all be in our heads, a point our doctors belabor.
If I can’t approach my doctor for routine care, explanation of test results, or to discuss a health concern—the very things primary care providers are supposed to do with their patients—without the entire encounter being dismissed as evidence of a mental health problem, then why am I even trying so hard.
This isn’t the first time this has happened here in Southern Utah. Another doctor at Intermountain denied the fact that I had atrial fibrillation despite a preponderance of evidence that I had the condition. I was denied the medication I needed because of his insistence that I didn’t have afib. Yet another doctor at Intermountain tried to tell me my diagnosis of common variable immunodeficiency was unfounded despite the fact that I have extensive documentation of that disease from accomplished immunologists who know how to diagnose and treat immune system dysregulation.
I’m tired. I’m tired of this treatment. I’m tired of this sexism, this ableism, this dehumanization. I’m just tired. These attitudes and behaviors on the part of doctors cause unnecessary and severe iatrogenic illness for those of us who are subjected to them. I can’t carry that burden on top of my actual health and mental health issues. I’m tired.
No Hands, No Eyes
I’m dealing with so much trauma that it’s been destabilizing twice now in the past year. I’ve lived with trauma and the sequelae of trauma my whole life, but learning more about my childhood trauma over the past twelve months has been too much for me to process, cope with, or even understand.
Being in Southern Utah triggered a deeper understanding of my trauma. It’s an extremely traumatized and traumatizing place. Living there was like living in a vivid dream, a scary one, one that showed me more than I could process about my childhood, my family, and my father. An alt-right extremist leader who crossed boundaries with her own students didn’t help. A seventy-year-old who sent me an inappropriate photo of himself didn’t help. A trucker who tried to solicit me for sex at a family restaurant didn’t help.
People’s behaviors were so unreal there that I felt like I was being gaslit all the time. Reality didn’t feel like reality. Things that happened on a daily basis were unfathomable.
Law enforcement being sexist, dismissive, and steeped in LDS beliefs and values didn’t help. The domestic violence center only doing phone intakes and scheduling those intakes three days out didn’t help. Their failure to keep their intake appointment with me didn’t help. Not having anyone believe me about any aspect of my trauma or the unfolding situation with my husband didn’t help.
Nothing helped. Nobody helped. Even my therapist violated ethical boundaries by touching me during sessions, almost like she was laying hands on me to remove trauma from my body. She said she could do so because she was also a licensed massage therapist. That’s not the case. She also proselytized heavily during our sessions, diagnosed my husband without seeing him or treating him as a patient, and told me to leave him. When I needed my therapist, she pushed me deeper into fear and exploited my vulnerable state to foist a religious message on me and to dictate what I should do with my life.
My husband didn’t get support, either. Not really. He was shoehorned into the same theocratic system as me. He got messages about the man being in charge, husbands monitoring what their wives do, and so forth. He got a message about everything I was perceiving being untrue. And that’s just not the case. I have legitimate concerns about my husband’s behaviors, including those that also pushed me deeper into fear.
I ended up having a brief reactive psychosis/mania twice, once in February and again in September. That can happen when current traumas are too much for me to bear and my whole complex PTSD web is activated. I’ve been dealing with far too much medical trauma, community trauma, and domestic trauma for far too long. It’s been more than two years since I developed long COVID and the slew of health diagnoses that followed. Two years since I started writing and speaking publicly about the treatment of the LGBTQ+ community in Southern Utah. Just under two years since so much more of my childhood trauma came to light. More than two years of solid stress with my husband, and before that the destabilization within our relationship that the pandemic caused.
I tried so hard to make things work in Utah, to find a place for my voice, my writing, for me as a person. I tried so hard to fight for others so they could also have a place in the community. I tried so hard to overcome diseases and conditions that leave most people homebound. I tried so hard to fight for my marriage and for my husband. I tried so hard to heal from traumas that I now fear I’ll never be able to heal from.
I don’t know what to do. I know I can’t go back to Utah. I know I’m too physically ill and too emotionally destabilized to make it on my own here in Oklahoma. I know I can’t leave my husband behind because he’ll languish in that environment, which he doesn’t deserve. Despite some of his behaviors, he also deserves a chance to grow and heal. I know major changes need to happen so I don’t panic, dissociate, and have brief psychosis every time something else happens that’s traumatizing.
I’ve really never been more terrified, day by day, moment by moment, second by second. My whole world is gone. My whole life is gone. I’m like the speaker in one of my poems who loses everything a little at a time until there’s nothing, not even hands with which to write or eyes with which to read.
The Insomnia Diaries
Insomnia Diary Entry One: The price I’m paying for going to bed at 9:29 p.m. last night is waking to strange dreams and observations at 1:29 a.m. this morning. As if that weren’t bad enough, my weaving room clock is four hours slow for some reason, so when I dragged myself in here to write down my strange dreams and observations, it said it was only 9:29 p.m. I feel like I slept zero minutes, not two-hundred-forty weird, totally off, minutes. What do I do now? Eat? Vomit? I hate waking up like this, being off like this. My ear wax is melting. The light from this pink Himalayan salt lamp is too bright. I think I need to hydrate.

