Health

Take a Message

So I’m ill again. The usual with a side of falling to the floor hard this evening when my lower extremities tightened and everything from my toes all the way to the middle of my thighs contorted until I looked like something with gnarled roots—maybe Donne’s mandrake—that had been unearthed and hosed off before being tossed to the ground until it could be transplanted elsewhere or fed to the wood chipper or cut into little slices as part of a fiber-filled culinary adventure.

I mean, I know I’m not fibrous. I’m meat and bone. But I’m doing an extended tree metaphor thing here, so just let me be fibrous for the purposes of this essay.

My floor routine went on for several excruciating minutes and I couldn’t get my legs under me and I couldn’t pull my legs and feet and toes back into their proper shapes and relationships with each other and I couldn’t massage the tension away and the pain was like someone had exposed me to a nerve toxin and I couldn’t reach my phone to call my husband for help and it wouldn’t have mattered anyway because he’d misplaced his phone and so I had to scream as loud as I could and don’t worry the neighbors never come when I do that and my husband burst into the room and found me splayed and broken like a cow that’s about to be scooped up from the fecal mud and dropped onto a truck headed for the rendering plant because she’s too sick to walk herself to her own death like all respectable—all good—girls should, even ones with spongiform encephalopathy.

I’m just working the cow metaphor with that encephalopathy reference. Don’t worry, I don’t have mad cow disease. My diseases have other names, and so far at least one has eluded naming. That disease is all experience, the way Hellen Keller’s whole world was before water ran over her fingers and forever changed the way her body and mind met the world.

Reuven Tsur talks about Keller in his theory of cognitive poetics. I’m not making baseless statements about her just to illustrate my point, so please don’t get all, You’re being ableist and using Hellen Keller to do your dirty ableist work, Karen. The name’s Dana, and I’m trying to tell you how bodies break and how we live in them anyway. I’m trying to tell you I took a little spill. I’m trying to put that spill in a larger context that some of you may find important. Bear with me. Bear down. Grin and bear it. I’m trying.

My husband panicked the way he does when he has to confront the fact that I’m seriously ill. He got me up off the floor, then went into a fugue state in which he forgot about everything other than his lost phone. He flitted around in flight mode looking for the phone because it’s easier to be upset about the phone than it is to live through more than two years of thinking your wife could die, on top of fifteen years of intermittently thinking your wife could die, let alone this very moment when you’re seeing more evidence of your wife’s potential death on the horizon or at least more data that suggests whatever’s going on with her isn’t going to go away any time soon, if ever. And what do you do with that as a spouse? How do you live with a splintered wife for the rest of your life?

I almost said upper thighs in the first paragraph of this essay, but we don’t have tiered thighs. We just have the one main set, one main set of thighs. It’s the way I also think I have two noses, when I just have the one nose with two nostrils and the way I always think I have two butts because I have two butt cheeks.

The body is confusing. Taking inventory isn’t as straightforward as it seems. At one point in American history, a window was considered a single pane within a larger window. So a window with six panes counted as six windows. Why? Taxes. Taxes were assessed per pane, so each pane became a window. At least I think that’s true. My rhetoric professor, Dan Mahala, told our class that in college. This was in the ’90s, when institutions still taught actual history—or at least tried to—not the ticky-tacky history being peddled today.

If U.S. politics applied to bodies—which of course it does, mainly those of women and trans and nonbinary folks, but bear with me again for the purposes of this essay—we might very well have been taught that we have two noses and two butts, especially if that meant we could be charged more for lugging all that flashy and fleshy gear around. Two butts! Two noses! How indulgent of you. One of each is subject to the luxury tax! You clearly have spares that are purely ornamental. (Don’t tell the tax collectors about the set of kidneys dangling in our trunks or the lungs or whatever else is doubled up in there like sets of animals shuffled onto a dingy for safekeeping during what looked to be the makings of a pretty big storm.)

All that contrived body taxation would be a real pane, wouldn’t it? I mean pain. And trust me, the body is definitely a pain.

But I digress. Who turns to stone? I’m asking because that’s what my body felt like today. Sisyphus, maybe. You could argue that pushing stones turns him into the very thing he’s pushing: Something that moves but that isn’t quite alive; someone whose stony but who isn’t quite mineral.

Demosthenes filled his mouth with stones to learn how to speak clearly. But that’s not the same thing as turning to stone.

Oh, I know, I know! It’s those who gaze into Medusa’s eyes!

Whose stare must I have returned to be cursed this evening? It must have been someone in my dreams. I’d just woken from a nap when the compacting began, soles first, a crushing invisible force making me denser and denser. I felt the hardening creep upward. The stiffening. The molecular tightening. I couldn’t do anything about it. It was like watching a virus spread through a computer taking out file after file after beloved file and replacing them with junk code.

I realize I can’t make the stone metaphor work alongside my earlier tree metaphor. Adding the computer-virus reference is making things even worse. Let’s just acknowledge all of that and move on. I don’t have time to put the right slant on this truth. (My apologies to Emily Dickinson.) I’m sliding downhill, and everything I write is sliding with me. Besides, wood can turn to stone. I know. I’ve seen it. I have a chunk of opalized palmwood right here that makes my case for me.

That rock is science. It’s fact. And like science and fact, opalized palmwood is beautiful when you place it on a black light in a dark room. It looks like magic and could be passed off as such if your audience doesn’t know any better. A divining rock. A soothsayer’s stone. Not the soft, boring sandstone my body is becoming, the kind of stone miners here tossed to the side when looking for the good stuff like silver and uranium.

But guess what? I tricked you, and you didn’t know any better. Petrified wood isn’t stone. My science wasn’t science, and my facts weren’t facts. Here’s the truth. You ready: Though the phrase petrified wood or petrified tree comes from Ancient Greek πέτρα meaning “rock” or “stone,” literally “wood turned into stone,” petrification doesn’t change organic wood into stone. It merely preserves the wood’s shape and structural elements.

Sometimes language gets things wrong. Sometimes, even the Ancient Greeks got things wrong. Is it so hard to believe that sometimes we get things wrong? That we get things wrong most of the time, actually?

Maybe I’m not turning to stone. Maybe parts of me are just undergoing a change, being preserved. My shape. My structural elements.

My husband found his phone. It was in the garage. He went out there frantically looking for it like a prospector trying to lay claim to a seam of silver in a sandstone reef in a town called Silver City in the 1870s. He cast aside all the piled-up crap garages tend to take on as his world was reduced to two things: phone and not phone.

When he found his phone, the world made sense again. I was in a chair by that time live-tweeting the unfolding disaster. My upper body still worked, which meant I could be a writer and write things down. So I wrote things down just like Richard Siken says we should. What else would you have me do? Come unglued?

This is marriage. This, too, is marriage. Sometimes it’s broken. Sometimes there’s no diagnosing what’s wrong with it. Sometimes it’s all experience and no name and no remedy. Or maybe no remedy is needed because legs are not roots and flesh is not stone and a phone isn’t something jacked out of the Earth for profit or for prophets.

Sometimes a phone is just a phone, and we can use it to hear the voice of the person we love more than anyone else on the planet. Sometimes we can take that call. Sometimes we can’t no matter how much we want to. We just let it ring through to voicemail and hope the love of our life leaves us a message that we can receive when we’re ready.



Two Sleeps

Before the Industrial Revolution, people slept in two shifts. The first was from early evening until sometime in the middle of the night. The second was from early morning until it was time to get up and start the day’s work. The waking period in the middle of the night wasn’t just for reading or sitting by the fire. People played cards, canoodled, had little get-togethers, and more. It was dark and cool and simply a good time to be awake. A romantic time. A playful time. A productive time.

