Health

Bloatano

I lost my phone for a while today and had the exact same feeling of being untethered that I experienced when my mother died. Unfortunately, this played out in front of my therapist, so he no longer has some image of me as a moderately reasonable or quasi pulled-together person.

I wrote a poem. It’s not about my phone, but I do have a poem about my phone because I love it. I mean her. I mean Aluminium. That’s her name. She and I have bonded over the fact that we both contain lithium. She has a little case with a cover on it that’s kind of like the leather pocketbooks my mother’s cigarette company used to give its customers for free. I love her. I also love my mother, who died on December 20, 2004. Oh, that’s what’s happening. That anniversary’s coming up in two days, hence all the big emotions directed at Aluminium.

This Calibri T-shirt is getting tighter as the night wears on. It feels like a corset and not in a good way. Bloatano has entered the building. I mean my body. I mean I’m bloated, but Bloatano sounds better, like the monster that GI distress is. The internet says I’m the first person ever to use the word Bloatano, so that’s kind of a big deal, which means I’m kind of a big deal. Bloatano also affects my ego from time to time, clearly.

I blocked three people today. It was super. My image of the medieval badge gave me the courage I needed in the precise moment I needed it. I can’t wait to hold all those little phalluses in my hand when the actual badge arrives. If phalluses really ward off evil, I’ll have ample protection.

Bad D(a)NA

I took a genetic test last year. It said my overall health score is in the 74th percentile. I was like, That sounds about right. Well, I looked at my score again today and saw that it can be broken out into DNA and lifestyle. My lifestyle score is in the 99th percentile. My genes? Only the 49th percentile. Half of the genes they look at promote health. The other half strongly promote illness, disease, and disorder. And I do have a number of health issues, rare diseases, syndromes, and one big, fat disorder. So it’s not off.

So far, the company has identified 149 potential risks based on my DNA. I recognize a bunch of them because they aren’t just risks. They’re acute and chronic issues I have, like heart arrhythmia, thyroid inflammation, dyslexia, and mania. It even picked up on my sugar cravings, tendency to worry, droopy eyelids, rosacea, TMJ, and obsessive-compulsive tendencies.

And that 149? It’s not even factoring in things like postural orthostatic tachycardia syndrome, common variable immunodeficiency, and follicular thyroid cancer, all of which I’ve had or currently have.

I can add labs to my report to bring my overall score up. (Aside from my TSH lately, my labs are awesome, mostly because they miss a lot of things.) But I can’t get over that DNA percentile. How am I a viable organism? How am I here? Am I dreaming this life? Are a groin hernia and leaky gut really in my future? Do I have a future?

In the words of my fellow Gen X elders: What gives?

Pill Fight

Because Thanksgiving somehow marks the start of the new year for me, I spent part of the day doing what people do as they move from the old year to the new one: creating a schedule for the thirty-three vitamins and supplements and five medications I take.

Half of what I take interacts with one or more of the other things I take, so putting this schedule together feels like getting a poetry manuscript in the right order. It’s also like doing calculus, which I vaguely remember. Math was always fun and games for me until the answer invariably came out wrong and I had to start all over.

I have diagrams with things that are crossed out, things I’ve moved multiple times, pictures I’ve drawn of pills fighting with each other, little swords in their little pill hands. My floor, covered in sticky notes, has been transformed into a pink-paper sea of faded, flattened blossoms, each a failed attempt to meet every substance’s needs without compromising any other substance’s needs or my needs, which is the whole point of this undertaking. I have to be careful about how and when and why I introduce new substances to the watery admixture that is me.

I have a bunch of tabs about chemical interactions open on my computer. I have a brand-new Trello board full of notes. I’m very close to writing a raggedy-edged poem ranting about pills and people in the style of Charles Bukowski.

The Trello board has a white-stucco background depicting stairs leading to a colonnade whose immersive columns rise all around me, or so it seems, like bleached bones. I chose the photo for all my boards related to my health. It makes me feel safe somehow, like I’m inside my own body, which is at once dead and also impenetrably strong. It’s almost like one of the liminal spaces in my dreams, but I never futz with pills in my dreams or boluses I empty under my tongue or sticky fluid made from other people’s plasma that I absorb under the skin through needles I jab into my upper arms. I’m too busy running in my dreams or flying or falling. Unless I’m in the grotto. I could stay in the grotto forever, and I will if we get to choose where we go next, once the pills stop working and the cathedral of the body collapses and someone burns me like a banned book, like a bra, or maybe like a flag.