Insomnia Diary Entry Two: Based on my symptoms, I’d say my TSH level is moving around wildly again and that it has been since I started a new dose of thyroid replacement and a new form of the medication, this time an amber liquid that burns my gums. My body no longer knows what to do, how to regulate, its TSH levels. Within a month’s time, I’ll swing from clinically hypothyroid to severely thyrotoxic. This has been happening every month for a year or so.
Heart palpitations are back. Big tears are back, rolling ones like dew drops on iris leaves in Kansas on any given spring morning. Nausea is back. Exhaustion. Word-finding issues.
I forgot my maternal grandmother’s first name two days ago. (It’s Ruth, a word I always see as red, like a ruby. Ruth, my gem of a grandmother, my red velvet cake grandmother, my faceted grandmother throwing off an eerie red light, my film noire grandmother if the lighting was black and red, not black and white. And she, Ruth, surely was all of those things. So how could I forget her name, given all the ways synesthesia allows me to vividly see it?)
I confused trammel and trample yesterday. (I didn’t just make that play on words in a post for fun. I actually forgot the difference between the words, then turned my language-related malady into a wry comment on nature and culture, or something like that. A real poor-me of a post.)
I forgot traffic (n.) and traffick (v.) both exist. I’m still not convinced they’re both real, but the dictionaries seem to think so. I’m pretty sure I’ve been leaving the “k” off the verb form for years, a startling realization that leads me to ruminate about all the other words I must be getting wrong without realizing it. It’s like my late-90s disk and disc meltdown all over again. Floppy? Frisbee? C or K? K or C?
I’m so tired of being dyslexic and having auditory processing disorder and working memory issues and attention deficits with ironic hyperfocus and rumination and neat and tidy OCD and complex PTSD and regular PTSD and other flavors of anxiety on top of my primary immunodeficiency and autoimmune diseases and arrhythmias and dysautonomia and possible kidney issues and whatever the hell is going on with iron overloading and concurrent anemia and TSH issues that come and go without explanation and that cancer I had and may still have and the edema and the asthma and whatever else I can’t even remember at this moment.
It’s a lot, folks. It’s getting old. Y’all, I just want to move around the cabin of life freely and with some assurance that I’m doing an OK job at that. Instead, I end up back by the lavatories when I think I’m heading toward the emergency exit. It’s sheer disorientation much of the time: in my mind, in my body, and at the seams where my mind and body meet the world.
I was trying to make a play on the cabin reference above by following it with the lavatories and emergency exit references, but it didn’t work. It’s too jumbled, the image too burdened. I can’t bring myself to delete the attempt, though, because my body-mind really worked hard at it and I’m so exhuasted and here come the big dewy tears and this water isn’t hydrating me at all because I’m still a walking desert and my GI tract is full of angry fists that feel like a mob is trying to punch its way out of me and I’m so awaketired, so hungrynauseated, so tinglenumb, that the cursed trinity (cabin/lavatories/emergency exit) isn’t going anywhere. It’s staying put. It’s evidence of and a testament to my dysfunction.)
All the hunger all the time and all the eating all the time without moving the needle on the scale at all are back. Parasthesias are back. Maybe some neuropathy, too, which I don’t even want to acknowledge, but the weird stabbing pains in my legs and the sudden feeling of having stepped in water when there is no water aren’t going anywhere, it seems.
Some of this is also from having dysautonomia. Some of this is from having immune system dysregulation and all the diseases and conditions that flow from that dysregulation. Not all of this is because of my TSH dysregulation, and I suspect that dysregulation isn’t a thing on its own, anyway, but instead flows from some combination of my other health issues, as well as from my trauma. Traumas, let’s be honest. It’s traumas, plural. It’s also trauma
and trauma (v) if trauma can verb.* I think it can. Think: She will trauma her way through life. Think: May she trauma in peace. Maybe we should spell the verb form differently to avoid confusion, like traffic and traffick. But what would trauma look like spelled any other way? Whatever form it takes, it all looks like ruin.
* Why did Facebook turn my n in parentheses into a thumbs down? I’m too tired to fight you on that, Facebook. Have it your way. You always do. We’re all just here for your profit and pleasure, Facebook. Don’t think we don’t know that’s the case.**
**Oh, I know why. I forgot the periods after the “n” and the “v” on second reference. Fine. My bad, Facebook.