In 2008, when I had one of my bouts of thyrotoxicosis—which made sleep difficult and resulted in severe sleep anxiety—a therapist told me about two-sleeps. She could see my sleep patterns falling into that rhythm and encouraged me to embrace that rather than fighting it. I had charts and graphs and other excessively detailed stuff documenting my personal sleep woes because that’s how I roll. It was a lot, the way my personal wardrobe database, which I maintained for six years, was a lot. (I can be a lot or, as I like to say a lot a lot—think quirky, colorful, dysfunctional.)

Hold up, the therapist said. Maybe, just maybe, instead of being hypervigilant about your sleep, you could try this approach instead. Hers was for sure the better plan. It was hard to let go of my recordkeeping and data management, but I did it at her urging.

The change in perspective and approach got me through those long months until my thyroid function returned to normal. I should note that thyrotoxicosis isn’t like hyperthyroidism in that you can’t treat it. You just have to wait it out. The whole process from thyrotoxicosis (or thyroid storm) to hypothyroidism to a return to a euthyroid state takes about a year.

A long damned year that’s difficult, creatively productive, and hard on a marriage, or at least has been hard on my marriage. It’s not easy to live with someone who has a snack-and-book midden stashed in the bed because they need to eat constantly and must always have reading material ready for those inevitable jolts from sleep. And also a slew of notepads and a handheld recording device so flashes of brilliance can be documented, such as aphorisms that float in on the ether and strange dreams that can’t not be cast in stone or at least scrawled in pencil in feverish, sloppy detail. (Pencil because, while graphite is an inferior writing material, I have a no ink-in-the-bed rule, as should everyone. We have sheets to think about, folks. We don’t need to add fighting ink stains to our list of daily tasks, especially not when we’re thyrotoxic.)

It’s not easy to live with someone who’s in fight or flight for the better part of a year, edgy and jumping at every little sound, balled up at times saying I can’t take it when will I feel normal again, whose OMing her way through moment after excruciating moment, who asks her mother-in-law in Iowa to have a bag packed in case she needs to come take care of her when she’s thirty-six years old and her mother-in-law has better things to do like tending to her gorgeous, gazeboed yard and going to church and keeping her husband from wandering into the back of the garage never to be seen again because he’s finally going to put that classic car together, the one that’s been a tangle of pieces and parts strewn about the property for four decades. In short, someone who’s devolved into a twitchy little miscreant. It wasn’t easy on Jon. I wasn’t easy on Jon. But two-sleeps made a big difference.

I still approach my sleep this way if I wake up in the middle of the night. It’s a two-sleep night, I think. Rather than toss and turn in bed, I get up and do what I do, which is read and write and, sometimes, snack. Tonight, I’m up with GI distress and heartburn because of unfortunate but yummy birthday dinner choices yesterday evening. I came home and crashed, accidentally, at 8:40 p.m. and woke a few minutes ago bloated and nauseated, like a puffer fish that didn’t mean to puff and can’t unpuff and whose innards are on fire.

Is this a good time to write? Who knows. Will I produce anything of value during these waking hours? Based on this journal entry, it doesn’t seem like I will. I just know it’s not a good time to be horizontal. It is a good time to take Pepto Bismol and be vertical. So that’s what I’m doing until my second sleep begins. (Technically, since I’m sitting down, I’m vertical then horizontal then vertical again.)

Metadata paralysis is a real phenomenon, and folks like me live the experience every day. If you see someone with obvious symptoms of metadata paralysis, let them know you care. Take interest in their metadata tree. Say things like, “Good work. What a lovely metadata tree you’re working on. So many branches. I can’t wait to see what it grows into.”

Part two of this essay will be redacted in its entirety because it’s boring. Why? It’s self-indulgent and not self-reflective. The metadata here is value: subset one, possesses; subset two, doesn’t possess.

I’m falling asleep sitting up. Hello, theta waves. Bring on the strange brilliance.

I get it. His name is Jack Tripper and he trips all the time as part of his physical comedy. He also trips out on what others are doing and saying, so he’s also a metaphorical tripper.

Quick on the draw isn’t something anyone’s ever called me with regard to understanding plays on words, but they did call me fast fingers in grade school because I learned to count like lightning on my hands during math drills as a workaround for my dyscalculia and working-memory deficits. I won those drills. Laugh away, children, laugh away. What the world needs is a dyscalculia superhero named Fast Fingers.

Dyscalculia is either part of dyslexia or it’s a separate but similar entity. It depends on what metadata you use, that is, how you organize the information pertaining to each phenomenon.

Dyscalculia. Dyscalculia. Dyscalculia. That looks funny. This calculia. Miss Calculia. That’s Ms. Calculia to you. Dana “Ms. Calculia” Martin. Now there’s a name. A Dana by any other name still can’t count to ten without using her fingers.

They gave me a free dessert because it was my birthday. That’s what happened with dinner. And also a plate of fried everything. That part wasn’t free. I paid for the plate of fried everything. My metadata here is dinner: subset one, fried everything; subset two, dessert.

I didn’t have to eat it. I wanted to eat it. Then I didn’t want to eat it but kept eating it. I’m trying hard to eat. I need to eat. My metadata here is health: subset one, presence; subset two, absence. Or is it life: subset one, congruous with; subset two, incongruous with?

My throat is getting dry. The Pepto Bismol is coagulating, if that’s the right word, near my uvula. One time, a big, hard thing traveled from my sinuses down into my throat. I choked on it for a while, then coughed it into a tissue, thereby saving my own life. It was fossilish and had ridges like the roof of a mouth. This incident (or shall I call it an *indecent*) happened in from of my mother-in-law. The metadata here is mother-in-law: subset one, what not to do in front of; subset two, what I did in front of. Additional metadata is bodies: subset one, amazing; subset two, strange.

As with bodies, also with minds: subset one, amazing; subset two, strange. Or is the main category bodymind: one thing, not two? As in, we mine the bodymind when we should be embodying it. As in, why is the bodying of the bodymind something we mind, whether it’s ours, yours or mine? As in, what’s mine is my bodymind and is not to be mined.

This is a real mindfield. Good night. I’m off for part two of my two-sleeps night. May our collective dreams break the bough, rattle the house, and set free a wee mouse who runs the mazes of our minds. Wouldn’t that be amazing.

The Insomnia Diaries

Insomnia Diary Entry One: The price I’m paying for going to bed at 9:29 p.m. last night is waking to strange dreams and observations at 1:29 a.m. this morning. As if that weren’t bad enough, my weaving room clock is four hours slow for some reason, so when I dragged myself in here to write down my strange dreams and observations, it said it was only 9:29 p.m. I feel like I slept zero minutes, not two-hundred-forty weird, totally off, minutes. What do I do now? Eat? Vomit? I hate waking up like this, being off like this. My ear wax is melting. The light from this pink Himalayan salt lamp is too bright. I think I need to hydrate.

Insomnia Diary Entry Two: Based on my symptoms, I’d say my TSH level is moving around wildly again and that it has been since I started a new dose of thyroid replacement and a new form of the medication, this time an amber liquid that burns my gums. My body no longer knows what to do, how to regulate, its TSH levels. Within a month’s time, I’ll swing from clinically hypothyroid to severely thyrotoxic. This has been happening every month for a year or so.

Heart palpitations are back. Big tears are back, rolling ones like dew drops on iris leaves in Kansas on any given spring morning. Nausea is back. Exhaustion. Word-finding issues.

I forgot my maternal grandmother’s first name two days ago. (It’s Ruth, a word I always see as red, like a ruby. Ruth, my gem of a grandmother, my red velvet cake grandmother, my faceted grandmother throwing off an eerie red light, my film noire grandmother if the lighting was black and red, not black and white. And she, Ruth, surely was all of those things. So how could I forget her name, given all the ways synesthesia allows me to vividly see it?)

I confused trammel and trample yesterday. (I didn’t just make that play on words in a post for fun. I actually forgot the difference between the words, then turned my language-related malady into a wry comment on nature and culture, or something like that. A real poor-me of a post.)

