Health

Blood Work

I’m basking in the afterglow of running the gauntlet of angry Utahns waiting to have their blood work done at the draw station when none of the phlebotomists managed to report to work, so another staff member who knows phlebotomy had to step in, even though that’s not her job.

The people in that waiting room were hungry because these are fasting tests. They were sick and old and impatient. They had things to do or nothing to do that they’d rather do elsewhere than at the draw station.

One had a repairman coming. Another needed to get back to his morning gardening. A third was assessing the situation from a systems-theory perspective. Things weren’t run like this when he worked in IT for military hospitals, he told me.

A fourth tried to jump the line and complained bitterly when he was told he couldn’t do that. A fifth ran through the halls with blood dripping from her arm where the needle had been inserted for the draw.

And then there was my favorite, an octogenarian who turned to her husband and shouted, “Well, this is going to take forFUCKINGever” loud enough for everyone waiting to hear.

Also, even with all the peeing I do day in and day out, there’s one time I can’t pee. It’s when someone tells me I need to provide a urine sample and hands me a clear plastic cup.

Dana for Mayor

My day hasn’t gone as planned. I went to get lab work done early this morning only to find out the orders were never placed, which means I won’t have results in time for my appointment with the specialist who (should have) ordered them. This is the doctor who, in part, is following my cancer status, so the labs are important.

I came home to an attempted identity-theft scam that Jon and I both had to deal with immediately. Things like this are happening more frequently, and they’re harder to identify. Someone tried to hack one of my online shopping accounts just three days ago.

I commented on a story in The Salt Lake Tribune in support of a gay mayor in one of Utah’s cities. Someone else in the queer community, another Utahn, saw my comment and thought I was saying the opposite of what I was saying. Their response was to tell me that I’m attacking the mayor based on his sexuality, that I’m not being Christlike, and that I’m so ugly-looking that they’d never live in a city where I was the mayor. Humph. I have many grumpies around that set of assertions.

My Fitbit died. I have no data whatsoever, and I rely on that data for my health and mental health.

I drove half an hour each way to see my therapist, where I hoped to talk about the parts involved in my strong feelings about the SLT commenter calling me an unattractive, unkind homophobe, but the therapist forgot my appointment, which means I drove for an hour for no reason and have three exiles I need to deal with on my own now rather than in therapy. (Exiles are a type of part in the Internal Family Systems framework. It’s not ideal to be exploring them alone.)

These are all small problems in the larger scheme of things, and they’re counterbalanced by an incredible conversation and connection I had with a fellow poet today. We talked about organization, one of my favorite topics, and poetry and community and dogs and mountains. I mean, it was good stuff.

Also on the plus side, there’s my sweet dog. And my relative ability to handle all these relatively small problems. And my view of the laccolith, which I can see now that the clouds have started to dissipate or move on or whatever clouds do.

Oh, and someone ran over a raccoon in our neighborhood, so there’s also that sad occurrence. That’s another item for the negative side of today’s +/- list. I wouldn’t have known if I hadn’t been making that fruitless round-trip drive to see the therapist.

You can file this under grumpy with a lower-case g or grumpy with a capital g or dumpy if you also think I’m so unattractive you would never live in a city where I’m the mayor. The last part of that sentence was written by one of the exiles. She was called ugly by her classmates almost every day of her life from preschool until she was well into puberty. We’re working through it.

The Napture

Today is not my day to experience the napture, that is being transported from Earth to heaven in the midst of a fabulous nap. Apparently, I will not have any nap at all today, despite being mostly awake all night with my sweet dog, who’s not feeling well.

Maybe it doesn’t matter. Fitbit thinks I’m asleep all the time for some reason, including while I was sopping my sweet dog’s vomit out of the wool rug in the bedroom while the ceiling fan—which I’d turned on accidentally in the chaos of the moment—mocked my nearly bare back with wave after wave of cold air. Maybe I really was asleep. Maybe I’m asleep now. Maybe we evolved from sleep into wakefulness, but we’re never fully awake, even when we think we are. Maybe Fitbit knows this about me, about you, about all of its wearers.