Dissolving and Emerging

My severe hypothyroidism is taking a toll. For the past two weeks, gobs of hair have been falling out every day. I’ve been in bed since Friday. I need to have blood work done to see if the new dose of thyroid-replacement medication is improving things at all, but I didn’t have the energy to call the lab to schedule an appointment because the required opening up the cabinet where I put the lab paperwork, pulling it out of a stack of papers, finding the phone number, dialing the phone, and talking to someone. Too much. Also too much: doing my immunoglobulin infusions, the ones that keep me alive; preparing for the support group I’m facilitating that starts this week; hydrating; exercising; bathing; eating.

In this hypothyroid state, which has been creeping up on me since last fall, I’ve also been thinking a great deal about poetry and what I’m doing as a poet. A hypothyroid state isn’t the best one to be in when having these thoughts, but anyone who’s been hypothyroid knows these are the kinds of thoughts one has when hypothyroid.

Here’s my conclusion. Poetry is, at its worst, a discriminatory and harmful system. I’ve experienced discrimination and harm firsthand. But the system being what it is doesn’t make it one I can walk away from. I’m a poet. Being a poet isn’t something I chose or can unchoose. It’s a way of being.

When I was close to death in 2022, writing an imitation poem after Richard Siken is what brought me back to life and what allowed me to continue living. There was no question for me then that I was bound to poetry, to being a poet. It doesn’t matter that it was a Richard Siken poem. It could have been any poem, imitation or otherwise. I time-traveled in that poem. I found my way into and through time itself, not because I’m special or any given poet is special. What’s special is poems: who we are in them, who we aren’t, what we see, what’s beyond seeing. That dissolving when we need to dissolve. That emerging when we need to emerge. That liminal space between dissolving and emerging where we can live more expansively.

I came back to poetry. I can’t leave it again. I think my presence makes poetry better, not worse. I’ve written about what happened to me in poetry and beyond. I see issues at the systemic level and call attention to them. Because I’m older, I have a longer memory than a lot of poets do, which gives me insights others may not have. I make choices about where to send my work and who to associate with accordingly, which is necessary when poems enter the world of poetry, that less-than-optimal system that can and does do damage.

I’m neither a sycophant nor the poetry police. I call things like I see them. I’m not trying to make anyone feel bad about the unexamined biases that exist in poetry or the ways in which they may be contributing to those biases or at least not helping alleviate them. I do think we should all pay more attention to the institutions and organizations we support, the people we defend, and how we talk about those who are exploited and otherwise victimized within the system. But I know I can’t change anyone or the system as a whole. I can only control how I navigate it and who I am within it.

I suspect things would be different if poets didn’t have jobs to worry about or tenure or getting published or securing money for their projects or any of the other pressures that keep the system humming along without much change over the past several decades. I’m not fettered by any of that. I just read and write poetry.

I still remember Carolyn Kizer telling a group of poets that another famous poet tried to rape her. It was at a dinner before a reading she was giving. I also remember how the other poets at the table responded, which was to react in a flustered way and quickly change the subject. That was nearly thirty years ago, when I was just starting to write poetry. But what happened to her occurred decades earlier.

Poetry has had systemic issues that affect individual poets for a long time. These issues didn’t start yesterday, and they won’t end tomorrow. That’s why I’m not going to stop writing poetry or talking about what I’ve experienced and seen in the poetry community. Carolyn Kizer was talking to me that day in 1997. She was warning me. I heard her. I try to hear everyone who speaks.

Ribbety

A standard poodle seems to be driving the Yaris in front of me.

I thought American Sentences would lead to real poems, but no.

Saw a guy walking down State Street in Hurricane dressed like a chicken.

Wrong-way crash. I drag my lifeboat to the scene. There are no survivors.

My lifeboat believes
in water, what it can do,
not what it doesn’t.