I forgot traffic (n.) and traffick (v.) both exist. I’m still not convinced they’re both real, but the dictionaries seem to think so. I’m pretty sure I’ve been leaving the “k” off the verb form for years, a startling realization that leads me to ruminate about all the other words I must be getting wrong without realizing it. It’s like my late-90s disk and disc meltdown all over again. Floppy? Frisbee? C or K? K or C?

I’m so tired of being dyslexic and having auditory processing disorder and working memory issues and attention deficits with ironic hyperfocus and rumination and neat and tidy OCD and complex PTSD and regular PTSD and other flavors of anxiety on top of my primary immunodeficiency and autoimmune diseases and arrhythmias and dysautonomia and possible kidney issues and whatever the hell is going on with iron overloading and concurrent anemia and TSH issues that come and go without explanation and that cancer I had and may still have and the edema and the asthma and whatever else I can’t even remember at this moment.

It’s a lot, folks. It’s getting old. Y’all, I just want to move around the cabin of life freely and with some assurance that I’m doing an OK job at that. Instead, I end up back by the lavatories when I think I’m heading toward the emergency exit. It’s sheer disorientation much of the time: in my mind, in my body, and at the seams where my mind and body meet the world.

I was trying to make a play on the cabin reference above by following it with the lavatories and emergency exit references, but it didn’t work. It’s too jumbled, the image too burdened. I can’t bring myself to delete the attempt, though, because my body-mind really worked hard at it and I’m so exhuasted and here come the big dewy tears and this water isn’t hydrating me at all because I’m still a walking desert and my GI tract is full of angry fists that feel like a mob is trying to punch its way out of me and I’m so awaketired, so hungrynauseated, so tinglenumb, that the cursed trinity (cabin/lavatories/emergency exit) isn’t going anywhere. It’s staying put. It’s evidence of and a testament to my dysfunction.)

All the hunger all the time and all the eating all the time without moving the needle on the scale at all are back. Parasthesias are back. Maybe some neuropathy, too, which I don’t even want to acknowledge, but the weird stabbing pains in my legs and the sudden feeling of having stepped in water when there is no water aren’t going anywhere, it seems.

Some of this is also from having dysautonomia. Some of this is from having immune system dysregulation and all the diseases and conditions that flow from that dysregulation. Not all of this is because of my TSH dysregulation, and I suspect that dysregulation isn’t a thing on its own, anyway, but instead flows from some combination of my other health issues, as well as from my trauma. Traumas, let’s be honest. It’s traumas, plural. It’s also trauma 👎 and trauma (v) if trauma can verb.* I think it can. Think: She will trauma her way through life. Think: May she trauma in peace. Maybe we should spell the verb form differently to avoid confusion, like traffic and traffick. But what would trauma look like spelled any other way? Whatever form it takes, it all looks like ruin.

* Why did Facebook turn my n in parentheses into a thumbs down? I’m too tired to fight you on that, Facebook. Have it your way. You always do. We’re all just here for your profit and pleasure, Facebook. Don’t think we don’t know that’s the case.**

**Oh, I know why. I forgot the periods after the “n” and the “v” on second reference. Fine. My bad, Facebook.

Insomnia Diary Entry Three: I think people count sheep when they can’t sleep because sheep sounds like sleep, so we’re indirectly invoking sleep by using sheep as a kind of mantra, one that allows us to sidle up to sleeping without getting sleep anxiety as we think about how we’re not sleeping.

Oh, no. That’s not it at all. Apparently, shepherds in medieval Britain had to keep a headcount of their sheep each night if they used communal grazing land, so they counted their sheep before going to sleep to ensure they were all there.

Still, I think my thing is also correct: I think sheep works because it’s a stand-in, soundwise, for the thing we’re trying to do, which is sleep.

Insomnia Diary Entry Four: I had two thoughts upon waking at 1:29 a.m. First thought: I’ve reached the age where I can no longer tell if physical exertion is building muscle or destroying muscle. Second thought: The price I pay for whatever I’m doing is having to do more of whatever I’m doing.

Insomnia Diary Entry Five: I am not dovetailed to this world. I’m glued and stapled to it.

Insomnia Diary Entry Six: When someone starts a sentence with the words I’m no conspiracy theorist, you can put money on the fact that a conspiracy theory (technically, a conspiracy hypothesis) will complete that utterance.

Insomnia Diary Entry Seven: I’m no conspiracy theorist, but I don’t trust the water here in Toquerville, Utah. On record, our water management people said at a city council meeting that they sometimes forget to check the water pumps. Then, earlier this year, one of the water pumps broke, and our irrigation water was turned off until a new pump could be ordered.

I just don’t know. You know, govnmnt and whatnot. You never can tell. Never can tell. No, sir. No, siree.

I do know that, without proper filtration, there’s one-thousand-one-hundred times the “safe” amount of arsenic in our water, and that figure isn’t hyperbolic. I looked into it. You know, inurnet and whatnot.

What I’m getting at is this: I drank all my water just now, and I needed more water. My husband and I recently bought a fancy office-level water filter thing that makes cold water, hot water, tea, and coffee. We decided to do it because govnmnt and inurnet and all that, and also because my gums were starting to burn after brushing my teeth with, you guessed it, the local water. (I see a pure D bona fide theory emerging here, not just a measly hypothesis!)

We love the new water filter thing. Just adore it. It’s like the watery baby we never had. We coo at it. We pet it. But it makes this rattling sound whenever it’s used as it pumps more water into whatever parts of the machine need water pumped to them. So I couldn’t fill my water bottle with filtered water just now or else I’d wake my husband up and he’d be all why’d you wake me up you’re ruining my sleep and I’d have no choice but to be all because my own sleep is ruined forever and always and we’re married and this is the for worse part of it which you agreed to in front of that pantheist minister in Eureka Springs Arkansas during a freak March snowstorm back in 1999 so deal with it just deal with it and rub my shoulders while you’re here and get me some filtered water too please and thank you and I love you and don’t leave me and hold me and get away from me and I’m sorry so so sorry I’m just so tired and hurt and tired. And I wouldn’t want to do that, so here I am filling myself with liquid arsenic, folks. The things a good wife does. The things a good wife does.

Insomnia Diary Entry Eight: How do I select my titles? That depends. Sometimes, I write a big thing while I have insomnia, then I look at the thing, my eyes fall to some of the words in the thing, and in my bleary state, I think, Gee whiz, those random words seem like they’d make a good title. Usually, they do. Case in point: Henceforth, the collective title of these insomnia diary entries shall be “Cabin Lavatories Emergency Exit.”

Actually, I think I’ll make the whole series into a poem. But first, I must sheep. I mean sleep. One two three four. Or arrhythmically like my heart: one two (pause) three (longer pause) four.

Insomnia Diary Entry Nine: to sheep, perchance to leme.

Insomnia Diary Epilogue: I slept. Finally. I dressed up like Liza Minnelli after we got back from Jon’s doctor’s appointment, the one about his liver, and I took a hot, stupid, mid-morning nap on top of the covers and with my little dog between my legs, her favorite place to sleep. Was it comfortable? No. I had sequins on and big flashy earrings. All the material from my jeans somehow managed to bunch up between my legs. My dog was bristly like the hairbrush my mother made me use for well over a decade, the pink one that was passed down to me after my sister left the home.

Yes, I had to use my grown sister’s hairbrush when she moved out of the house. If that doesn’t prove to you that I’m the product of Depression- and Dust Bowl-era Oklahomans, nothing will.

See, the Great Depression and the Dust Bowl made my mother frugal. I get it. I do. But seriously, who keeps a hairbrush around that long, washing it every month in the sink like it was going to the spa, rescuing it from various dogs’ mouths and returning it to my drawer covered in an ever-lengthening tactile Morse-like Code of tooth marks? (Maybe that would make it Braille-like. Who cares.)