Lately, Fitbit’s also been like, Hey, your heart rate’s totally low these days, super job, which doesn’t make sense because I’m not properly executing any of my self-care stuff. I’m barely keeping up with the 57 biomarkers I routinely track, not to mention the dozen or so behaviors I monitor. I haven’t tallied the exact number of behaviors I track, which shows you how much I’ve been slacking. Data only works if you work that data, right? Can I get a high five?

I mean, I’m trying to be a data-driven lifeform, but I’m failing better day after day. I’m having carbs again this afternoon, for one thing: the no-bake cookies that are my undoing when I allow myself to be undone, that is eating an uncorseted diet that’s bound to tank my efforts at improved mental health. If I had my continuous glucose monitor on, I could see in real time what those cookies do to my glucose levels, and from that data I could infer what’s happening to my mitochondria. I could look at old data, but it’s not the same. I need to see in real time what I’m doing to myself so I’ll stop doing it.

This is serious work, and I’m messing it up, and I can’t even take a nap, which seems like it would help. Why can’t I nap? 1: Birds. They’re too loud. 2. Lexi. She’s too restless. 3. Heat. It’s 76 degrees in here, and I’m too hot, the kind of hot one feels when one is menopausal, though I’m long past those days. I’m carb-hot. I ate carbs yesterday, and it’s made me hot. Not in a good way. 4. Husband. Things with, including accusations that I said something mean in all caps when I believe I said it all lowercase. 5. Husband again. Making silly vulgar gestures at me while someone I was talking to on the phone was telling me something awful and important. 6. The awful and important thing I was told and how I can’t do anything about it and how the whole world seems like a gaping maw sometimes, not at all heavenly, not at all a place where naps can be imagined or hoped for, let alone naptures.

HK

Three needles in my left arm deliver the immunoglobulins that I don’t make on my own. They used to come in little glass vials, which I loved because they were old-timey. Now, they come in big plastic syringes packed in more plastic with stoppers and plungers that are all plastic. Plastic is too much with us, and we’re moving toward it rather than away from it. Ah! But fungi can eat ocean plastic! Problem solved. Make more plastic. Empty barges full of it right into the water. Set off in your boat full of sachet packaging and throw it all overboard. No worries. The fungi got you. They got you.

It’s overcast today, windy. My neighbor’s roof vent is clanking every few seconds, its head spinning indecorously. Someone is backing up as evidenced by their truck making two discordant beeping sounds in the round. mleh MLEH mleh MLEH mleh MLEH. I want to walk through the world sounding like that, letting people know how I really feel. MLEH fucking MLEH MLEH mleh MLEH. I think I might already be doing that. I wonder what wild animals think of those sounds and if they’re as irritated by them as humans are or at least as this human is.

I’m looking at something round on my desk, now something octagonal, now something rectangular. I like the shapes of things and how they morph into shapes that aren’t tidy and that don’t have a name and that require calculus for analysis. I used to be able to do that. I could find the area of an irregular shape. I could rotate and translate shapes. I loved it because I loved my calculus teacher, who’s dead now: Lenny Gibson. He invented the abbreviation HK for who cares. I say that to this day. I give no shits about people understanding the reference. Mr. Gibson was a lot like the comedian Steven Wright. Who’s Steven Wright, you ask? HK, you’re probably thinking.

What’s the equation for loss, for memory, for a circle turned into a gaping mouth turned into a nightmare or a crime scene or a missing person report or an AWOL marriage? What’s the equation for who gets an immune system and who doesn’t? For who receives whatever’s being backed into their driveway? For who has a driveway? For who gets to keep existing.

Where’s the equation for dead water and dead forests and dead humans. I mean living humans who are effectively dead, who want death, who would come up with an abbreviation for killing everything in sight and say it proudly. Something that goes beyond WWG1WGA or 14 Words. Something unthinkable, unimaginable, until it’s seen and heard and cannot thereafter be unthought or unimagined.