I brought my lifeboat to the wrong ocean. The water spat it at me.

I’m stuck. The ship is sinking. I brought a lifeboat, but it’s the wrong one.

I turn the lights on in my house clockwise so time doesn’t go backwards.

My mind is a wild turkey scaling a basalt ridge without its flock.

To avoid writing poems, I’m rejuvenating my throw pillows.

I washed all my walls today because who can write poems with dirty walls?

Me: I only get seventeen syllables? Screw that. I’m outta here.

Jon turned on the heat, so now I have to sing Glenn Frey’s “The Heat Is On.”

Dreams:

Walked down a long peer and saw you’d turned into a drug lord. I said hi.

I decided to marry you because I liked your dogs. They were small.

I dreamed the best American Sentence but forgot it when I woke.

It went, like, something something something something something something something.

It’s strange how little I have to say when I have finite syllables.

Feces-covered toilet plunger left in hotel hallway. Good morning.

Tomorrow, we see the doctor but today we bird at Utah Lake.

I was with people in my dreams last night and cannot remember them.

Something good, a party maybe, or something bad. I can’t remember.

Whatever it was I left it, then went back to it. The dream, I mean.

I like my body right now, enough, the functionality of it.

When we get back home, I’ll write real poems, not just these bullshit sentences.

Back is filler in that last sentence, which is why it’s total bullshit.

American Sentences can make me say things weird or not at all.

I’ll get some good ones out of this. I just know it. Me of big, fat faith.

Not everything fits into poems. Not everything fits in the world.

I sort of like that last American Sentence, but I don’t trust it.

I guess that’s the deal. Do I trust myself in language and in the world?

Good morning, we scare each other, on the other side of fear is love.

Butter, my rubber chicken, got a plastic cat dressed as a chicken.

Butter is also plastic, not rubber, but I haven’t told her yet.

So many tall, beautiful people here you could put them all on cakes.

My sleep score last night was dude what do you even think you were doing.

I forgot to pack shoes: I came in slippers and must live in slippers.

Gotta hit the road for a medical vacay these days in Utah.

File under Make American Healthcare Inaccessible Again.

At least we’ve put some miles between us and the Utah measles outbreak.

And I got this rubber chicken who loves me more than politicians.

I found my boots: Now, I have my boots, slippers, and a rubber chicken.

I named the rubber chicken Butter and held her as I slept. She squeaks.

Butter is filling me with microplastics, I’m sure, but also love.

Olivia Newton-John’s “Magic” wakes me from sleep in the hotel.

How the song found me in Provo, I’ll never know: some kind of magic.

Make America Sacred Again spray-painted on a pink trailer.

In Provo, Utah, with nothing but slippers and a rubber chicken.

Telling someone you feel emotionally unsafe around them because of their language and behavior isn’t a dangerous thing to say in general or to a white man in this day and age. If someone tells you that’s the case, they aren’t listening to you. They aren’t hearing you. They are reacting in a way that’s most likely in keeping with the things that made you feel emotionally unsafe around them in the first place.

I’ve been spelling tripartite tripartate and pronouncing it tripartate for more than thirty years is how I am.

I can do whatever I want in a poem, more so than in the world.

I have outgrown my underwear is how I am.

I’m looking at Bill Knott’s poetry archive and thinking what’s the point we’re all going to die is how I am.

When we fail to recognize sanism and ableism in all its forms, we fail to protect ourselves and each other.

I can’t keep attempting to raise consciousness in my local community, online, and in poetry circles to the point of having medical episodes and mental-health destabilization so others can keep catching up and catching up and catching up … but never actually do. I’m tired. Literally sick and tired.

Give us ribbety or give us death. — Sign at No Kings Protest

Ren Wilding is an astounding poet. Reading their work makes me feel like someone’s cracked my chest open and inserted a better heart.

Him: If someone does something wrong in poetry, you need to name them publicly to warn others.

Also Him: I’m afraid you’re going to say something about me that hurts my writing career.

Me: I’m going to have a nice day.

My Intestines: Not so fast.

A group of frogs can be called an army, a chorus, or a colony. I call a group of frogs a democracy.

I used to want to be the cylindrical container that shot through the pneumatic tube at the bank. I also wanted to be the money inside the container. Anything to not be human.