I didn’t even know people could buy hairbrushes until I was seventeen and saw them at the store. Don’t ask how I never saw them before then. I have attention differences, and my mother probably steered me away from the expensive beauty aisles, especially after my father died and we were trying to make it on her income from the state mental hospital, where she worked as a psychiatric nurse for thirty-five years.

Anyway, at the store back in those days, I was always busy taking the empty glass Coke bottles in to get our deposit back or to buy some cigarettes — if you can even call menthol Virginia Slims that — for my mother. I never saw any hairbrushes until the day I did as a teenager and my mind was blown. I bought one on the spot. A Goodie.

I confronted my mother about the decades-long hairbrush ruse when I got home. She just shrugged or something, then probably took a sip of her vodka, then took a drag of her cigarette, and clicked the clicker to watch the news, something she loved to do because she was passionate about politics. She was a feverish democrat who was in the closet about her political opinions until my father died, then she let it all loose. She’d call all her nurse friends when anything remotely of political interest happened, like the time Reagan came to town and two kids sneaked a big protest sign into the rally.

I know the kids who did that. I wasn’t one of them, sadly. I still had a perm and claw bangs and listened to Duran Duran. I had no desire to tape parts of a sign to my body so I could smuggle them into a room full of adults, then assemble the sign once I was inside. I didn’t want to get arrested. I didn’t want to be dragged anywhere. I had Guess jeans. I had a Coach purse. I was going places in my jelly shoes.

The point is. I took a shit nap, but it was still a nap, and I’m grateful for it.

I’m still pretty violently ill. I have a five-hour training tomorrow as a substitute teacher with ESS, who recently hired me. ESS handles subs for numerous states, including Utah, New Mexico, and Oklahoma. I might be able to use ESS to claw my way out of this state. (And of course I love teaching.) I may have to reschedule the training if things continue to go the way they’re going now.

Listen, all I want is the ease my childhood hairbrush knew. I want to lie in soapy, hot water whiling away my time staring at the nicotine-stained plaster ceiling, not a thought in my bristles, not a pain in my handle. Is that too much to ask? For a little time like that?

That brush. On brush-washing day, I remember having to comb all my hair out of it as my mother ordered. I remember being told to dry it off with a towel. I remember having to position it so it could air dry in the sun streaming through the bathroom window before it went back into the drawer.

That brush was my mother’s favorite child. It’s so obvious. Coddle, coddle, love, love. Hugs and kisses, little brush.

I want this acute health situation to be about bad spinach, mild food poisoning, but the evidence — shared by me last night in the second installment in this series—suggests something more is going on, as always. Maybe if I just don’t eat between now and tomorrow’s training, I’ll be OK. This is the same approach I’ve used as a workaround in the recent past that’s contributed to my losing more and more and more weight.

Conversely, eating more and more and more when violently ill won’t result in my absorbing any calories or nutrients, as they’ll just … ahem … shoot through me like Big Bertha, the tunnel-boring machine used in Seattle’s Alaskan Way Viaduct replacement tunnel project. Except it won’t be like Big Bertha at all, because she got stuck for two years starting in 2013 and eventually had to be partially excavated for a repair to solve the issue. Trust me, nothing’s getting stuck inside me and nobody is going to cut into me to bring my body the spare parts it needs to operate properly again.

So to eat, or not to eat, that is the question. To train, or not to train. I guess there are actually two questions at this point.

Truss Me

Cancer cells can hide inside other types of cells within the body, which is how cancer can evade detection and continue taking up residence inside us even after cancer treatment.

Viruses can mask themselves inside us and avoid being found for years. Hepatitis C does so using FAD, a molecule composed of Vitamin B2 and the energy carrying molecule ATP.

It only takes one B cell turning on our bodies to get all the B cells around them whipped up and make them act the same way, at least for a time. That’s how autoimmune diseases like alopecia areata happen, where an itch or some other benign thing affecting the skin turns into a bald patch that lasts for months or forever because first one, then many, B cells misinterpret the itch as a threat.

My immune system is dysregulated. In addition to having immune deficiency, I have several forms of autoimmunity. My humoral immune system doesn’t always attack invaders such as viruses and bacteria, but it does attack me, my body, routinely. Dysautonomia looks like it’s an autoimmune disease. That tracks with my immune system dysregulation and the way I’ve been developing more and more autoimmune diseases over the course of my adult life.

Many of the health issues I’ve been having over the past two years seem to be my body saying no, the way Gabor Maté discusses such phenomena in his book titled When the Body Says No. My body has been saying no since I was a child, since my trauma started, my familial sex abuse and trafficking. My body keeps saying no and is now in a rhythm of saying no, sometimes quietly and—in a pattern that starts every seven years and resolves in about a year’s time—sometimes piercingly.

I’m at the end of one of those cycles now, but my body isn’t coming back. I’m a rubber band whose elastic has failed, the kind that ultimately break after years of use. I still can’t gain the weight I lost. I’m in pain every day, sometimes extreme pain. My heart gallops and loses its pacing. It would be put down at the track. I’m struck by bouts of exhaustion that come when they please and leave when they please. My TSH absorption continues to be significantly dysregulated despite not even having a thyroid anymore.

I’m fighting, but I’m not coming back. I don’t know if I’ll return this time. The trauma I’ve experienced is severe. My health issues are alarming and serious. Complicated, my doctors say. Your health is complicated. They are somber when they speak to me. They don’t have as much hope as I do, or at least as much as I once had.

The first person Maté writes about in his book dies. She can’t come back from her health issues and ultimately succumbs to them. Cancer, I think. I’d have to look again, and I can’t bear looking. That book is hard for me to read. This life is hard for me to live.

But I want to live. I will live fully as long as I can, whatever that looks like for me and whatever that continues to look like over time.

Haters, especially local haters who think the problem in this community is me because of my gender and sexuality and because of the ways in which I talk about my trauma, especially in and through my poetry: You don’t need to keep me down or hold me back or marginalize me. Stop doing that to me and to others like me. You’re poison. We need the antidote, not more of you. You will be ashamed of yourself someday. You will wish you’d led with love, been flooded with love, exuded love. Trust me. (Dont’ truss me.)

Pain, Uncertainty, Hard Work, and Writing

I’m wearing my Victorian chemise. I’ve been cleaning and crying and organizing my closets all day. While gently spreading a newly washed flat sheet across my bed, I thought about my dog Hayden, who died almost two years ago.

Pain, pain, pain. It came sharp and quick like needles marching up and down my body—not just losing Hayden but all the pain before and after. I think we so suddenly remember the animals we’ve lost because they allow us to enter into other painful experiences. Animals are guides, I believe, even when they’re no longer with us.

There’s been so much pain in my life, in my husband’s life, in our friends’ lives, in our families’ lives, in the neighborhoods where we’ve lived, in the cities and states we’ve called home, in public spaces, in private spaces, in our country, in the world.

Leonard Cohen spent six years meditating in silence on Mount Baldy. He finally came back because he knew he was a writer and had to write. He was writing all the time while meditating, he said.

I used to say I was a text generator, not a writer. I was rejecting agency and narrative. A fellow poet and dear friend influenced me in this regard or maybe we influenced each other. The stance was entertaining but preposterous. I’m actually a writer, not a text generator. But I had folks fooled: On Twitter, some of my followers actually thought I was a bot.

It would be easier to be a bot. It would. This world makes me bleed, and I bleed into it in turn.

When I was arranging a stack of poetry books on a high shelf this afternoon, one of them fell on my head and left a welt between my eyebrows. It’s kind of a third-eye type of thing. The offending collection was by John Donne, my favorite poet, a man whose work sets my heart beating in time with his lines. What’s that saying? Something about being hit over the head … Donne’s aim was a bit off, but close enough. Point made.

Earl Smith, a man I met once who’s dear to me said we just have to do three things: try, love, and use our gifts to help others. Phil Stutz, a Jungian analyst whose work I admire, says we will never escape the following three things: pain, hard work, and uncertainty.