Hard News, Bad Choices

Several alarming news stories have run in The Salt Lake Tribune over the past several days. They all have ties to Utah and involve children. Each story is horrific on its own, but together, they’re overwhelming. I cried most of yesterday morning. It was too difficult to process this news, especially given what’s happened and appears to still be happening in [REDACTED], so I engaged in several forms of avoidance, including employing maladaptive coping skills that threw my metabolism off and undercut the work I’ve done following a ketogenic diet for mental health, doing intermittent fasting, exercising, getting the right nutrients, and maintaining healthy biomarkers.

I’m writing about this because I can see how something that’s upsetting can cause someone (in this case me) to do one thing that throws something off, which in turn throws something else off, which in turn throws something else off. Then maybe more bad decision-making gets thrown into the mix as things start to slip, and pretty soon a little movement in the ground turns into a mudslide that swallows an entire house, trees, retaining walls, and more.

Yes, the upsetting thing is upsetting, but the behaviors that follow and aggregate are what drive the mind and body into a state of disequilibrium that prevents a person (still me) from finding ways to sit with and work through what’s upsetting to whatever extend they (again, me) are able to.

Here’s what went down yesterday. Upset about the news stories, I developed a sudden craving for brownies. It was an all-encompassing desire. I went to Lin’s, where they sell Num Bars, which are ketogenic. They didn’t have them. (Turns out, the Utah-based company went out of business.) In my desperation, I got no-bake chocolate cookies instead. (This is when the whole ageism incident happened with the cashier, which added to my distress.)

I came home and ate the whole container of cookies, thereby consuming four times my typical amount of carbs, and none of those carbs were good ones. My body can’t tolerate carbs anywhere north of 50 net grams per day. (I have data from my cardiologist and endocrinologist that supports this assertion. It’s not just a thing I’m saying to be dramatic.)

The rest of the day, I made terrible choices or simply didn’t do what I should have done for my health. I failed to take my supplements. I didn’t drink water. I didn’t do my intermittent fast. I didn’t eat enough protein or, really, anything healthy for the rest of the day. I didn’t lift weights, something I do regularly for my metabolic health. I didn’t exercise. I didn’t meditate. I wasn’t mindful.

In short, one bad choice became more than one dozen bad choices.

Here’s the thing: I was terrified of having nightmares last night based on those news stories. I’ve already had several nightmares involving my family in the past couple of weeks, one of which was incredibly difficult to process. So I sabotaged my sleep before I even went to bed. I’m not surprised that I woke up at 3:46 a.m. this morning and had trouble falling asleep again or that my sleep was especially restless according to my Fitbit or that my sleep score was ten points lower than usual.

What I am surprised about is how difficult recovering is for me. I have a seven-day intervention I do when I need to really focus on my metabolic health. I told myself I’d start that intervention today. I didn’t. Instead, I stayed in bed most of the day. I just now made my way to my computer. My food choices today aren’t great but they aren’t stellar, either. My digestion is hosed, again, just after I got it back on track. I haven’t exercised. It was a struggle just to get dressed, to make the bed, and to make my way to the living room, where I stopped for a long while and watched reruns of “The Conners” as I mustered the strength to get to my computer. I haven’t bathed. My hair is weird. I didn’t even have it in me to put on lotion.

And it’s cold and the days are short, which makes getting on track that much harder.

This all illustrates how a single genuinely upsetting thing can lead to a systemic issue and why it’s so important that we recognize these kinds of patterns. I know I’ve been talking about me, but I’m not the only one who experiences this kind of domino effect under stress. Many of us do, perhaps most of us.

Right now, I’m trying to do things that will help my body recover. I’m starting with water. That seems doable. Then I have to process these stories about children without doing more harm to myself. I don’t know how to do that. Process the stories, I mean. How does one come to terms with the kinds of things discussed in this type of reporting, things happening here in Utah, across the country, and around the world? I want all living beings to be free from suffering and the causes of suffering, but we’re often the cause, and children should never suffer the way too many of us make them suffer.