Insomnia Diary Entry Three: I think people count sheep when they can’t sleep because sheep sounds like sleep, so we’re indirectly invoking sleep by using sheep as a kind of mantra, one that allows us to sidle up to sleeping without getting sleep anxiety as we think about how we’re not sleeping.
Oh, no. That’s not it at all. Apparently, shepherds in medieval Britain had to keep a headcount of their sheep each night if they used communal grazing land, so they counted their sheep before going to sleep to ensure they were all there.
Still, I think my thing is also correct: I think sheep works because it’s a stand-in, soundwise, for the thing we’re trying to do, which is sleep.

Insomnia Diary Entry Four: I had two thoughts upon waking at 1:29 a.m. First thought: I’ve reached the age where I can no longer tell if physical exertion is building muscle or destroying muscle. Second thought: The price I pay for whatever I’m doing is having to do more of whatever I’m doing.

Insomnia Diary Entry Five: I am not dovetailed to this world. I’m glued and stapled to it.

Insomnia Diary Entry Six: When someone starts a sentence with the words I’m no conspiracy theorist, you can put money on the fact that a conspiracy theory (technically, a conspiracy hypothesis) will complete that utterance.

Insomnia Diary Entry Seven: I’m no conspiracy theorist, but I don’t trust the water here in Toquerville, Utah. On record, our water management people said at a city council meeting that they sometimes forget to check the water pumps. Then, earlier this year, one of the water pumps broke, and our irrigation water was turned off until a new pump could be ordered.
I just don’t know. You know, govnmnt and whatnot. You never can tell. Never can tell. No, sir. No, siree.
I do know that, without proper filtration, there’s one-thousand-one-hundred times the “safe” amount of arsenic in our water, and that figure isn’t hyperbolic. I looked into it. You know, inurnet and whatnot.
What I’m getting at is this: I drank all my water just now, and I needed more water. My husband and I recently bought a fancy office-level water filter thing that makes cold water, hot water, tea, and coffee. We decided to do it because govnmnt and inurnet and all that, and also because my gums were starting to burn after brushing my teeth with, you guessed it, the local water. (I see a pure D bona fide theory emerging here, not just a measly hypothesis!)
We love the new water filter thing. Just adore it. It’s like the watery baby we never had. We coo at it. We pet it. But it makes this rattling sound whenever it’s used as it pumps more water into whatever parts of the machine need water pumped to them. So I couldn’t fill my water bottle with filtered water just now or else I’d wake my husband up and he’d be all why’d you wake me up you’re ruining my sleep and I’d have no choice but to be all because my own sleep is ruined forever and always and we’re married and this is the for worse part of it which you agreed to in front of that pantheist minister in Eureka Springs Arkansas during a freak March snowstorm back in 1999 so deal with it just deal with it and rub my shoulders while you’re here and get me some filtered water too please and thank you and I love you and don’t leave me and hold me and get away from me and I’m sorry so so sorry I’m just so tired and hurt and tired. And I wouldn’t want to do that, so here I am filling myself with liquid arsenic, folks. The things a good wife does. The things a good wife does.

Insomnia Diary Entry Eight: How do I select my titles? That depends. Sometimes, I write a big thing while I have insomnia, then I look at the thing, my eyes fall to some of the words in the thing, and in my bleary state, I think, Gee whiz, those random words seem like they’d make a good title. Usually, they do. Case in point: Henceforth, the collective title of these insomnia diary entries shall be “Cabin Lavatories Emergency Exit.”
Actually, I think I’ll make the whole series into a poem. But first, I must sheep. I mean sleep. One two three four. Or arrhythmically like my heart: one two (pause) three (longer pause) four.

Insomnia Diary Entry Nine: to sheep, perchance to leme.

