I’ve been thinking a lot about this label of “overfocused” ADHD. I’ve gotten some feedback from advocates and specialists in this area who say they aren’t convinced of my diagnosis. While they agree that I have the qualities described in overfocused ADHD, these experts also note that there are politics involved in framing those qualities as “symptoms.”
Pharmaceutical companies are more concerned about patents than patients.
In their view, many people with dyslexia have these qualities, as well as almost everyone with high intelligence. (Their words, not mine, but I am also not going to pussyfoot around the fact that I am highly intelligent. That would be disingenuous nonsense.) One person pointed out that schools for gifted children see these qualities in their students and begin designing curriculum around those students as early as kindergarten.
In short, what’s seen as a disability by some is seen as an ability by others, as a characteristic to be accepted and harnessed, not obliterated through medication, negative reinforcement, or both.
I’ve also been stumbling a bit over the juxtaposition of the word “overfocused” against the words “attention deficit.” That feels like an oxymoron. Some descriptions of overfocused ADHD say that this subtype is not so much a lack of attention but too much attention and that the medicines typically used to treat ADHD won’t work on the overfocused variant because they will make the focus more intense, including aspects such as worry and rumination, which can in turn make the person with high focus feel worse.
How can you have “too much” attention and still be called “inattentive,” I’ve been wondering. Is there not a better term to describe the qualities of the person who can maintain focus for hours on end? For the mind that can execute a task in this manner? For this level of productivity? Why is this type of ADHD lumped in with ADHD at all? Simply because attention is concerned in some way?
Does the metacategory of ADHD even exist? Or is forcing disparate attention-based qualities under one overarching category an example of rigid adherence to a hierarchical construct, one that might wrap things up in a tidy framework but that ultimately says nothing in actuality about how these qualities are, or are not, related.
I would not have been able to be a music performance major if I had not been highly focused. That educational path requires four hours of practice each day, along with another three hours or so of practice in ensembles and in one-on-one study with your professor. That’s seven hours, at least, of intense focus in both mind and body, seven days a week. (Musicians get no days off, especially not flutists, otherwise the embouchure will fail.) You could easily categorize every single person in a conservatory as having overfocused ADHD, especially compared with the dawdling, low-grade focus many (neuro)typical jobs demand, with two days off each week.
Likewise, as a dyslexic English major, I would not have been able to consume all the novels, plays, poetry collections, essays, theoretical works and other reading materials required without high focus. Yes, it might have taken me four times as long to get through those materials, but high focus allowed me to do so. (As a dyslexic person, the qualities described as overfocused ADHD have allowed me to do everything that I do, and that’s been the case for decades.)
Furthermore, do graduate programs not require outright intense focus? What about those that involve research and lab work? My editorial work has largely been in the field of science and medicine. I believe every scientist and researcher I’ve worked with over the past decade and a half would easily qualify as having overfocused ADHD. One of those researchers even tried to recruit me into the field of biology not too long ago, perhaps because she could see I had a focus similar to her and her colleagues, as well as a mind that dissects ideas in the same way as them. (I tried to explain to her that I dissect language and concepts, not frogs, but she didn’t really get it. For her, talking about biology was so close to doing it, that I might as well have been doing it.)
And who says what’s too much attention, what’s not enough attention, where attention should be directed and, conversely, where it should not be directed? These, too, are political questions. What is championed is almost always what any given culture deems important. That is, what is deemed important is culturally constructed, not immutable. Even what we try to eliminate is important, though, because without those aspects of culture—those fringe aspects produced by the minority as opposed to the majority—culture would fold in on itself.
I suppose my concern is that the words “deficit” and “disorder” are part of this label. That’s the case because those lobbying for these clusters of qualities to be seen as a pathology needed (and still need) that framing in order to secure funding, build alliances and justify treatment options. In short, our health care and educational frameworks are built on, responsive to, and supportive of pathology.
Because medicine is involved in this, big money is involved, and big pharma is involved. I don’t really trust big pharma to define me and my life, or anyone’s life, given that their objectives often run contrary to those involving human welfare, human safety and human expression. Money colors everything, even making medicines unavailable to the masses because pharmaceutical companies are more concerned about patents than patients, therefore only the world’s relatively privileged can afford to get their hands on those medicines.
I’ll close by quoting from the book I recently reviewed, Thomas Armstrong’s Neuodiversity: Discovering the Extraordinary Gifts of Autism, ADHD, Dyslexia and Other Brain Differences:
One of the great disadvantages of the term ‘ADHD’ is that it speaks of a deficit in attention. Children (and adults) labeled ADHD are actually very good at paying attention. They excel in paying attention to what they’re not supposed to be paying attention to! This is called ‘incidental attention’ and is another trait of the creative person.