A Cascade of Bad Choices

Several alarming news stories have run in The Salt Lake Tribune over the past several days. They all have ties to Utah and involve children. I can’t be more specific without being censored by Facebook. Two of the stories are linked in my feed if people want to read them. There’s a paywall, but you can get an idea of the subject matter by reading the parts of the stories that are visible.

Each story is horrific on its own, but together, they’re overwhelming. I cried most of yesterday morning. It was too difficult to process this news, especially given what’s happened and appears to still be happening in my own family, so I engaged in several forms of avoidance, including employing maladaptive coping skills that threw my metabolism off and undercut the work I’ve done following a ketogenic diet for mental health, doing intermittent fasting, exercising, getting the right nutrients, and maintaining healthy biomarkers.

I’m writing about this because I can see how something that’s upsetting can cause someone (in this case me) to do one thing that throws something off, which in turn throws something else off, which in turn throws something else off. Then maybe more bad decision-making gets thrown into the mix as things start to slip, and pretty soon a little movement in the ground turns into a mudslide that swallows an entire house, trees, retaining walls, and more.

Yes, the upsetting thing is upsetting, but the behaviors that follow and aggregate are what drive the mind and body into a state of disequilibrium that prevents a person (still me) from finding ways to sit with and work through what’s upsetting to whatever extend they (again, me) are able to.

Here’s what went down yesterday. Upset about the news stories, I developed a sudden craving for brownies. It was an all-encompassing desire. I went to Lin’s, where they sell Num Bars, which are ketogenic. They didn’t have them. (Turns out, the Utah-based company went out of business.) In my desperation, I got no-bake chocolate cookies instead. (This is when the whole ageism incident happened with the cashier, which added to my distress.)

I came home and ate the whole container of cookies, thereby consuming four times my typical amount of carbs, and none of those carbs were good ones. My body can’t tolerate carbs anywhere north of 50 net grams per day. (I have data from my cardiologist and endocrinologist that supports this assertion. It’s not just a thing I’m saying to be dramatic.)

The rest of the day, I made terrible choices or simply didn’t do what I should have done for my health. I failed to take my supplements. I didn’t drink water. I didn’t do my intermittent fast. I didn’t eat enough protein or, really, anything healthy for the rest of the day. I didn’t lift weights, something I do regularly for my metabolic health. I didn’t exercise. I didn’t meditate. I wasn’t mindful.

In short, one bad choice became more than one dozen bad choices.

Here’s the thing: I was terrified of having nightmares last night based on those news stories. I’ve already had several nightmares involving my family in the past couple of weeks, one of which was incredibly difficult to process. So I sabotaged my sleep before I even went to bed. I’m not surprised that I woke up at 3:46 a.m. this morning and had trouble falling asleep again or that my sleep was especially restless according to my Fitbit or that my sleep score was ten points lower than usual.

What I am surprised about is how difficult recovering is for me. I have a seven-day intervention I do when I need to really focus on my metabolic health. I told myself I’d start that intervention today. I didn’t. Instead, I stayed in bed most of the day. I just now made my way to my computer. My food choices today aren’t great but they aren’t stellar, either. My digestion is hosed, again, just after I got it back on track. I haven’t exercised. It was a struggle just to get dressed, to make the bed, and to make my way to the living room, where I stopped for a long while and watched reruns of “The Conners” as I mustered the strength to get to my computer. I haven’t bathed. My hair is weird. I didn’t even have it in me to put on lotion.

And it’s cold and the days are short, which makes getting on track that much harder.

This all illustrates how a single genuinely upsetting thing can lead to a systemic issue and why it’s so important that we recognize these kinds of patterns. I know I’ve been talking about me, but I’m not the only one who experiences this kind of domino effect under stress. Many of us do, perhaps most of us.

Right now, I’m trying to do things that will help my body recover. I’m starting with water. That seems doable. Then I have to process these stories about children without doing more harm to myself. I don’t know how to do that. Process the stories, I mean. How does one come to terms with the kinds of things discussed in this type of reporting, things happening here in Utah, across the country, and around the world? I want all living beings to be free from suffering and the causes of suffering, but we’re often the cause, and children should never suffer the way too many of us make them suffer.