Insomnia Diary Epilogue: I slept. Finally. I dressed up like Liza Minnelli after we got back from Jon’s doctor’s appointment, the one about his liver, and I took a hot, stupid, mid-morning nap on top of the covers and with my little dog between my legs, her favorite place to sleep. Was it comfortable? No. I had sequins on and big flashy earrings. All the material from my jeans somehow managed to bunch up between my legs. My dog was bristly like the hairbrush my mother made me use for well over a decade, the pink one that was passed down to me after my sister left the home.
Yes, I had to use my grown sister’s hairbrush when she moved out of the house. If that doesn’t prove to you that I’m the product of Depression- and Dust Bowl-era Oklahomans, nothing will.
See, the Great Depression and the Dust Bowl made my mother frugal. I get it. I do. But seriously, who keeps a hairbrush around that long, washing it every month in the sink like it was going to the spa, rescuing it from various dogs’ mouths and returning it to my drawer covered in an ever-lengthening tactile Morse-like Code of tooth marks? (Maybe that would make it Braille-like. Who cares.)
I didn’t even know people could buy hairbrushes until I was seventeen and saw them at the store. Don’t ask how I never saw them before then. I have attention differences, and my mother probably steered me away from the expensive beauty aisles, especially after my father died and we were trying to make it on her income from the state mental hospital, where she worked as a psychiatric nurse for thirty-five years.
Anyway, at the store back in those days, I was always busy taking the empty glass Coke bottles in to get our deposit back or to buy some cigarettes — if you can even call menthol Virginia Slims that — for my mother. I never saw any hairbrushes until the day I did as a teenager and my mind was blown. I bought one on the spot. A Goodie.
I confronted my mother about the decades-long hairbrush ruse when I got home. She just shrugged or something, then probably took a sip of her vodka, then took a drag of her cigarette, and clicked the clicker to watch the news, something she loved to do because she was passionate about politics. She was a feverish democrat who was in the closet about her political opinions until my father died, then she let it all loose. She’d call all her nurse friends when anything remotely of political interest happened, like the time Reagan came to town and two kids sneaked a big protest sign into the rally.
I know the kids who did that. I wasn’t one of them, sadly. I still had a perm and claw bangs and listened to Duran Duran. I had no desire to tape parts of a sign to my body so I could smuggle them into a room full of adults, then assemble the sign once I was inside. I didn’t want to get arrested. I didn’t want to be dragged anywhere. I had Guess jeans. I had a Coach purse. I was going places in my jelly shoes.
The point is. I took a shit nap, but it was still a nap, and I’m grateful for it.
I’m still pretty violently ill. I have a five-hour training tomorrow as a substitute teacher with ESS, who recently hired me. ESS handles subs for numerous states, including Utah, New Mexico, and Oklahoma. I might be able to use ESS to claw my way out of this state. (And of course I love teaching.) I may have to reschedule the training if things continue to go the way they’re going now.
Listen, all I want is the ease my childhood hairbrush knew. I want to lie in soapy, hot water whiling away my time staring at the nicotine-stained plaster ceiling, not a thought in my bristles, not a pain in my handle. Is that too much to ask? For a little time like that?
That brush. On brush-washing day, I remember having to comb all my hair out of it as my mother ordered. I remember being told to dry it off with a towel. I remember having to position it so it could air dry in the sun streaming through the bathroom window before it went back into the drawer.
That brush was my mother’s favorite child. It’s so obvious. Coddle, coddle, love, love. Hugs and kisses, little brush.
I want this acute health situation to be about bad spinach, mild food poisoning, but the evidence — shared by me last night in the second installment in this series—suggests something more is going on, as always. Maybe if I just don’t eat between now and tomorrow’s training, I’ll be OK. This is the same approach I’ve used as a workaround in the recent past that’s contributed to my losing more and more and more weight.
Conversely, eating more and more and more when violently ill won’t result in my absorbing any calories or nutrients, as they’ll just … ahem … shoot through me like Big Bertha, the tunnel-boring machine used in Seattle’s Alaskan Way Viaduct replacement tunnel project. Except it won’t be like Big Bertha at all, because she got stuck for two years starting in 2013 and eventually had to be partially excavated for a repair to solve the issue. Trust me, nothing’s getting stuck inside me and nobody is going to cut into me to bring my body the spare parts it needs to operate properly again.
So to eat, or not to eat, that is the question. To train, or not to train. I guess there are actually two questions at this point.
Intentions
I wrote these intentions out in an emergency room on March 2, 2023, when I had a health- and mental-health crisis and literally thought both that I was going to die and that I might be evil. Then I didn’t die, and I wasn’t evil. Now, I can do what I intended. I can hold myself accountable.