I made a bunch of big decisions, I’m in the bed, and the life partner is bringing me no-bake cookies, ice cream, and caramel corn is how I am. My therapist said this is OK. I’m not so sure.

I stole the last Zevia in the house from the life partner is how I am.

I’d rather be too soft for this world than too hard.

I’m eating caramel corn while lying in bed with my dog on me is how I am.

We can be born after we’re born, and it doesn’t need to happen in a religious framework.

The Harvest Moon Supermoon and the Waning Gibbous Moon are stealing my dreams. I need those dreams. They’re for me, not for various and sundry moons.

Half of what you’ve done has already been done before and by half I mean all.

The life partner has informed me that he’s no longer angry with me. We just woke up. We haven’t even interacted today.

Your work matters, what you do in the world matters, and you matter. Thank you all for what you create, what you share, and for your kindness.  

The white-crowned sparrows have arrived for the winter, which means joy has taken up residence in this desert.

I just thought about baby animals, and I’m suddenly very happy.

When I see nothing but darkness, teach me to see the dark. When I hear nothing but darkness, teach me to hear the dark. When I feel nothing but darkness, teach me to feel the dark. When I realize I am darkness, teach me to love the dark that I am. The darkness of my body. The darkness of my mind. The darkness I came from and will return to. The darkness that is all that is.

I would really love to be in a room where I feel wanted, welcome, like I don’t have to hide essential parts of myself, where I don’t have to listen to things that are painful and othering, and where I can speak in full voice without shame and trepidation.

Poets who see folks with psychotic disorders as terrible people can fuck all the way off. Poets who stand up and teach that kind of shit can fuck off even more.

When you think you’re the destination, but you’re just the obstacle.

I love a good fight on cuneiform tablets.

The only thing worse than having wet hair is having wet hair in a new place.

Your cracks are how the universe enters you.

I just googled what is a sand time thing called is how I am.

Updated Immunotypical Privilege List

In 2014, I wrote a piece titled “44 Signs of Immunotypical Privilege” shortly after my diagnosis with common variable immunodeficiency. It’s a compilation of my experiences and those articulated by others living with various forms of primary immunodeficiency. The Irish Primary Immunodeficiencies Association published it on their site and had plans to make it into a brochure, though I’m not sure the brochure ever materialized.

My piece was inspired by Peggy McIntosh’s famous essay, “White Privilege: Unpacking the Invisible Knapsack,” written in 1998. I later updated my piece when “COVID” and “monkeypox” became household names. It’s now titled “46 Signs of Immunotypical Privilege.”

I plan to write a new piece titled “44 Signs of Neurotypical Privilege in the Poetry Community.” It won’t make people feel comfortable. That’s not the point. The point is that it needs to be written, and it matters, and I can’t see how to not do so after what amounts to an executive extermination order against those with mental-health issues. Ask Brian Kilmeade. He sees that order for exactly what it hopes to be and understands exactly what it allows those who hate us through and through to say, including my fellow Utahns.

—

46 SIGNS OF IMMUNOTYPICAL PRIVILEGE

Every day, as an immunotypical person—

  1. I can go out when COVID is circulating without being in a high-risk category that makes me much more likely to be hospitalized, die, or develop long COVID.

  2. I can go out during flu season without worrying too much about how serious contracting the flu could be.

  3. I can see the exponential rise in monkeypox cases and not worry that I might be especially vulnerable to the disease.

  4. I know my immune system will respond to flu and COVID vaccines. I might even skip vaccination altogether without serious health consequences. Attenuated, live vaccines such as the one for monkeypox are safe for me because my immune system works properly.

  5. I can read about measles resurgences without feeling alarmed. After all, the measles vaccine isn’t contraindicated for me, and I know my body has mounted an immune response to the disease.

  6. I can touch door handles and other surfaces in public without much concern.

  7. If I get a slight cough, I don’t have to worry about it turning into bronchitis or pneumonia.

  8. My health status never goes from relatively normal to life-threatening in a matter of hours.

  9. When I take antibiotics, they work quickly, and I only need one round.

  10. I haven’t been on antibiotics dozens or even hundreds of times over the course of my life.

  11. I’ve never been on prophylactic antibiotic therapy. I don’t even know what that is.

  12. I don’t have to routinely take medicines such as prednisone that weaken my bones and put me at greater risk for osteopenia and osteoporosis.