Unthinkable

Awake is my least favorite word when I don’t want to be. Our water purifier started making a high-pitched noise a few minutes ago, a steady ewwww like a piece of industrial equipment humming in the distance, at once piercingly but almost inaudibly. I unplugged it, but the sound made me hyperfocused on my tinnitus, so now I’m just a body that screeches and won’t stop.

I took some sleep medicine, something I rarely do. As I wait for it to kick in, night thoughts do their dark work. I don’t ruminate about minor issues like some folks. My waking nightmares are about my father, my family, Oklahoma, me, the ways in which I’ve been purged, and the things I feel like I need to purge that find me at night when I’m closer to my personal unconscious and the collective unconscious than I am during the day.

I had an unthinkable thought that was immediately ushered by my circuitry to every central and distal part of my body. My feet. My hands. My tongue. My scalp. My shoulders. My gut.

What if, I thought. What if it’s true?

This particular thought is a hard one to put on a shelf until I can process it in the light of day. The “what if” feels less like a possibility than a haunting, a visitation declaring what the world is and who I am in it. I don’t like either. I hope I’m seeing an old lady that’s really an owl, like in one of those optical illusions.

The unconscious realms are beautiful and terrifying. I’d prefer a different ratio of beauty to terror right now. I’d rather experience both while asleep, not while sitting in bed awake, my warm dog pressed up against my calf doing what I can’t do: slumber. I feel her breath on my foot. I feel her chest rise and fall. I feel how soft and small and fragile she is. I feel how much I love her and how much I don’t want to be a monster in a monstrous world.

Awake is my least favorite word when I don’t want to be. Terror is my second least favorite. Monster is my third least favorite. To be an awake, terrified monster inside of what is monstrous is nothing I’d wish on anyone.

The House

The house has been doused with gasoline. (You’re welcome in it.) The floor of the house is littered with matches. (Take your shoes off.) The house has no fire alarms. (Have a seat.) The cops don’t respond to house fires in these parts. (Kick your feet up.) The house is on fire now. (Be a love and close the door to save the rest of us.) The house burned down. (We wrote you a loving obituary.)

The loving obituary: We adored them. For some reason, they always looked uncomfortable around us. We did everything we could to make them feel right at home. They died before their time. Sometimes, [insert adjective here] people aren’t meant for this world. We will always remember them fondly.

—

I wrote this July 12, 2023. It’s about how we treat people we want to exclude while they’re alive versus how we talk about them once they’ve died. I was thinking specifically about how queer folks and those living with trauma and/or mental health issues are treated—and the ways in which the very people who exclude those folks from their homes, lives, families, schools, workplaces, places of worship, communities, and societies take no responsibility for their eventual, often untimely, deaths. There wasn’t anything we could have done is a common refrain. Really? Nothing. Not one thing?

I was also thinking about how it felt for me to live as a queer non-Mormon person with trauma and mental health issues here in Southern Utah, where I was routinely excluded and reviled even in literary communities. The poets who run two separate chapters of the Utah State Poetry Society told me they’d close their chapters down if I ever attended them because my work was inappropriate. I was a member of the USPS at the time and had every right to attend any chapter meeting in the state. Their issue was with my gender and sexuality, not my writing, which they hadn’t read.

I’ve thought about this post a few times since the election, so I decided to share it again. We need to bring the way we talk about the dead and the way we treat the living into alignment.

How to Survive in My Father’s World

  1. Write poems.

  2. Hydrate. Eat. Sleep. Exercise. Meditate.

  3. Love yourself. Love your body. Trust yourself. Trust your body.

  4. Put yourself in the world and know that you belong there. The world is bigger than people with power.

  5. Find the exits. Know the exit routes. Plan your exit. Then enter.

  6. See clearly, even what you don’t want to see. Bear witness. Take notes. Synthesize. Learn. Speak. Sing. Recite. Remember.

  7. Write more poems. Stronger this time, more sure-handed, until metal strikes against metal.

  8. Pay attention but do not seek attention. Turn your attention into a Mobuis strip that moves inward, then outward, then inward again with no beginning and no end.

