Truss Me

Cancer cells can hide inside other types of cells within the body, which is how cancer can evade detection and continue taking up residence inside us even after cancer treatment.

Viruses can mask themselves inside us and avoid being found for years. Hepatitis C does so using FAD, a molecule composed of Vitamin B2 and the energy carrying molecule ATP.

It only takes one B cell turning on our bodies to get all the B cells around them whipped up and make them act the same way, at least for a time. That’s how autoimmune diseases like alopecia areata happen, where an itch or some other benign thing affecting the skin turns into a bald patch that lasts for months or forever because first one, then many, B cells misinterpret the itch as a threat.

My immune system is dysregulated. In addition to having immune deficiency, I have several forms of autoimmunity. My humoral immune system doesn’t always attack invaders such as viruses and bacteria, but it does attack me, my body, routinely. Dysautonomia looks like it’s an autoimmune disease. That tracks with my immune system dysregulation and the way I’ve been developing more and more autoimmune diseases over the course of my adult life.

Many of the health issues I’ve been having over the past two years seem to be my body saying no, the way Gabor Maté discusses such phenomena in his book titled When the Body Says No. My body has been saying no since I was a child, since my trauma started, my familial sex abuse and trafficking. My body keeps saying no and is now in a rhythm of saying no, sometimes quietly and—in a pattern that starts every seven years and resolves in about a year’s time—sometimes piercingly.

I’m at the end of one of those cycles now, but my body isn’t coming back. I’m a rubber band whose elastic has failed, the kind that ultimately break after years of use. I still can’t gain the weight I lost. I’m in pain every day, sometimes extreme pain. My heart gallops and loses its pacing. It would be put down at the track. I’m struck by bouts of exhaustion that come when they please and leave when they please. My TSH absorption continues to be significantly dysregulated despite not even having a thyroid anymore.

I’m fighting, but I’m not coming back. I don’t know if I’ll return this time. The trauma I’ve experienced is severe. My health issues are alarming and serious. Complicated, my doctors say. Your health is complicated. They are somber when they speak to me. They don’t have as much hope as I do, or at least as much as I once had.

The first person Maté writes about in his book dies. She can’t come back from her health issues and ultimately succumbs to them. Cancer, I think. I’d have to look again, and I can’t bear looking. That book is hard for me to read. This life is hard for me to live.

But I want to live. I will live fully as long as I can, whatever that looks like for me and whatever that continues to look like over time.

Haters, especially local haters who think the problem in this community is me because of my gender and sexuality and because of the ways in which I talk about my trauma, especially in and through my poetry: You don’t need to keep me down or hold me back or marginalize me. Stop doing that to me and to others like me. You’re poison. We need the antidote, not more of you. You will be ashamed of yourself someday. You will wish you’d led with love, been flooded with love, exuded love. Trust me. (Dont’ truss me.)