  13. I don’t have to wonder what comorbidity might be lurking just around the corner and if it will be a noninfectious condition, a malignancy, or an autoimmune disorder.

  14. I’ve never heard the phrase “immune dysregulation” and don’t have to concern myself with what that might mean.

  15. For me, boosting immunity means popping more vitamin C or Airborne. I have no idea what immunoglobulin is or why it’s essential to the human immune system.

  16. When I attempt to eat out, I don’t have to think too much about how long items are left on buffet tables or how well food is washed and prepped by food handlers.

  17. When I’m out in public, I don’t have to worry when people cough into their hands or without covering their mouths.

  18. I can be sure that, when I go to classes, movies or restaurants, I’ll find a place to sit in which I’m free from issues that exacerbate my breathing problems, such as perfumes, fragrances, and cigarette smoke.

  19. I know I won’t have to pass on social activities because they would put my health at risk.

  20. I know family gatherings won’t pose a threat to my health, even if young, potentially unvaccinated, children are present.

  21. If someone I love is in the hospital, I don’t have to think about when I can visit, how long I can stay, or other health considerations. I can fully focus on that person and their health needs.

  22. I can attend school, have a full-time job, raise a family, and engage in recreational activities without also having to manage the many conditions that would affect me if my immune system didn’t function properly.

  23. I can leave meetings, classes, and conversations and not feel excluded, fearful, attacked, isolated, outnumbered, unheard, held at a distance, stereotyped, or feared because of my immune system.

  24. If I pick up a magazine or watch television, I’ll see images that represent me and my experience of my health.

  25. I never have to speak on behalf of all those who are immunotypical. My thoughts about my immune system can be my own with no need for political alliance relative to my immune function.

  26. My actual and potential contributions to society will not be challenged because of my immune system.

  27. I can go for months without thinking about or being spoken to about my immunotypicality.
  28. I’m not identified by my immunotypicality.

  29. I won’t lose friends who can’t relate to what I’m going through, who think I’m exaggerating about my symptoms, or who just can’t deal with having a friend with my health status.

  30. I know I won’t be discriminated against by employers who neither understand my condition nor have the desire to provide a reasonable accommodation, despite the legal requirement that they do so.

  31. I don’t have to be afraid that, when I talk with others about my health, they will suggest unsolicited supplements, dietary approaches or exercise programs.

  32. I won’t be told by friends, family, and even uninformed members of the medical community that my condition is really just a psychological problem such as anxiety or depression.

  33. I know nobody looks at me and makes assumptions about why I appear to be ill (or well), or why I am too thin (or too heavy), or why I am not fit (or manage to stay fit despite my illness), or why I do (or do not) eat what I do (or do not) eat.

  34. I don’t have to explain why I have a lingering cough, why I might sometimes need to wear a mask in public, or why situations and settings that are safe for others may not be safe for me.

  35. Because I have never had to wear a mask in public, I have never been asked to leave a public place because the manager or owner of the establishment believes I am putting others at risk, when in fact the mask is to protect me from the pathogens others carry.

  36. I don’t have primary immunodeficiency, so I never encounter people who make the assumption that, despite the condition being genetic, I somehow brought it on myself through my diet or lifestyle.

  37. People aren’t embarrassed to be seen with me because of my health status.

  38. When I talk about my health, I can be certain that friends, family, co-workers, and others won’t become uncomfortable and change the subject.

  39. My partner doesn’t suffer from undue stress and hardship because they’re my primary or only caretaker.

  40. Nobody tells me I should feel lucky to have primary immunodeficiency because it means I don’t have to work or accomplish anything during my lifetime.

  41. My doctors have seen a lot of patients who are immunotypical. This means I’m not put in the position of having to educate them about my immunotypicality, since they’re already familiar with it.

  42. When I present in a health crisis at the emergency room, I’m given prompt medical treatment, not told I’m merely having a panic attack.