That’s what I’m meditating on now, after three days of sitting with an especially painful situation. I need to try. I need to love. I need to use my gifts to help others. And I need to do those things despite pain being unavoidable, hard work being necessary and constant, and uncertainty being ever-present.

And I’m going to have to write at least some of it down. I think that’s unavoidable, too.

On Writing, Poetry, Health, Trauma, Surviving, and Lucid Dreams

This essay was written on Twitter throughout the day on January 1, 2023.

—

I’m drafting a new essay here piecemeal, the way I write my notes for a story on a series of notecards, real ones, old school. That’s really all I ever do here: Write long stories in small chunks, in vignettes and aphorisms and observations. I’m doing that today.

Ginsberg didn’t have time for metaphors. I might not have the time or desire to fix my typos or to state things perfectly in this story outline. I certainly don’t have time to say things in order. That will come later. Or the narrative will remain disjunctive, which I also like.

There’s power in disjunctive narrative. Is disjunctive even what I mean? It’s not. What do I mean? I mean narrative that’s all scrambled up the way we think about our lives and stories. I mean: no imposed order other than capturing what the mind presents as quickly as I/we can.

Because we all do this. We all have minds. Our minds don’t live inside narrative. We have to learn narrative in order to survive. Narrative turns chaos into something we can respond to and live within. But today, the particular, infinitesimal part of the we doing this is me. This is my scrambled story.

Welcome to my mindfield. You have one, too. We all do.

You’re inside your mindfield right now. I’m inside mine. Don’t confuse the mindfield with a minefield. Having a mind is not the same as littering the land with weapons: the communal land; our lands that are shared but are not, and never will be, owned.

I’ll tell you the two endings to this draft essay right up front, where they belong in a scrambled story. First, this ends today. I had transient ischemia overnight, then SVT, then atrial fibrillation, then hypoxia. Diltiazem will end that until I visit Mayo next month.

Second, I had the most profound lucid dream in that hypoxic, crushed-heart state. About my trauma, of course. But also about healing. There was healing once I made the choice to leave the concrete place with the men and dance on sand with four women who’ve tried to be my mothers.

But it ends today. Once I have the diltiazem on board, along with the fludrocotisone, along with other treatments that are on the way, this will be over. What, you ask? All this trauma (re)processing. These dreams. This heart stuff. This near-death stuff. Over. And on my terms.

I’m fixing my busted heart enough for now to get back to real sleep, not the galloping, faltering sleep of the arrhythmic and heart-strained. I’m throttling my trauma (re)processing until I can do it slowly and sustainably.

That image, the one where I’m dancing on the sand with my four mothers, is where I’m landing with the trauma work for now. It’s what I’m holding onto. Because I did that. In my dream, I made the choice to leave the nightmare of concrete men. I went to my mothers in the soft sand.

[Interlude while heart recovers. Imagine soft music playing. Mill about.]

[Adding a note to clarify that I have my endocrinologist’s and interventional cardiologist’s support to take diltiazem. I’m not making that call on my own.]

I’ve been making use of a writing studio I rent from time to time. It’s ten minutes from my home, just on the other side of Flying Monkey Mesa as the locals call it because of its dreadful googlable history. I’ve been able to drive to it since I started taking fludrocortisone.

I can’t sleep at the studio because of my heart issues, but I can be here during the day. This morning, on my way here, I encountered a rockslide that the police are monitoring. Then I hydroplaned twice. It’s been raining, a lot. The rocks and roads aren’t behaving.

Depending on what happens with the rockslide, I may have no way home this afternoon. The police officer said he didn’t think things would get so bad that all the lanes would be affected. We also haven’t had this kind of rain in years, so … [shrugs] … who knows?

I want to say “of course” about the rockslide and the hydroplaning. As in: Of course, this, too, is happening on top of all the other issues and impediments in my life that are or appear to be in the way of my living right now.

But there’s no “of course” about it. That would be my mindfield imposing on the rock, on the road, and on my travels in this time and place. The natural world does not collude. And roads are just petroleum-based gloop we smear on the land. Of course roads succumb to the elements.

Earth is not people. It’s chock full of us—mostly the dead, as Nietzsche observes—but it’s not people. It’s of us, in a way, but not us. It doesn’t lie. It doesn’t conceal. It has no desire to do harm.

Earth is mostly not even of us. There’s so much in addition to and beyond us. We’re just people: a minority in the living, breathing world.

You might be ahead of me if you had an OK childhood. It’s taking me longer than it might have taken you to figure out people and their behaviors and what informs those behaviors. I’m also thinking about all of this in light of what I read by Aldo Leopold yesterday.

I’m watching rain fall from my writing studio’s eaves. It’s wearing little ruts in the decomposed granite in perfect little lines. I could align my knobby spine with the ruts and have perfect contact with the Earth—or at least with the decomposed granite lovingly spread on it.

I can’t speak to the collective mindfield other than to caution us against thinking we, together, know more than we know or are more important than we are. These thoughts feel basic, pedestrian. I feel silly sharing them.

We got into trouble when we made ourselves larger than the Earth.

My thoughts are as simple as a Yugo. I’m not a 1963 Ferrari 250 Gran Turismo Omologato thinker.

I want to talk about surviving. When my mother died, she left me a letter. Part of it read, Do whatever you need to survive. It was her last bent-tree message, her last encoded bit of wisdom, stripped bark-bare at the end of her life.

It’s what she’d been telling me all along, in words and through her example: Do whatever you need to survive. And I have. I’ve already survived, as have you if you’ve lived through trauma. Surviving is a process, not an end state. It’s not something we have to strive for.

You are here. You have survived. Your body knows how to do this and how to continue doing it, even when the seasons change, even when your heart is strained, even when new aspects of your trauma come tumbling out of your mind’s many closets.

I want to pause here and say this: Men deal with this, too. Men have power and privilege, but it’s not doled out equally, and men are asked to do so many unspeakable, nearly unsurvivable things during their lives. Everything from war to daily living is hard on men. It is.

Men survive unfathomable trauma, too. My heart is with those survivors. In the end, many of us are survivors, maybe most of us. Some of us don’t even know what we’ve survived, the enormity of it. The iceberg below the surface of it.

But when men come through great trauma and it’s paired with power and privilege, they can become dangerous in ways they wouldn’t be without that power, that privilege.

[Another interlude. My body needs me for a moment.]

[Also, Happy New Year. I’m expunging today. What are you doing?]

[I’m suddenly thinking about James Tate’s Jesus riding his little donkey. I think of that poem in moments of sudden, unexpected happiness while surrounded by what is awful. The poem pleases me in ways I can’t articulate or even comprehend. I mean, I could but I won’t. Explication is a buzzkill.]

[I’m wrecking grammar right now. I sort of love it: both grammar and the wrecking of it. Better than wrecking lives, including my own.]

[James Tate came after T.S. Eliot. Matthew doesn’t know that. Matthew thinks no poet has written significantly since Eliot. Matthew’s wrong. He was wrong in The New York Times. Writers write things down, so it’s not Matthew’s fault. Good writers can write the wrong things down.]

[The problem is the voice Matthew has, the power. Matthew is part of a larger system of power that’s a problem now and has been and will continue to be a problem.]

I’m drawing an iceberg now, an iceberg of something: behavior and what informs behavior? What we see and what we don’t see? I’m trying to figure something out.

My family and the Land Run, my family and Choctaw Nation, my family and Chickasaw Nation, my family and secret pregnancies, my family and the circus, my family and the rich husband, my family and a fancy house, my family and phonographs, my family and furs, my family and cars.

My family and suicide, my family and The Great Depression, my family and shipyards, my family and displaced Asian-American families in California, my family and racism, my family and fighting racism, my family and no farm, my family and no fancy house.