He continues:
People labeled with ADHD are also very good at paying attention to what interests them. Many parents have written to me saying that their ADHD-diagnosed kids will spend hours focused on building with Legos, dancing, operating video games, or engaging in other absorbing tasks. Unfortunately, the ADHD community has also taken this admirable trait and turned it into a negative. They call it ‘hyperfocus’ and consider it to be yet another ‘warning sign’ of attention deficit. But the ability to focus the mind for hours on a single topic has been considered for centuries to be the trait of an exceptional mind (otherwise, why do so many cultures and religious traditions cultivate the ability to concentrate?).
And here’s the last excerpt I will share:
The fact of the matter is that children and adults with ADHD have a different attentional style than neurotypical individuals. They have a ‘roaming’ attention that can notice many different things in a short period of time and a ‘homing’ attention that can fasten onto one thing of great interest and stay with it for a long period of time. It does a great disservice to those diagnosed with ADHD to say that they have a deficit in attention, when they are acutally good at two different forms of attention and have problems primarily with one other form, sometimes referred to as ‘central-task’ attention, where sustained attention must be paid to routine (and often boring) events that have often been externally imposed.
As my friend Daniel pointed out to me, there is also a problem with labels that we place upon ourselves. (And I’m not saying that you are, just using his wisdom to share my own story, for reasons that are hopefully clear a bit later.)
When I was suffering from what turned out to be a herniated disc, but at the time was undiagnosed, it felt as though I was going to be permanently physically disabled. This was around the one-year mark of being visited by deep muscle tissue pain in both thighs and lower back, a right arm that sometimes didn’t function properly, and tingling/numbness in my face, feet, and hands. It eventually progressed to the point where I was nearly unable to walk. The constant chronic pain was fatiguing—physically, mentally, emotionally, socially.
I used terms such as “permanent” to describe the pain. I was truly living in an absolutized moment.
Daniel was able to offer me other terms to use, such as “constant” pain. This was partly due to his living outside the pain, but also due to his concern to me.
I carry Daniel’s “reframing” of my condition around with me today. It also helped that the disc eventually ruptured and the pain/numbness changed the way it manifested. It isn’t quite as dramatic as it once was, but still confounds doctors when it appears every six to eight weeks. (They don’t like the fact that it crosses their medical notion of the cranial-lumbar nerve divide in the back; a lower back problem disc shouldn’t affect my hands and face according to them, even though I’ve explained on dozens of occasions how I can feel the disc move and immediately have all of the symptoms turn on and/or off together.)
We had some long discussions about the mythologies that we build for ourselves as individuals and communities. Do we adopt rigid mythologies or fluid mythologies? Who gets to decide who the major and minor gods/goddesses are?
These conversations allowed me to shift the way I think about my pain when it’s present. It doesn’t make the pain go away, but it makes it more manageable, more navigable, more livable.
In fact, the trouble I have now is having to explain to people why they may see me with a cane one day and not the next and then using it on the day after that. I’ve imbued the cane with powers that they just don’t understand because they cannot or will not bother to actually listen to what it means to me. It helps me get around on days where movement is difficult, but there is also a comfort that comes with its support on some days. In that sense, it is truly a “crutch.” In some other sense, it is the magic stick of a Trickster, who needs a game to get through the day, to shift the pain and suffering into an object that can be cast off and away, even if only temporarily.
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My daughter has been able to focus from an early age on books and text. Even as an infant and toddler, we could read to her and she would sit as though entranced, completely and utterly engaged. That continues to this day. She is a kindergartner but has a reading level somewhere in the sixth or seventh grade range. She’s finished the first two Harry Potter books on her own and well into the third.
That hyperfocus when reading doesn’t necessarily translate into other areas of her life, though. Part of that reading hyperfocus may be learned (her mother and I read quite a bit around her and have encouraged the same in her), although my guess is that much of that is also innate to who she is.
I don’t consider her ADHD, though. She seems like a “normal” six-year-old in other regards.
I wonder how many children are/were harmed by labels that perhaps aren’t/weren’t warranted? I also wonder how many children are/were harmed because they are/were overlooked and not labeled, for one reason or another, and don’t/didn’t receive help that would help them to better navigate the world?
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Hi Troy. I find myself wanting to “like” this comment and your last one, as if my site were Facebook, which it’s not. So I have to say I like your comments the old-fashioned way: Troy, I like these comments. I appreciate your taking the time to leave them, as well as the chance to learn a little more about you, those you love, and how you approach the world, yourself and others. 🙂
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Diagnoses and labels of all types (medical, psychological, educational, ethnic, literary) will be used against you, will harm you and haunt you, unless you, in your own ultimate wisdom, decide to embrace them. This is the work you are doing, Dana. It will only make you stronger.
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That’s why we must divorce ourselves from the systems that seek to harm us. That’s not always easy to do, but I am making that attempt in my life. I know you are doing the same in yours.
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