Intentions: I’m going to submit a series of personal stories and an ongoing blog to Mad in America, the site based on Robert Whitaker’s book by the same title. They also have an arts section. I can write about mental health recovery and the arts as well.

Intentions: I’m going to write essays for literary outlets in the West, since launching my own journal— Moenkopi: A Journal of Place—isn’t something I can do until my health improves and Jon and I know we’re maintaining a residence in a Western state.

Intentions: I’m going to submit articles to medical publications and magazines that focus on patient rights and patient advocacy. This is the work I used to do. Recent experiences have made it clear my voice, perspective, and insights are still needed in those publications.

Intentions: I’m going to write poetry. More and more poetry. (A Say’s phoebe and two American goldfinches flew into my locust tree when I transcribed those two sentences from my ER notes.)

Intentions: I’m going to volunteer in my community as a teacher, mentor, peer, and advocate. I may even teach in the school system if I get well enough to do so. I was hired as a substitute last year but was unable to work because of my health issues.

Intentions: I’m going to make every attempt to strengthen the communal fabric in this area, to be part of it rather than set off from it. I plan to lead with love and to see my gifts as a responsibility, something to share with others for the greater good. This is no time for hubris, for strife, for selfishness on any level. A wise man shared these insights with me when I was in Independence, Missouri, last month.

Intentions: I’m going to support, nurture, listen to, learn from, and grow with those around me—starting with my husband, whom I’ve loved since the day we met in Kansas City twenty-eight years ago at a little deli in Brookside called Daily Bread.

Intentions: I want to work with my own unique gifts and—in my small, humble way—train those gifts on helping humans, the Earth, and all living beings because I’m embodied here and now.
That is: I live in a body on this Earth, among humans and all living beings, on real soil that channels real water, in real air that sometimes carries smoke from real fires. These elements—Earth, Water, Air, and Fire—are eternal and mythical, but they are also real. They are here and now, as we are. They root us. They ground us. And we need to be rooted and grounded, now more than ever.
A Secret Order
In all chaos there is a cosmos, in all disorder a secret order.
— Carl Jung
This morning, my chihuahua threw up on me in bed. I was curled up in the fetal position, and she was behind me with her chest against my back. You could say she was the big spoon and I was the little spoon, as preposterous as that might sound, given that I am approximately eighteen times her size. But there it is: big spoon = chihuahua, little spoon = human.
Understandably, being woken in this manner led me to believe I might not be in for the best of days. As I took care of my dog, got myself cleaned up, and cobbled together all the linens that needed washing, I felt defeated before I’d even brushed my teeth. Then my centralized pain set in, along with intestinal distress because I dared to eat out yesterday afternoon. As if that weren’t enough, I felt like I was being strangled. Yesterday, my new thyroid surgeon examined the scar on my neck from the thyroidectomy that my old thyroid surgeon performed last fall. He needed to assess how much scar tissue was present. Turns out, there’s a significant amount of scarring, and manipulating the area has made it extremely tight and painful today.
I needed to get it together, and fast. My first session with a holistic therapist was scheduled for noon. This meeting was important to me. I didn’t want to arrive at the therapist’s office sweaty, whiffling, and redolent of dog vomit. I needed to be lucid, solid, maybe even likable. (The last one is always a longshot for me, but I hold out hope with every new interaction.)
I made it to the session with my pestilent body in tow. A sack of pain I was. The therapist put me at ease by pointing out her Carl Jung action figure and saying, Not everyone has one of those.
They don’t, I thought. But they damn well should.
She also had a stuffed Yoda on her desk. He was wearing spectacles. I should probably show her my bright orange, 3D-printed Yoda head at our next meeting. I don’t have any Jung tchotchke to share, but I do feel Jung at heart, so at least I have a pun lined up for next week’s session.
The therapist knew things were serious when she began charting my immediate family, and I was in tears by the time she asked me what my father’s name was. I would have totally lost it if she’d asked my mother’s name. (It was Merry, which is heartbreaking considering how much trauma she was born into and lived through. Given her life circumstances, my mother’s name was a cruel, impossible demand—a mirthful adjective that would never find its occasion. What were my grandparents hoping for, beyond hope, when they fitted her with that albatross?) In short, I wasn’t able to mask my physical or emotional pain, and that made me feel as vulnerable as a fledgling swallow leaving the nest for the first time.
The therapist asked how I was feeling. I told her I was a burning tumbleweed careening down a hill, setting the countryside on fire.
She seemed to understand.
I asked her if she thinks there’s more merit to the diagnosis of post-traumatic stress than other DSM diagnoses. She said she doesn’t give a hanging chad about diagnosis. She only cares about hearing and seeing the person in front of her.
You are not a diagnosis. You are a human being, she said. What I’m hearing and seeing is you.
I tried not to cry because I don’t want Therapy Dana to be someone who is weepy throughout an entire session. But I’m not sure I’m in charge of who Therapy Dana is or isn’t, let alone what she does and doesn’t do.
I chose the Jung quote above because it makes me think about the DSM and its litany of disorders. The DSM is a dead end that never leads back to order. How do you make your way out of that book once you’re in it? My therapist says you have to stop looking at the disorder and start looking at what will help you heal.
I don’t always know where to cast my gaze, but I’m looking.
Trauma as Mineralized Body
If you cannot find it in your own body, where will you go in search of it?
— The Upanishads