My family and being shunned, my family and learning to run, my family and fire, my family and oil, my family and power, my family and crime, my family and lies, my family and phobia, my family and rape, my family and incest, my family and trafficking.

Also, my family and surviving.

I forgot a big one: My family and the Dust Bowl. Also, my family and Freemasonry. My family and Mormonism. My family and (alleged, attempted) poisoning. My family and a gunshot to the back (at least, I think that’s how it was told to me). My family and mobile bars in GMC vans. Well, one van. One mobile bar.

[Interlude. Heart racing. I met a poet once who said she disdained any poet who feels anything while writing. That still has me stumped.]

In the dream, two men were after me. One was the devil. I was in one of those Russian-looking apartment complexes with exposed-aggregate concrete and iron rails everywhere and an open courtyard with all the apartments surrounding it, facing in.

I knew both men, but one was a shape-shifter, a self-identifying soothsayer. I never knew if he was there to help or harm. I saw the first through his window while passing by with a load of laundry. He was red, hot, everywhere in the room, and spinning like PSR J1748−2446ad.

The second caught me looking in the window. He saw me run toward the open concrete stairs leading to my apartment. He ran after me, yelling: I told you the devil was real. I told you to look to the angels. I fell, my heart arrhythmic. I clung to the rail, bleating.

I thought the second man was going to help me. Instead, he told me it was my fault. What had to happen now was on me because I didn’t feed the angels. He grabbed my ankles and dragged me, step by rough step, lower and lower. The concrete tore at my knees and shins.

I don’t want to do this, he said. He meant it. He was doing what he thought he had to do, what he was compelled to do by some imagined power. My skirt snagged on the stairs, exposing more and more of my legs, then pulled higher. I clung to the railing. I was so tired. I almost let go.

Then I did it. I said no to the dream, to the scene, to the weakness, to the surrender. To all of it. I closed my eyes. When I opened them, I was on the sand, in wildlands, no concrete in sight and no men.

Four women were with me: my mother, my mother-in-law, my dearest friend Pat Best who always said I was her daughter, and my neighbor—the one who recently tried to love me.

We stood in our respective traumas, unable to speak, tension in and between us like circus wires. Then the tension broke. We danced. For the Earth. For ourselves. For each other. For our bodies. For surviving. We danced and laughed and felt love’s malleable connective tissue.

Three of those women are dead. I love them dearly and understand them better now more than ever. It was just a dream, one I lucidly chose, but there was real healing in it. The one who’s alive can’t love me. We are tension in this life, but we are soft support in other realms.

I had four mothers: one cloth mother, and three cloth-wire mothers. It’s still four mothers. I’m lucky.

I had one motherlike monster, a skinwalker who trafficked me with her husband. I was also unlucky.

As we were dancing, one of my mothers had chest pain. She pulled out a blood pressure cuff and took a reading on her right arm. The other mothers laughed. Stop, I said. This is important. We all need to take our blood pressure readings now in both arms. Things got serious.

Our blood pressures checked out. No big differences between each arm. No heart disease. No blocked arteries. We laughed and continued to dance. I woke up.

That’s all I have to say today. The rest will have to wait. I’m staying on the sand with my four mothers, with their cloth and wire. We’re all together there, and we’re surviving. The cloth is for our bodies. The wire is what we’re using to skid over life’s glowing coals.

My Dog, My Hands, My Buttery Butter-Stick Fingers

I know when my dog, Lexi, is happy. I know when she’s sad. I know when she wants to be tickled. I know when she wants me close but doesn’t want me to touch her. I know when she’s waking me up because she’s scared versus happy versus feeling playful versus wanting a tummy rub versus having to potty really bad.

This morning, my dog had to potty really bad at 5:09 a.m. That was a hard way of entering into today, but I did it because when I have to use the bathroom, nobody makes me wait until it’s convenient for them. And because I don’t “have” a dog, even though I used the phrase “my dog” above: I live with a dog, I love a dog, and I share my life with a dog. She’s family. And my bestest family member had to potty at 5:09 a.m. this morning.

I was sleeping soundly—my mattress and pillows are puffy clouds soundly—when Lexi woke me up. I was dreaming of something. What was it? A subway, glimmering tile, water in the distance, a weaver I know, an unnamable feeling, and some Southern Utah LGBTQ+ community overlord trolling my Facebook page telling me what not to say.

I didn’t want to get up, especially not at 5:09 a.m. in December, which feels the way 1:09 a.m. does in June. So dark. So nightlike it could never pass as anything other than night. Not dusk, not dawn, not the cusp of dusk or dawn.

My hands are cold. My keyboard is loud. My ears are sensitive. My fingers are sliding off keys. I’m writing off-key, too, because I’m typing letters in the wrong order, all of them. (Thanks, dyslexia.) There’s no flow in the writing for me right now, which makes writing unbearable.

My fingers are hard sticks of butter qwertying without finesse. I know my fingers are smaller than butter sticks, but that’s how they feel so I’m sticking with my imperfect metaphor. Do they make miniature butter sticks? If so, all the butter for this hard metaphor spreading across my nearly inoperable fingers at what is now 5:51 a.m.

A writer posted on Twitter yesterday about marriage being for everybody. I thought he said “margarine.” That’s emblematic of the unsolicited gifts dyslexia gives me daily:

Margarine: It’s for all of us, not just some of us!

Hilarity ensued as the writer and I had a good chuckle over the outdatedness of margarine and how, for now, butter has the upper hand, which is funny because we’re back to hands, which obviously makes me think of my hands or at least my fingers. We’re back to my sloppy butter/finger metaphor. (Yes, I went there. Sue me. Puns are a sign of intelligence.) There’s no escaping this metaphor. It’s smeared all over this bleary essay like butter on a slice of toasted bread.

The thing is, margarine has a hell of a story. It rose to fame during World War II when butter was in short supply, so it and other fats were rationed.1 Margarine had been around since 1869, but it had a problem, which was its color.1,2 It was white. It was plain. It was super meh to look at, which made it unappetizing. We eat with our eyes, after all. (That’s actually not entirely true, and it’s an ableist thing to say.) In a word, margarine suffered from oilism.

The solution to the meh-ness of margarine? Dye!3 Margarine was mixed with vegetable dye to make it look sunny, like the butter everyone knew and loved, the color we used to paint our kitchens before beige then gray then greige then white then apparently beige again shouldered color out of our homes.

And here’s the really interesting part: The customer had to do the mixing. Margarine was originally sold in its white state along with a capsule of vegetable dye, which the “home cook,” meaning the woman of the house, had to mash into the margarine until the concoction turned yellow.3

But I digress. I’ll write a proper essay about margarine later. What I wanted to say this morning is that my dog, Lexi, got me up early. I understood exactly why because she came from an abusive situation in Texas where she was bred by an unethical breeder. She’s learned how to overread and overcommunicate with humans in a way I’ve never seen any other dog do. Strikingly, in the year since she’s lived here, she’s learned how to imitate me when she needs to convey something, anything, everything. She can’t use language like I do, but she knows how to use her entire body—from her ears to her eyes to her paws to her tail—in various combinations to say things like, Mom, quit giving me those silly kisses. Please know I still love you, though, and want you here next to me. Just ‘no’ on the kisses, OK?

She talks to my husband and me like this all day long, and it’s the most adorable and endearing thing ever. Dad, why are you close to the back door with that coat on, but you aren’t looking at me like you’re about to take me outside?

Or Don’t you see me lying here like a piece of driftwood, so good and so quiet, but also so hungry? I don’t want to be demanding or anything, but you totally forgot to feed me. You’re at least ten minutes late doing that. Do you want me to be this sad piece of driftwood forever?

Or, a new one she added recently that I had trouble translating: Mommy, mommy, maaaaaaaaaawmeeeeeeeee. I feel weird and have to, like, lie here like this on the rug in the middle of the living room, aimless and foggy. I don’t know what’s going on. Is the floor quicksand? Is it, like, holding me down or something? Am I, like, stuck here forever?