  9. Read people’s bodies more than their words, unless they’re poets, then read their bodies and words together.

  10. Call bullshit bullshit unless it’s meant to be bullshit, then let it be what it is without calling it out. We need a little bullshit, now more than ever.

  11. Read poems. Learn to move in and out of their white space. Listen and respond, listen and respond. Breathe through the lines. Inhale poems, exhale poems.

  12. Believe in poems and their power. Don’t give up on poems.

  13. Write more poems. Softer this time. Less heavy-handed, until the weft of each poem is as strong as churro wool.

  14. Fawn if needed for survival but only for survival. Try not to freeze or flee. Remove the “r” from fright and fight if that’s the only available option.

  15. Be ready to run. If needed, run. But circle back. Never leave. Draw an arc around the threat from a safe distance. Make that arc smaller every day. Remember: You belong.

  16. Know when you’re with someone who’s hostile. Know that anyone can be hostile.

  17. Be hostile if needed. Be loving as much as possible.

  18. If you don’t write poems, instead do whatever you love, whatever keeps you alive.

  19. Write poems.

Weaponing Healthcare

Today, my primary care doctor opened my appointment by telling me that he believes I’m a hypochondriac. I’ve survived and/or live with multiple illnesses, including cancer. I live with more than one rare disease, including common variable immunodeficiency, which is serious and life-threatening. I have autoimmune diseases, renal insufficiency, postural orthostatic tachycardia, and arrhythmias. I’ve been treated for atrial fibrillation. I have aortic root and ascending aortic dilations. And I have PTSD and serious, life-threatening, bipolar.

All of this is documented in my medical record at Intermountain, where my primary care doctor works. It’s not in my head. It’s not me imagining health issues that don’t exist. They exist, and I’m attempting to address them. I worked as a medical writer and editor at some of the best institutions in the country for years. When I get a diagnosis or face a health challenge, I do research and have the determination to address the situation however I can.

Today, I was asking about my fasting blood glucose being over 100 for the past two years. That’s diagnostic for prediabetes, but none of my doctors brought the high results to my attention. High blood sugar seems like something I should be able to discuss without being called a hypochondriac. It’s especially important given that my chances of developing diabetes are 3 to 4 times higher because I have bipolar disorder.

I was also at the appointment to discuss my BUN level and (BUN/creatinine ratio). My BUN has doubled in the past 5 months and is above the normal range. Perhaps that’s not an issue, but given my history of renal insufficiency and the fact that lithium, which I started taking at a higher dose 5 months ago, causes kidney disease in about 26 percent of patients, the higher BUN level seems like a valid issue to raise.

Healthcare systems don’t seem to welcome the type of patient I am—one who’s female, has chronic health issues, and has a mental health diagnosis. We wait years or decades before our issues are taken seriously and addressed. By that time, we often have medical trauma because of how the healthcare system has treated us or our conditions have progressed, often irreversibly, because we were gaslit into thinking it must all be in our heads, a point our doctors belabor.

If I can’t approach my doctor for routine care, explanation of test results, or to discuss a health concern—the very things primary care providers are supposed to do with their patients—without the entire encounter being dismissed as evidence of a mental health problem, then why am I even trying so hard.

This isn’t the first time this has happened here in Southern Utah. Another doctor at Intermountain denied the fact that I had atrial fibrillation despite a preponderance of evidence that I had the condition. I was denied the medication I needed because of his insistence that I didn’t have afib. Yet another doctor at Intermountain tried to tell me my diagnosis of common variable immunodeficiency was unfounded despite the fact that I have extensive documentation of that disease from accomplished immunologists who know how to diagnose and treat immune system dysregulation.

I’m tired. I’m tired of this treatment. I’m tired of this sexism, this ableism, this dehumanization. I’m just tired. These attitudes and behaviors on the part of doctors cause unnecessary and severe iatrogenic illness for those of us who are subjected to them. I can’t carry that burden on top of my actual health and mental health issues. I’m tired.