My freeze response this morning was kind of like this, but without all the great scenery and gentle animals. A Fairy Tale, by Arthur Wardle, oil on canvas. Image used in accordance with U.S. public domain laws.
This morning, I felt like a length of fossilized wood, my body having turned to stone. I was lying in my bed, white sheets a blanket of fresh snow glinting near my mineral-laden bark. Every time I imagined getting up, my torso and limbs tightened. I was stuck. I wasn’t able to move for more than an hour.
This happens sometimes. It’s one of my responses to trauma. Most people have heard of fight and flight, two physiological reactions to threats and perceived threats. There are two other, related responses: freeze and fawn. Many people who’ve been traumatized have some combination of these four responses. I’ve experienced all four, but my primary responses are flight and freeze.
Of the two, I like flight more. Much more. At least with flight, I’m in motion. I feel like I’m getting away from a threatening situation, my body moving, machine-like, under its own direction. Freeze is worse because I have all the emotions associated with flight, yet I have to experience them wherever I happen to be when the freeze response starts. Inside, I might be saying, “Just move. You’ll feel better if do. Start with a muscle, any muscle.” Yet I can’t move. I can’t speak. I can’t even think properly because my limbic brain has sand bagged my neocortex, which can only watch on, enfeebled.
You wouldn’t have known what you were seeing if you had walked in on me this morning. You would have seen a woman in seeming repose staring at a ceiling fan, its faux-wood blades smearing with soothing regularity.
Aside from the discomfort of the freeze response, I hate freezing because it’s triggering. The first time I froze was when I was thirteen years old and my father’s best friend began molesting me. I also froze in 2009 when I was sexually assaulted. Powerlessness, shame and despair are associated with the freeze response. It’s no surprise that people who freeze when being molested, raped, and sexually assaulted have higher rates of post-traumatic stress than those who don’t. There’s more self-blame associated with freezing than with the other responses to trauma.
I had physical symptoms this morning, too. A migraine. A tinnitus flare-up. Burning mouth syndrome. These issues, along with my freeze response, were my body’s way of dealing with distress I experienced yesterday. Along with three other psychiatric survivors, I was invited to share my account of abuse within the mental health system with a local healthcare organization. As I listened to the other women’s stories, I felt like my heart was being fed into a meat grinder, stuffed into a casing, and sewn back inside my chest. Those are the strongest, bravest, most intelligent people I’ve had the pleasure of sitting alongside in a long time. The day took a toll not just because I shared my story, but because we shared our stories. Nobody should endure what we and so many others have endured. Nobody should have to live with the trauma that led us to seek care or the additional trauma that seeking care can lead to. Nobody should have to face the very real risk of being retraumatized every time we tell our stories in the hope that healthcare might improve, that others might understand us, and that we might be able to speak and write our way back to life.
Though I still feel crystalline, I am moving, albeit slowly. I’m writing slowly, too, with my fossilized mind.
Everything I need to know is in my body and always has been. The body is a great teacher, and I am trying to learn from what it is telling me rather than vilifying it. The more I can see why I am freezing, as opposed to resisting the response, the more I am able to see what my body wants me to pay attention to. Today, I am paying attention.