That was the day we gave her one-quarter tablet of trazodone before a visit to the veterinarian to make sure she hadn’t cracked her tooth on a toy that’s not supposed to be capable of cracking a dog’s tooth.

The most intriguing part of all this is that she acts like me. These aren’t generic communications. She tilts her head the way I do. She puts her paw on my chest the way I put my hand on Jon’s chest when he’s rushing up to me too fast and I need to whoa-nelly his overly enthusiastic approach. She mopes the way I mope and lets joy flood her body the way it floods mine. She even dances like me.

Lexi’s asleep now on the flokati rug in the living room that we call her Floofer, not to be confused with my electrophysiologist, who I call Dr. Flvoolr because that’s what I called him right when I came out of anesthesia the other day. (Dr. Flvoolr is not his actual name, but it’s sort of close. I got three of the seven letters right.) Lest you think we’ve relegated Lexi to the floor, that Floofer is on top of a fluffy dog bed which, in turn, is on top of our moderately uncomfortable mid-century-style sofa. It’s nearly a princess and the pea situation, Lexi’s Floofer setup.

My hands are warmer now, but they still aren’t serving me well. My ears are ringing. The keyboard still sounds like someone rummaging around inside a drawer full of Legos. The lamplight interrogating my desk is as taxing as the first general income tax ever imposed in our country, which occurred during World War II, when the number of Americans required to pay federal taxes rose from 4 million in 1939 to 43 million by 1945.4

(All that taxation and a gal couldn’t even get her hands on a stick of butter. I know, I know. It was a war. A big one. I get it.)

I want to go back to sleep like Lexi has, but now I’m staring the day right in the eyes. It’s staring back. I tried turning my head slightly the way Lexi would as a calming signal. The day isn’t averting its gaze. I’m trapped here among the wakeful, at least for now. Time to putter around the house, grab some breakfast, and catch up on the news. Kyrsten Sinema! Britney Griner! Elon Musk! President Biden and Title 42! Fourteen more books designated as “pornographic” by the Washington County School District in Utah—including several by poet and novelist Margaret Atwood! There’s never not news these wide-eyed days. My new favorite pastime is reading the news before my husband or my friend José has, then being the one to break it to them, especially when the news is salient, good, strange, or all three somehow—the perfect news trifecta.

Below, I’ve included a poem I started writing in 1995 about margarine when I was taking Robert Stewart’s poetry class at the University of Missouri-Kansas City. It’s not the best poem, but I like it and it’s relevant, so there it is. It’s my one-thousandth version of the poem and is the best shape I could whip it into. I may not have whipped it like butter, but I like to think I at least whipped it good.

—

Margarine During War

Women keep settling
(oleo, factory jobs)
though they pine for sex
the way they long
for butter on their lips.

After war, they dab
eye shadow and rouge for men
whose war-whores
didn’t teach them to kiss.

But the women
hoist skirts, drop stockings,
for soon the bread they’d break
would be kissed with butter
(real butter).

—

Sources

  1. Yglesias, M. (2013) Guns vs. Butter, Slate Magazine. Slate. Available at: https://slate.com/business/2013/07/butter-rationing-guns-vs-butter-in-world-war-ii.html (Accessed: December 9, 2022).
  2. Vaisey-Genser, M. (2003) “Margarine, Types and Properties,” in B. Caballero (ed.) Encyclopedia of Food Sciences and Nutrition. Second. Elsevier Science Ltd.
  3. Magazine, S. (2011) Food Dye Origins: When Margarine Was Pink, Smithsonian.com. Smithsonian Institution. Available at: https://www.smithsonianmag.com/arts-culture/food-dye-origins-when-margarine-was-pink-175950936/ (Accessed: December 9, 2022).
  4. Tassava, C.J. (no date) The American Economy During World War II, EHnet. EHnet. Available at: https://eh.net/encyclopedia/the-american-economy-during-world-war-ii/ (Accessed: December 9, 2022).

The Poem and the Body, the Body and the Poem

I intended to write a piece on poetry yesterday, but instead I experienced a tear in my retina. Right eye. Noonish. I saw white lights like fireworks, followed by a hovering gray blob that obscured my vision. It was roughly the shape of an acorn cap or a winter hat with a fuzzy ball on top. An ophthalmologist at KU Medical Center saw me right away. He looked deep into my vitreous gel with a fancy headlamp that made him look like he was about to go spelunking and exclaimed, I see the acorn in your eye! I thought he was making a joke, but apparently he could see a bundle of proteins torn from my retinal lining floating in the gel.

Why does the poetic image communicate faster than other forms? A few years ago, I asked this very question on Facebook and then proceeded to answer it myself. How annoying of me. My answer was as follows:

Arthur Koestler has an interesting theory. He says poetry requires thinking on a third plane, a kind of “bisociation,” meaning perceiving a situation or an idea in two individually consistent but habitually incompatible frames of reference. This bisociation disturbs our patterns of thinking/feeling and causes a crisis, which requires a third plane of thinking/feeling to arise, one that is antithetical to but that does not negate the strife of the two.

Since this moment of entry into the poem is a moment of crisis, I would argue that we respond to the crisis the way we are hard-wired to respond to all crises—as quickly as possible. Our entry into the poem is similar to pulling a hand away from a scalding object before realizing on a conscious level that the object is hot. It’s instinctual, a survival tactic. Perhaps bisociation in poetry works on this level as well—because of the crisis the poem presents, we move swiftly to a different mode of thinking/feeling that allows us to enter the poem without completely fracturing our identities, without obliterating our ways of seeing and moving through the world. Bisociation is a way of surviving the poem, of seeing the world as we experience it on a day-to-day level, then seeing the world of the poem itself, then seeing a plane on which to stand, one that straddles the two and gives the reader a place to exist, to breathe.

Perhaps this is why poems work on us so quickly, why the image communicates faster in poetry than in other forms of writing. Precisely because poems put us in crisis.

I removed that post from Facebook years ago, but I stashed it in my poetry files. I came across it today and appreciated it as one way to understand how poems work. I also appreciated my former self for leaving me this trace. It could prove useful when people ask me what poems are, how the mean, and under what conditions they operate.

If you look at a vertical sagittal section of the human eye, you are supposed to see something that resembles a camera. That’s not what I see. I see an angelfish without the fins. I’m sure this says something fundamental about me. The watery fish in the head. The brain home to an aquarium. The two specimens that cannot swim, that cannot escape, that do my bidding, that are forced to document the production.

In his poem “Trace,” Eric Pankey writes: To occupy space is to shape it. / Snow, slantwise, is not white / But a murk of winter-black basalt. / In the gullied, alluvial distances, / On the swallow-scored air, / Each erasure is a new trace.

Having a torn retina is not without its consequences. I feel like a mean girl punched me in the eye. Maybe at a bar. Maybe after I looked at her the wrong way. Maybe after she mistook the fireworks in my eyes for something I never intended.

If you look closely enough at a poem while wearing a headlamp, you can enter its recesses and observe the detail held within its vitreous gel. What drifts and where. What has lost viscosity with age and use. What holds fast. But when you occupy the poem, you change it. We change things by looking. There is no way around this.

When I told my husband about my retina, he asked if reading poetry might have caused the tear. I said poetry had no bearing on what happened. He seems to think poetry leads to disaster. I’ve tried to tell him for years now that we all lead ourselves to disaster, with or without poetry. Poems simply document the path from cradle to grave; from point of entry to point of no exit; from one dark, craggy landmark to another.

Forty-Four Signs of Immunotypical Privilege

Every day, as an immunotypical person —

  1. I can touch door handles and other surfaces in public without much concern.

  2. I can go out during flu season without worrying too much about contracting the flu.

  3. I can read about the recent resurgence in measles without feeling alarmed. After all, the measles vaccine is not contraindicated for me, and I know my body has mounted an immune response to the disease.