  43. I’ve never had the experience of being misdiagnosed over and over again throughout my life.

  44. I don’t have old misdiagnoses in my medical record that can’t be removed without a great deal of time and effort on my part.

  45. I don’t have to deal with the financial burden of expensive, ongoing medical care and therapy.

  46. I don’t have to face insurance companies that must review coverage for my life-saving therapy before that treatment is approved; that sometimes make patients go off their therapy for months in order for those patients to prove they still have the condition; and that sometimes deny therapy because they don’t feel the patient is ill enough to warrant it, despite documentation to the contrary in the patient’s file.

Black Box

I had an exciting thought about a poem at the tail end of a dream, and now I can’t go back to sleep. The fact that poems thrill me after three decades says a lot about poems. Perhaps it’s not just the Earth and sky that last forever, as the band Kansas asserts. It’s also the verse, the line.

I will never remember what happened to me two years ago today because I was overmedicated in the emergency room at Intermountain Health after being turned away when I went to the mental-health access center there for help the day before, but not before the access center kept me in a loud, brightly lit room for 24 hours with no bed, where I was left alone with two male nurses. What a terrifying thing for someone with a history of abuse at the hands of men to endure while in a state of trauma about her childhood abuse. Also, sleep deprivation and exposure to lights and noise, including music, day and night are more in keeping with prison torture tactics than with mental-health care, but sadly, the two are often one in the same. Shame on Intermountain for engaging in such practices.

To top it off, they failed to give me my thyroid-replacement medicine for hours, thereby exacerbating the state I was in by disrupting my endocrine system, which in turn negatively affected my HPA axis. That axis is key to emotional regulation. I don’t have a thyroid thanks to thyrotoxicosis and cancer, so my thyroid-replacement medication is critical. My TSH was already 11mIU/L when I got to the access center. It should have been less than 1mIU/L. The access center made my hypothyroid state even worse by not administering my medicine in a timely fashion.

The ER overmedicated me after I said Joseph Smith was delusional. What I actually said was, Sure. It’s fine when Joseph Smith does it, but not me. I wasn’t being hyperreligious. I was deconstructing religion, in that moment Mormonism, as well as the unwritten social rules that appear to govern when someone is seen as insane, divine, or both. Crazywise, as some call the latter. But not, largely, Southern Utahns, and certainly not ER workers at Intermountain.

That’s the last thing I remember. I blacked out for more than a day, this one: September 9, 2023. It’s a dark, rough-hewn box I can’t open, but I think Sharon Olds’ devil from her collection Satan Says might be inside it. By that, I mean my father.

Blood Work

I’m basking in the afterglow of running the gauntlet of angry Utahns waiting to have their blood work done at the draw station when none of the phlebotomists managed to report to work, so another staff member who knows phlebotomy had to step in, even though that’s not her job.

The people in that waiting room were hungry because these are fasting tests. They were sick and old and impatient. They had things to do or nothing to do that they’d rather do elsewhere than at the draw station.

One had a repairman coming. Another needed to get back to his morning gardening. A third was assessing the situation from a systems-theory perspective. Things weren’t run like this when he worked in IT for military hospitals, he told me.

A fourth tried to jump the line and complained bitterly when he was told he couldn’t do that. A fifth ran through the halls with blood dripping from her arm where the needle had been inserted for the draw.

And then there was my favorite, an octogenarian who turned to her husband and shouted, “Well, this is going to take forFUCKINGever” loud enough for everyone waiting to hear.

Also, even with all the peeing I do day in and day out, there’s one time I can’t pee. It’s when someone tells me I need to provide a urine sample and hands me a clear plastic cup.

Dana for Mayor

My day hasn’t gone as planned. I went to get lab work done early this morning only to find out the orders were never placed, which means I won’t have results in time for my appointment with the specialist who (should have) ordered them. This is the doctor who, in part, is following my cancer status, so the labs are important.

I came home to an attempted identity-theft scam that Jon and I both had to deal with immediately. Things like this are happening more frequently, and they’re harder to identify. Someone tried to hack one of my online shopping accounts just three days ago.