  4. If I get a slight cough, I don’t have to worry about it turning into bronchitis or pneumonia.

  5. My health status never goes from relatively normal to life-threatening in a matter of hours.

  6. When I take antibiotics, they work quickly and I only need one round.

  7. I haven’t been on antibiotics dozens or even hundreds of times over the course of my life.

  8. I have never been on prophylactic antibiotic therapy. I don’t even know what that is.

  9. I don’t have to routinely take medicines such as prednisone that weaken my bones and put me at greater risk for osteopenia and osteoporosis.

  10. I don’t have to wonder what comorbidity might be lurking just around the corner and if it will be a noninfectious condition, a malignancy, or an autoimmune disorder.

  11. I have never heard the phrase “immune dysregulation” and don’t have to concern myself with what that might mean.

  12. For me, boosting immunity means popping more vitamin C or Airborne. I have no idea what immunoglobulin is or why it’s essential to the human immune system.

  13. When I attempt to eat out, I don’t have to think too much about how long items are left on buffet tables or how well food is washed and prepped by food handlers.

  14. When I am out in public, I don’t have to worry when people cough into their hands or without covering their mouths at all.

  15. I can be sure that, when I go to classes, movies or restaurants, I will find a place to sit in which I am free from issues that exacerbate my breathing problems, such as perfumes, fragrances and cigarette smoke.

  16. I know I won’t have to pass on social activities because they would put my health at risk.

  17. I know family gatherings won’t pose a threat to my health, even if young children are present.

  18. If someone I love is in the hospital, I don’t have to think about when I can visit, how long I can stay, or other health considerations. I can fully focus on that person and his or her health needs.

  19. I can attend school, have a full-time job, raise a family, and engage in recreational activities without also having to manage the many conditions that would affect me if my immune system did not function properly.

  20. I can leave meetings, classes and conversations and not feel excluded, fearful, attacked, isolated, outnumbered, unheard, held at a distance, stereotyped, or feared because of my immune system.

  21. If I pick up a magazine or watch television, I will see images that represent me and my experience of my health.

  22. I never have to speak on behalf of all those who are immunotypical. My thoughts about my immune system can be my own with no need for political alliance relative to my immune function.

  23. My actual and potential contributions to society will not be challenged because of my immune system.

  24. I can go for months without thinking about or being spoken to about my immunotypicality.

  25. I am not identified by my immunotypicality.

  26. I won’t lose friends who can’t relate to what I am going through, who think I am exaggerating about my symptoms, or who just can’t deal with having a friend with my health status.

  27. I know I won’t be discriminated against by employers who neither understand my condition nor have the desire to provide a reasonable accommodation, despite the legal mandate that they do so.

  28. I do not have to be afraid that, when I talk with others about my health, they will suggest unsolicited supplements, dietary approaches or exercise programs.

  29. I will not be told by friends, family, and even uninformed members of the medical community that my condition is really just a psychological problem such as anxiety or depression.

  30. I know nobody looks at me and makes assumptions about why I appear to be ill (or well), or why I am too thin (or too heavy), or why I am not fit (or manage to stay fit despite my illness), or why I do (or do not) eat what I do (or do not) eat.

  31. I don’t have to explain why I have a lingering cough, why I might sometimes need to wear a mask in public, or why situations and settings that are safe for others may not be safe for me.

  32. Because I have never had to wear a mask in public, I have never been asked to leave a public place because the manager or owner of the establishment believes I am putting others at risk, when in fact the mask is to protect me from the pathogens others carry.

  33. I don’t have primary immunodeficiency, so I never encounter people who make the assumption that, despite the condition being genetic, I somehow brought it on myself through my diet or lifestyle.

  34. People aren’t embarrassed to be seen with me because of my health status.

  35. When I talk about my health, I can be certain that friends, family, co-workers and others will not become uncomfortable and change the subject.

  36. My partner doesn’t suffer from undue stress and hardship because he or she is my primary or only caretaker.

  37. Nobody tells me I should feel lucky to have primary immunodeficiency because it means I don’t have to work or accomplish anything during the day.

  38. My doctors have seen a lot of patients who are immunotypical. This means I am not put in the position of having to educate them about my immunotypicality, since they are already familiar with it.

  39. When I present in a health crisis at the emergency room, I am given prompt medical treatment, not told I am merely having a panic attack.

  40. Since I don’t have primary immunodeficiency, I am never called belligerent when an emergency room resident refuses to believe I have the condition and I am forced to insist that I do.

  41. I’ve never had the experience of being misdiagnosed over and over again throughout my life.

  42. I don’t have old misdiagnoses in my medical record that can’t be removed without a great deal of time and effort on my part.

  43. I don’t have to deal with the financial burden of expensive, ongoing medical care and therapy.

  44. I don’t have to face insurance companies that must review coverage for my life-saving therapy before that treatment is approved; that sometimes make patients go off their therapy for months in order for those patients to prove they still have the condition; and that sometimes deny therapy because they don’t feel the patient is ill enough to warrant it, despite documentation to the contrary in the patient’s file.

—

I live with common variable immunodeficiency and wrote this piece for Primary Immunodeficiency Awareness Month. It takes as its jumping off point Peggy McIntosh’s 1993 essay “White Privilege: Unpacking the Invisible Knapsack.”

To Sleep, Perchance to Dream

Yesterday Jon and I stood on a pier at Juanita Beach Park for a long, long time, waiting for the beavers to return to their den. We’d seen one of them bobbing along the far edge of the water, its wet furry head above, then below, then above, then below the surface. With only the head intermittently in sight, I had to imagine the rest of the creature, its chunky body and short legs, I supposed, paddling awkwardly beneath.

Sometimes the head would come up under a lily pad, which would become an impromptu hat for a foot or two before the plant’s tether would pull the leaf away and the wet furry head would again be revealed.

This is how night should come, I thought.

Jon asked if I was ready to leave yet. He becomes impatient with nature just as nature is about to reveal something to or about him. He likes to move briskly through landscapes because that keeps him in his safe, usual thoughts. Stopping poses a risk because that is when nature can change a person.

But stopping is important. We need to allow ourselves to let nature have a say in how we think about and move through the world. Just ask William Stafford, who urges us to let your whole self drift down like a breath and learn / its way down through the trees … Stand here till all that / you were can wander away and come back slowly, / carrying a strange new flavor into your life.

The beaver was nowhere in sight but we located a mother duck with six ducklings beneath her. She looked like an upside-down Easter basket with all its goodies underneath. She had found a nice spot to camp out for the night and was drifting in and out of sleep, opening her eyes whenever the grass moved, a small bird came near, or a firecracker was set off. I wondered then to what degree wildlife across the United States collectively worries on the Fourth of July. It must sound like the end of the world. Or hunting season.

Jon asked several more times if I was ready. “You ready yet, Bud? Ready now?”

This is how night should come, I thought again. It should come slowly over the trees, above the grasses. It should settle on the water just like this. It should guide the beavers gently and slowly through the water until they find themselves at the worn pathway leading to their den, where they pull themselves onto the mud and wriggle across decaying, tamped foliage, making the final turn into their home and out of our sight.

Yes, it should come just like this.

Last night is the first time in weeks I have not felt anxious and panicky as soon as the sun goes down. Since my test results, I have been so worried about what the diagnosis will be, what comes next and how my life could be severely altered or truncated. As soon as the light begins to fade, my heart rate and blood pressure have begun to rise. I have spent every night in a body that hums with fear. Fear has become its own composition with no end, no rests, no shifts in pitch or volume. Just its continual drone, its dissonant multi-tonal vibration.

But last night, night seemed natural. I was not afraid. I did not kick and scream my way into sleep or try to fight my way out of it once I was there. Last night I was a beaver. I was grass. I was water. I was that whole gloppy corner of the world taking up the darkness and whispering, Yes, yes.