I commented on a story in The Salt Lake Tribune in support of a gay mayor in one of Utah’s cities. Someone else in the queer community, another Utahn, saw my comment and thought I was saying the opposite of what I was saying. Their response was to tell me that I’m attacking the mayor based on his sexuality, that I’m not being Christlike, and that I’m so ugly-looking that they’d never live in a city where I was the mayor. Humph. I have many grumpies around that set of assertions.

My Fitbit died. I have no data whatsoever, and I rely on that data for my health and mental health.

I drove half an hour each way to see my therapist, where I hoped to talk about the parts involved in my strong feelings about the SLT commenter calling me an unattractive, unkind homophobe, but the therapist forgot my appointment, which means I drove for an hour for no reason and have three exiles I need to deal with on my own now rather than in therapy. (Exiles are a type of part in the Internal Family Systems framework. It’s not ideal to be exploring them alone.)

These are all small problems in the larger scheme of things, and they’re counterbalanced by an incredible conversation and connection I had with a fellow poet today. We talked about organization, one of my favorite topics, and poetry and community and dogs and mountains. I mean, it was good stuff.

Also on the plus side, there’s my sweet dog. And my relative ability to handle all these relatively small problems. And my view of the laccolith, which I can see now that the clouds have started to dissipate or move on or whatever clouds do.

Oh, and someone ran over a raccoon in our neighborhood, so there’s also that sad occurrence. That’s another item for the negative side of today’s +/- list. I wouldn’t have known if I hadn’t been making that fruitless round-trip drive to see the therapist.

You can file this under grumpy with a lower-case g or grumpy with a capital g or dumpy if you also think I’m so unattractive you would never live in a city where I’m the mayor. The last part of that sentence was written by one of the exiles. She was called ugly by her classmates almost every day of her life from preschool until she was well into puberty. We’re working through it.

The Napture

Today is not my day to experience the napture, that is being transported from Earth to heaven in the midst of a fabulous nap. Apparently, I will not have any nap at all today, despite being mostly awake all night with my sweet dog, who’s not feeling well.

Maybe it doesn’t matter. Fitbit thinks I’m asleep all the time for some reason, including while I was sopping my sweet dog’s vomit out of the wool rug in the bedroom while the ceiling fan—which I’d turned on accidentally in the chaos of the moment—mocked my nearly bare back with wave after wave of cold air. Maybe I really was asleep. Maybe I’m asleep now. Maybe we evolved from sleep into wakefulness, but we’re never fully awake, even when we think we are. Maybe Fitbit knows this about me, about you, about all of its wearers.

Lately, Fitbit’s also been like, Hey, your heart rate’s totally low these days, super job, which doesn’t make sense because I’m not properly executing any of my self-care stuff. I’m barely keeping up with the 57 biomarkers I routinely track, not to mention the dozen or so behaviors I monitor. I haven’t tallied the exact number of behaviors I track, which shows you how much I’ve been slacking. Data only works if you work that data, right? Can I get a high five?

I mean, I’m trying to be a data-driven lifeform, but I’m failing better day after day. I’m having carbs again this afternoon, for one thing: the no-bake cookies that are my undoing when I allow myself to be undone, that is eating an uncorseted diet that’s bound to tank my efforts at improved mental health. If I had my continuous glucose monitor on, I could see in real time what those cookies do to my glucose levels, and from that data I could infer what’s happening to my mitochondria. I could look at old data, but it’s not the same. I need to see in real time what I’m doing to myself so I’ll stop doing it.

This is serious work, and I’m messing it up, and I can’t even take a nap, which seems like it would help. Why can’t I nap? 1: Birds. They’re too loud. 2. Lexi. She’s too restless. 3. Heat. It’s 76 degrees in here, and I’m too hot, the kind of hot one feels when one is menopausal, though I’m long past those days. I’m carb-hot. I ate carbs yesterday, and it’s made me hot. Not in a good way. 4. Husband. Things with, including accusations that I said something mean in all caps when I believe I said it all lowercase. 5. Husband again. Making silly vulgar gestures at me while someone I was talking to on the phone was telling me something awful and important. 6. The awful and important thing I was told and how I can’t do anything about it and how the whole world seems like a gaping maw sometimes, not at all heavenly, not at all a place where naps can be imagined or hoped for, let alone naptures.